Requirements for the collection of electronic PROMS either “in clinic” or “at home” as part of the PROMs, PREMs and Effectiveness Programme (PPEP) in Wales: a feasibility study using a generic PROM tool

• DOI: 10.1186/s40814-018-0282-8
• Publication Date: 2018-05-08T04:03:35Z
• Authors: Susan O’Connell; Robert Palmer; Kathleen Withers; Neeleem Saha; Sarah Puntoni; Grace Carolan-Rees
• Keywords: Prom; Welsh

The patient-reported outcome measures (PROMs), experience measure (PREMs) and Effectiveness Programme (PPEP) launched with the aim of supporting all National Health Service Wales (NHS Wales) organisations to collect PROMs PREMs across a range conditions. is generic condition-specific electronically from every secondary care patient in provide that can be used determine clinical cost-effectiveness treatments services. This study reports on PPEP developing an electronic platform suitable for large-scale data collection, storage, analysis reporting identifies problems encountered solutions implemented using PROM survey as example.The available English Welsh consists consent section three components: EQ-5D-5L tool, Work Productivity Activity Impairment (WPAI) tool number "about you" questions. questions are designed assess factors which may affect health outcomes such information height, weight, smoking history, exercise levels alcohol consumption. A dedicated database was built, links between e-PROM other key databases within NHS were developed.Pilot testing unvalidated sections found most well understood easy answer: however, feedback suggested some improvements changes required, specifically around relating exercise.Electronic collection has been initiated six seven boards at-home boards. More than 9300 patients have completed survey. Early results one Board show took approximately 10 min complete questionnaire answering average 94.7% questions.Successful implementation programme dependent including close collaboration clinicians, analysts, IT specialists ensure any system fit purpose user friendly both clinicians.