Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study

• DOI: 10.1371/journal.pone.0285213
• Publication Date: 2023-05-04T17:48:31Z
• Authors: Sarah Muñoz-Violant; Verónica Violant-...; Manuel J. Rodríguez
• Keywords: Convalescence; Well-Being

Well-being in children with a complex medical condition (CMC) impacts the way they view and communicate their immediate environment as well development, it is thus necessary to inquire about contextual issues different needs that CMC carries. This pilot study aimed identify factors of pediatric well-being from experience hospitalization convalescence youth caregivers, cross-sectional analysis using selective methodology complemented by an indirect observational methodology. We analyzed quality life validated KINDL R questionnaire. collected 35 surveys: 11 24 caregivers Spain. focused on sociodemographics, perceptions, coping strategies variables. The results show aged between 3 6 years scored physical lowest out all dimensions well-being, family highest. Moreover, ages 7 17 school-related lowest. Coping deal stressful situations differ caregivers. While mainly engage social withdrawal, cognitive restructuring expressing emotions. However, we did not find relationship perceptions. These highlight need facilitate communication spaces both families health professionals where voice considered.