Co-Design Process of a Virtual Community of Practice for the Empowerment of People with Ischemic Heart Disease

• DOI: 10.5334/ijic.5514
• Publication Date: 2020-11-09T09:40:53Z
• Authors: Ana Toledo-Chávarri; Vanesa Ramos-García; Débora Koatz; Alezandra Torres-...; Lilisbeth Pereste...; Ana Belén Ramírez...; María-Eugenia Tel...; Juan-Manuel Garcí...; Javier García-García; Valeria Pacheco-H...; Carola Orrego; Ana Isabel Gonzál...; E-mpodera Group
• Keywords: Medicine (General); Research and Theory; Patient centred care; Ischemic heart disease; consumer involvement; ischemic heart disease; patient centred care; 3. Good health; Social Science, Anthropology; Medical Science, General Practice, Cardiology.; 03 medical and health sciences; R5-920; 0302 clinical medicine; empowerment; Virtual Communities of Practices; Co-design; Consumer involvement; empowerment; virtual Communities of Practices; Ischemic heart disease; patient centred care; consumer involvement; co-design; co-design; Empowerment; virtual communities of practices; virtual Communities of Practices

Virtual Communities of Practices (vCoP) offer patients the possibility to interact and share tools and knowledge necessary for their empowerment. This paper describes the co-design process of a vCoP for the empowerment of people with ischemic heart disease (IHD).We used a modified experience-based design approach to co-design the vCoP in collaboration with people with IHD and health professionals consisting of two phases: exploratory and development phase. Data collection techniques included listening labs, workshops, and online participation.Twenty-five people with IHD and ten health professionals participated. Experiences and needs for empowerment in IHD were identified in the exploratory phase allowing for the development of a Patient Journey Map. In the development phase, people with IHD prioritized needs to be addressed by the vCoP content framework in addition to content proposals.The Patient Journey Map helped to easily visualize the empowerment needs of people with IHD and it might be transferable for the development of other people-centred interventions. The co-design process also allowed the development of training materials adapted to the priorities of people with IHD.A people-centred co-design process of a vCoP may facilitate the empowerment of people with IHD.