CPAnet Registry—An International Chronic Pulmonary Aspergillosis Registry

Disease registry Patient registry Clinical Research
DOI: 10.3390/jof6030096 Publication Date: 2020-06-29T15:17:17Z
ABSTRACT
Chronic pulmonary aspergillosis (CPA) is a chronic fungal infection of the lung associated with high morbidity and mortality. The CPA Research network (CPAnet) registry established in 2018 an international multicenter collaboration aiming to improve knowledge patient care. This study’s aim was describe data collection process content CPAnet preliminary clinical data. In registry, are collected through web-based questionnaire. Data include phenotype, comorbidities, treatment, outcome, follow-up from several centers. An exemplary descriptive analysis performed on 74 patients, who were registered online before April 2020. patients predominantly (72%) male, 39% had obstructive disease, 68% history smoking. cavitary most common subtype (62%). 32 (52%), voriconazole preferred first-line therapy. multinational valuable approach gather comprehensive large study population reflects real-world practice rather than focusing specific populations more specialized Additional reference centers being encouraged join this promising research collaboration.
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