A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?

• DOI: 10.1186/s12910-021-00721-4
• Publication Date: 2021-11-23T12:02:45Z
• Authors: Lieke M. van den ...; Els L. M. Maeckel...; M. Corrette Ploem; Imke Christiaans
• Keywords: Distrust; Philosophy of medicine; Duty to warn

With advances in sequencing technologies, increasing numbers of people are being informed about a genetic disease identified their family. In current practice, probands (the first person family whom predisposition is identified) asked to inform at-risk relatives the diagnosis. However, previous research has shown that sometimes not due barriers such as conflicts. Research on communication diseases aims explore difficulties encountered informing and identify ways support this.