Caregiver perceptions of usual care home programs for persons with acquired brain injury: a qualitative descriptive study

• DOI: 10.3389/fresc.2024.1490874
• Publication Date: 2025-01-15T06:10:39Z
• Authors: Elena V. Donoso B...; Kasey Stepansky; Sarah E. Wallace; Isabella Bien; Emma Buttino
• Keywords: Acquired brain injury; Family Caregivers; Descriptive research

Objective The study explores caregiver perceptions of home programs for clients with acquired brain injury based on current clinical care after transition to the community. Design A qualitative descriptive study. Setting Within community, post inpatient rehabilitation. Participants convenience sample eight caregivers from one site. All participants spoke English, were between ages 18 and 85 years, had no neurodegenerative disorders, self-identified as caregivers. Procedures Two nested semi-structured interviews completed post-discharge an rehabilitation facility. audio recorded transcribed. Qualitative data analysis was performed utilizing MAXQDA© software, consensus coding, abstraction themes. Results themes subsequent subthemes identified: (1) Systems, Roles, Responsibilities Influenced Caregivers' Perceptions Home Program Recovery Outlook (2) Experience. first theme addresses topics roles responsibilities, system supports barriers, their general outlook recovery. second theme, results provide a chronological description program training, use, modification. Conclusions caregiver’s receiver’s recovery implementation is influenced by burden system-level barriers. experience reported involve limited but satisfactory training. Caregivers saw value in advised others engage them. Future should encourage healthcare providers explicit instruction about intrinsic adherence.