Rebecca J. van Kalsbeek
A5049063241- Childhood Cancer Survivors' Quality of Life
- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Family Support in Illness
- Acute Lymphoblastic Leukemia research
- Spinal Dysraphism and Malformations
- Congenital Heart Disease Studies
- Renal and Vascular Pathologies
- Adolescent and Pediatric Healthcare
- Neonatal Respiratory Health Research
- Cardiovascular Conditions and Treatments
- Congenital Diaphragmatic Hernia Studies
Princess Máxima Center
2020-2025
University Medical Center Utrecht
2021
Background: Long-term follow-up (LTFU) care for childhood, adolescent, and young adult (CAYA) cancer survivors is essential to preserve health quality of life (QoL).Evidence-based guidelines are needed inform optimal surveillance strategies, but many topics yet be addressed by the International Late Effects Childhood Cancer Guideline Harmonization Group (IGHG).Therefore, PanCareFollowUp Recommendations Working collaborated with stakeholders develop European harmonised recommendations in...
Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors childhood, adolescence and young (CAYA) cancer. Barriers to implementation include lack time, knowledge, personnel funding. Sustainable solutions are urgently needed address needs CAYA cancer improve quality life reduce burden late effects on survivors, health care systems society. The European Union-funded PanCareFollowUp project, initiated by Pan-European Network Care Survivors after...
Aims: The aim of this study was to report our experience with the Cook Formula stent in treatment (recurrent) coarctation aorta children below 12 kg. Methods and results: In vitro 418 (8 mm) 535 10 stents demonstrated successful down-crimping on smaller balloons predictable fracturing patterns. Between November 2012 January 2019, one patient native, post-interventional thirteen patients post-surgical underwent implantation a stent. Patient procedural characteristics were obtained as well...
Long-term survival after childhood cancer often comes at the expense of late, adverse health conditions. However, survivorship care is frequently not available for adult survivors in Europe. The PanCareFollowUp Consortium therefore developed Care Intervention, an innovative person-centred model based on experiences Netherlands. This paper describes protocol prospective cohort study (Care Study) to evaluate feasibility and economic, clinical patient-reported outcomes implementing as usual...