Registro del grupo NADYA-SENPE de nutrición enteral domiciliaria en España: año 2013

• DOI: 10.3305/nh.2015.31.6.8983
• Publication Date: 2015-01-01
• Authors: L. González; Carmen Garde Orbaiz; José Antonio Irle...; Carmen Arraiza Ir...; Grupo Nadya-Senpe; Rosa Burgos Peláez; Monserrat Gonzalo...; Cristina Campos M...; Nuria Virgili Casas; Carmen Ballesta S...; Fátima Carabaña P...; Nuria Miserachs A...; Alicia Calleja Fe...; Antonio Pérez de ...; Antoni Rabassa Soler; Miguel Ángel Ponc...; Pere Leyes García; Daniel Cardona Pera; Pilar Matía Martín; Manuel Ángel Pere...; Carmen Gómez Candela; María Dolores del...; José Pablo Suárez...; Cristina Cuerda C...; Carmina Wanden-Be...; Julia Álvarez Her...; José Manuel Moren...; Luis Miguel Lueng...; Antxón Apezetxea ...; María Ángeles Pen...; Silvia Mauri; Bárbara Cánovas G...; Olga Sánchez-Vila...; Miguel Ángel Mart...
• Keywords: 0301 basic medicine; Medical Subject Headings::Health Care::Health Care Facilities, Manpower, and Services::Health Facilities::Hospitals; Adult; Male; Adolescent; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Feeding Methods::Enteral Nutrition; Medical Subject Headings::Organisms::Eukaryota::Animals::Chordata::Vertebrates::Birds::Galliformes::Chickens; Medical Subject Headings::Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans; 03 medical and health sciences; Young Adult; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Patient Care::Withholding Treatment; Medical Subject Headings::Named Groups::Persons::Age Groups::Adult; Registros; Humans; Registries; Nutritional support; Child; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Surgical Procedures, Operative::Digestive System Surgical Procedures::Gastrostomy; Aged; 2. Zero hunger; Aged, 80 and over; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Vital Statistics::Morbidity::Prevalence; Infant, Newborn; Infant; Medical Subject Headings::Named Groups::Persons::Age Groups::Child; Medical Subject Headings::Check Tags::Female; Home care services; Middle Aged; Home Care Services; 3. Good health; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Therapeutics::Intubation::Intubation, Gastrointestinal; Medical Subject Headings::Check Tags::Male; Medical Subject Headings::Organisms::Eukaryota::Animals; Soporte nutricional; Spain; Child, Preschool; Nutrición enteral; Cuidados domiciliarios; Female; Medical Subject Headings::Analytical, Diagnostic and Therapeutic Techniques and Equipment::Investigative Techniques::Epidemiologic Methods::Data Collection::Registries; Enteral nutrition; Parenteral Nutrition, Home

To present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the year 2013.From January 1st to December 31st 2013 data was recorded for the HEN registry and further descriptive and analytical analysis was done.In this period 3 223 patients (50.6% men) and a total of 3 272 episodes of HEN were registered in 33 Spanish hospitals. The rate of prevalence was of 67,11 patients/million habitants/ year 2013. A high percentage of patients (98,24%) were older than 14 years. Adult's mean age was 69,14 years (sd 17,64) and men were younger than women p-value <0,001. Children mean age was 2,38 years (sd 4,35). The most frequent indication for HEN was neurological disease for children (49,1%). and for adults (60,6%). Gastrostomy was the most used administration route for children (51%) while younger ones were fed with NGT (p-value 0,003) also older adults (48%) were fed with this type of tube (p-value <0,001). The most frequent reasons for cessation of treatment was death, 44,4% were children and 54,7% were adults.The number of patients and hospitals registered increased in the last years while the other variables maintain steady. The registry developed allowing contrasted analysis of data in order to get more information.