Assessing Infertility Literacy and Knowledge Gaps Among Patients with Cystic Fibrosis

• DOI: 10.5152/tud.2023.23061
• Publication Date: 2023-09-18T04:39:05Z
• Authors: Farah Rahman; Katherine Campbell; ; Nicholas Deebel; ; Armin Ghomeshi; ; Mohammed Zarli; ; Lisa Domaradzki; ; Maria Gabriela Tu...; ; Ranjith Ramasamy
• Keywords: Assisted Reproductive Technology

As patients with cystic fibrosis live longer into their reproductive years, fertility concerns are rising. We hypothesized that while may be informed of the impact disease on potential, they remain unaware promising role assisted technology in helping them conceive biological children.We distributed a voluntary and anonymous survey to organizations assess patient understanding fibrosis-related infertility. The questions aimed capture demographic information, education regarding fibrosis, preferences for future fertility.Forty respondents completed (median age 36 ± 14 years). median reported learning about fibrosis-associated infertility was 18 years. Respondents preferred provided early; 43% optimal younger than years 50% between 24 Of trying conceive, have been 1-3 qualifying Yet, majority those (69%) not offered semen analysis 90% had previous treatments.Our findings highlight knowledgeable impacts fertility, high-rated self-confidence. A fraction still desire but services. recommend establishment active partnerships care teams specialists maximize chances conception.