CPAnet Registry—An International Chronic Pulmonary Aspergillosis Registry

• DOI: 10.3390/jof6030096
• Publication Date: 2020-06-29T15:17:17Z
• Authors: Christian B. Laursen; Jesper Rømhild Da...; Lander Van Acker; Helmut J.F. Salzer; Danila Seidel; Oliver A. Cornely; Martin Hoenigl; Ana Alastruey-Izq...; Christophe Hennequin; Cendrine Godet; Aleksandra Barac; Holger Flick; Oxana Munteanu; Eva Van Braeckel
• Keywords: Disease registry; Patient registry; Clinical Research

Chronic pulmonary aspergillosis (CPA) is a chronic fungal infection of the lung associated with high morbidity and mortality. The CPA Research network (CPAnet) registry established in 2018 an international multicenter collaboration aiming to improve knowledge patient care. This study’s aim was describe data collection process content CPAnet preliminary clinical data. In registry, are collected through web-based questionnaire. Data include phenotype, comorbidities, treatment, outcome, follow-up from several centers. An exemplary descriptive analysis performed on 74 patients, who were registered online before April 2020. patients predominantly (72%) male, 39% had obstructive disease, 68% history smoking. cavitary most common subtype (62%). 32 (52%), voriconazole preferred first-line therapy. multinational valuable approach gather comprehensive large study population reflects real-world practice rather than focusing specific populations more specialized Additional reference centers being encouraged join this promising research collaboration.