Family Environment of Individuals with Oral Clefts in Argentina

• DOI: 10.1597/03-118.1
• Publication Date: 2005-03-04T16:20:51Z
• Authors: Diego F. Wyszynski; Claudia Perandones; Patricia Yannibelli; Ricardo D. Bennun
• Keywords: Adult; Male; Psychometrics; Cleft Lip; 4. Education; Argentina; Models, Psychological; Social Environment; 3. Good health; Cleft Palate; 03 medical and health sciences; 0302 clinical medicine; Case-Control Studies; Surveys and Questionnaires; Adaptation, Psychological; Odds Ratio; Humans; Regression Analysis; Female; Family Relations; Child; 10. No inequality; Stress, Psychological; Demography

Objective The purpose of this investigation was to study the social environment of families of children with different types of nonsyndromic oral clefts (OC) and to compare these groups with a control population of families of children without clefts. Design The study compared three nonsyndromic oral cleft groups and the control group using the Moos Family Environment Scale, which examines cohesion, expressiveness, conflict, independence, achievement-orientation, intellectual-cultural orientation, active-recreational orientation, moral-religious emphasis, organization, and control. Setting All parents of children with nonsyndromic oral clefts from a large craniofacial clinic in Buenos Aires, Argentina, were identified and were enrolled in this study between June 2000 and August 2001. Control families were ascertained from the pediatrics service of a hospital located in the vicinity of the craniofacial clinic. Participants One hundred and sixty-five parents were selected, based on having a child with nonsyndromic unilateral cleft lip with or without cleft palate (UCL/P), bilateral cleft lip with or without cleft palate (BCL/P), or isolated cleft palate (ICP). One hundred and eighty control parents with no family history of congenital anomalies were selected, as well. Results There was no major difference in the social environment of families of children with different types of nonsyndromic oral clefts. When compared with families in the control group, families of children with nonsyndromic oral clefts scored better in all three subdimensions of family relationship, revealed a high level of independence, and showed better structure and organization than control families did; however, families of children with nonsyndromic oral clefts reported participating in fewer recreational activities. Conclusions Overall, families of children with nonsyndromic oral clefts displayed a good social environment. Efforts should be focused to involve them in recreational activities.