“It’s My Secret”: Fear of Disclosure among Sub-Saharan African Migrant Women Living with HIV/AIDS in Belgium

• DOI: 10.1371/journal.pone.0119653
• Publication Date: 2015-03-17T19:49:24Z
• Authors: Agnes Ebotabe Arrey; Johan Bilsen; Patrick Lacor; Reginald Deschepper
• Keywords: Adult; Adolescent; Science; Emigrants and Immigrants; Truth Disclosure; Interviews as Topic; 03 medical and health sciences; 0302 clinical medicine; Belgium; 5. Gender equality; Humans; 10. No inequality; Africa South of the Sahara; Acquired Immunodeficiency Syndrome; Q; R; HIV; Sub-Saharan African migrant women; Middle Aged; 3. Good health; Stigma; Medicine; Female; qualitative research; Research Article

Patients with HIV not only have to deal with the challenges of living with an incurable disease but also with the dilemma of whether or not to disclose their status to their partners, families and friends. This study explores the extent to which sub-Saharan African (SSA) migrant women in Belgium disclose their HIV positive status, reasons for disclosure/non-disclosure and how they deal with HIV disclosure. A qualitative study consisting of interviews with twenty-eight SSA women with HIV/AIDS was conducted. Thematic content analysis was employed to identify themes as they emerged. Our study reveals that these women usually only disclose their status to healthcare professionals because of the treatment and care they need. This selective disclosure is mainly due to the taboo of HIV disease in SSA culture. Stigma, notably self-stigma, greatly impedes HIV disclosure. Techniques to systematically incorporate HIV disclosure into post-test counseling and primary care services are highly recommended.