Experiences of primary caregivers of children with cerebral palsy across the trajectory of diagnoses in Ghana
caregivers
HD7255-7256
Family medicine
Impact of Parenting Stress on Caregivers and Families
Developmental psychology
caregiving
Caregiver Well-Being
Clinical psychology
Social Sciences
cerebral palsied children
Communities. Classes. Races
Ghana
Pediatrics
03 medical and health sciences
0302 clinical medicine
children
Sociology
Qualitative research
XXXXXX - Unknown
Health Sciences
Classification and Interventions for Cerebral Palsy
Pathology
Psychology
10. No inequality
Original Research
360
Psychiatry
cerebral palsy
Cerebral Palsy
Medical diagnosis
parents
Vocational rehabilitation. Employment of people with disabilities
Social science
Thematic analysis
culture
FOS: Sociology
3. Good health
FOS: Psychology
Clinical Psychology
Psychiatry and Mental health
HT51-1595
Pediatrics, Perinatology and Child Health
Medicine
Cerebral palsy
Referral
Mortality and Sequelae of Preterm Birth
DOI:
10.4102/ajod.v8i0.577
Publication Date:
2019-09-23T23:55:45Z
AUTHORS (7)
ABSTRACT
Background: Cerebral palsy (CP) is a non-progressive disorder of posture or movement caused by lesion to the developing brain that results in functional limitations. The diagnosis CP can vary from one child another, causing family stress because vague and unknown outcomes disorder. Although there are negative attitudes Ghanaian societies towards primary caregivers children with disabilities, fewer attempts have been made understand their experiences.Objectives: main aim this study was explore experiences across trajectory (before, during after) setting tertiary hospital.Method: Using Social Capital Theory as framework, 40 CP, who were receiving treatment at major referral hospital Ghana, interviewed about before, after diagnosis.Results: emerged thematic analysis discussed follows: before diagnosis, diagnosis. Particularly, participants inability access essential services such education for CP.Conclusion: In light systemic challenges faced need health policymakers prioritise public promoting well-being other implications discussed.
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CITATIONS (31)
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