Giving a voice to families of people with intestinal stoma: reflections on training, care and management

• DOI: 10.30886/estima.v22.1550_in
• Publication Date: 2024-10-11T05:11:51Z
• Authors: Bruna Sodré Simon; Maria Ribeiro Lac...; Maria Denise Schi...; Angelica Dalmolin; Eduardo da Silva ...; Evelyn Boeck dos ...; Nara Marilene Oli...

Objective: To reflect on aspects of training, care and management that contribute to supporting families of people with intestinal stomas. Method: A theoretical reflection study based on a substantive theory developed with 12 families of people with ostomies due to intestinal cancer. Results: With the development of the substantive theory, it was possible to give a voice to families of people with ostomies due to intestinal cancer based on what they identify as the need for multidisciplinary and interdisciplinary care capable of completing the procedural phases experienced throughout the investigated trajectory. For these care changes to be effective, healthcare professional training must include intestinal ostomy care in their curricula. Also, changes in intersectoral management are updating the Management of Users with Disabilities, investing in infrastructure, mainly in adequate public restrooms. Conclusion: This reflection demonstrates the importance of implementing these changes in training, care and management, which help in planning family-centered care, considering that the family provides home care based on interactions, and helps and empowers their family member to implement self-care for ostomy.