The use of a Patient Support Program for patients with pancreatic exocrine insufficiency in Sweden to improve usage and adherence to treatment.

• DOI: 10.14293/s2199-1006.1.sor-.ppup05o.v1
• Publication Date: 2023-03-17T11:15:11Z
• Authors: Joakim Svahn; María Luisa Orera...
• Keywords: Specialty; Exocrine pancreatic insufficiency

Introduction Pancreatic enzyme replacement therapy (PERT) is the main treatment for pancreatic exocrine insufficiency (PEI). The objective to deliver sufficient enzymatic activity into duodenal lumen as simultaneously possible with meal in order restore nutrient digestion and aid absorption. PERT available capsules or tablets an oral intake. It important that patients understand how their enzymes work dose properly help optimize compliance timing of administration. Educational programs tools Patient Support Programs (PSP) patient manage PEI can improve management clinical outcomes Aims To present benefit a PSP usage adherence suffering from Sweden. Materials Methods any who has been prescribed Patients enroll program by giving consent participate via dedicated website. Participation free charge does not affect other care provided healthcare system. All information gathered confidential. may withdraw at point have all personal deleted. involves two surveys (at week 1 26), phone consultations trained nurse, well 5 text messages 4 emails, total duration 36 weeks. capture regarding underlying condition, specialty physician prescribing PERT, frequency dosing relative food intake, number taken per day, whether avoids high fat meals avoid gastrointestinal symptoms, stool consistency. remind take contact staff if they questions. emails sent out participants contain reminders medication links useful resources about PEI. advice given nurses are based on generally accepted knowledge Any use limited what contained approved summary product characteristics. financially supported BGP Products, Viatris company, open enrollment since June 2016. Results 374 enrolled (as March 20, 2022). Survey individuals. 190 completed. Approximately 57% respondents stated female. 19% chronic pancreatitis, 15% cancer, 13% undergone gastric surgery, remaining conditions. 28% surgeon, 24% GP, 18% gastroenterologist. 2 328 enrollees completed 116. Comparing responses survey 2, there trend toward improvement bowel function (pain, discomfort, stools consistency) over time; average score 5,9 (survey 1) vs 6,7 2) rating scale 10. Likewise, slight increase mean times day was be observed; 3,7 3,8 2). Overall, 78% individuals responded report participation had positive impact Conclusion Swedish population valuable self-manage treatment.