Experiences of primary caregivers of children with cerebral palsy across the trajectory of diagnoses in Ghana

caregivers HD7255-7256 Family medicine Impact of Parenting Stress on Caregivers and Families Developmental psychology caregiving Caregiver Well-Being Clinical psychology Social Sciences cerebral palsied children Communities. Classes. Races Ghana Pediatrics 03 medical and health sciences 0302 clinical medicine children Sociology Qualitative research XXXXXX - Unknown Health Sciences Classification and Interventions for Cerebral Palsy Pathology Psychology 10. No inequality Original Research 360 Psychiatry cerebral palsy Cerebral Palsy Medical diagnosis parents Vocational rehabilitation. Employment of people with disabilities Social science Thematic analysis culture FOS: Sociology 3. Good health FOS: Psychology Clinical Psychology Psychiatry and Mental health HT51-1595 Pediatrics, Perinatology and Child Health Medicine Cerebral palsy Referral Mortality and Sequelae of Preterm Birth
DOI: 10.4102/ajod.v8i0.577 Publication Date: 2019-09-23T23:55:45Z
ABSTRACT
Background: Cerebral palsy (CP) is a non-progressive disorder of posture or movement caused by lesion to the developing brain that results in functional limitations. The diagnosis CP can vary from one child another, causing family stress because vague and unknown outcomes disorder. Although there are negative attitudes Ghanaian societies towards primary caregivers children with disabilities, fewer attempts have been made understand their experiences.Objectives: main aim this study was explore experiences across trajectory (before, during after) setting tertiary hospital.Method: Using Social Capital Theory as framework, 40 CP, who were receiving treatment at major referral hospital Ghana, interviewed about before, after diagnosis.Results: emerged thematic analysis discussed follows: before diagnosis, diagnosis. Particularly, participants inability access essential services such education for CP.Conclusion: In light systemic challenges faced need health policymakers prioritise public promoting well-being other implications discussed.
SUPPLEMENTAL MATERIAL
Coming soon ....
REFERENCES (43)
CITATIONS (31)