A5018239779- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Eosinophilic Esophagitis
- Pharmaceutical studies and practices
- Bipolar Disorder and Treatment
- Asthma and respiratory diseases
- Pregnancy and Medication Impact
- Family Support in Illness
- Mobile Health and mHealth Applications
- Medication Adherence and Compliance
- Inflammatory Bowel Disease
- Health Literacy and Information Accessibility
- Family and Disability Support Research
- Innovations in Medical Education
- Microscopic Colitis
- Respiratory and Cough-Related Research
- Pediatric Pain Management Techniques
- Patient-Provider Communication in Healthcare
- Youth Education and Societal Dynamics
- Child Development and Digital Technology
- Retirement, Disability, and Employment
- Renal Transplantation Outcomes and Treatments
- Autoimmune and Inflammatory Disorders Research
- Ethics and Legal Issues in Pediatric Healthcare
- Mechanical Circulatory Support Devices
Children's Hospital of Philadelphia
2021-2025
University of Pennsylvania
2021-2025
Greenville Children's Hospital
2024
Cincinnati Children's Hospital Medical Center
2019-2020
Rosalind Franklin University of Medicine and Science
2014-2019
Franklin University
2018
Children's Mercy Hospital
2015
Mental health disparities directly tie to structural racism. Digital mental (DMH), the use of technologies deliver services, have been touted as a way expand access care and reduce disparities. However, many DMH fail mitigate persistent associated with racism that impact delivery (e.g., costs, dependable internet access)-and may even exacerbate them. Human-centered design (HCD) be uniquely poised test interventions alongside, rather than "for," marginalized individuals. In employing HCD...
Medication nonadherence is associated with higher disease activity, greater health care utilization, and lower health-related quality of life in pediatric inflammatory bowel diseases (IBD). Problem solving skills training (PSST) a useful tool to improve adherence patients chronic but has not been fully investigated IBD. This study assessed feasibility, acceptability, preliminary efficacy PSST IBD.Recruitment occurred during outpatient clinic appointments. After completion baseline...
Inflammatory bowel diseases (IBD) often begins early in life. Adolescents and young adults (AYA) with IBD have to acquire behaviors that support self-care, effective healthcare decision-making, self-advocacy successfully transition from pediatric adult health care. Despite the importance of this critical time period, limited empirical study factors associated readiness AYA exists. This aimed describe a sample identify modifiable nonmodifiable factors. Seventy-five (ages 16–20) their parents...
Outcomes following transition can be poor; many young adults are ill prepared to take responsibility for their health care, older adolescents report incomplete understanding of medications, and parents remain largely responsible care. Good patient-provider relationships associated with better adherence; however, the role relationship between post-transition patients providers has not been explored. The current study aimed understand inflammatory bowel diseases (IBD), impact paediatric what...
Although adequate disease-related knowledge is recognized as an important component of transition readiness, little empirical attention has been directed toward understanding the levels disease adolescents and young adults (AYAs) with inflammatory bowel diseases (IBDs) or factors associated higher knowledge. This study described in a sample AYAs IBDs examined individual, family, patient-provider relationship knowledge.Seventy-five (ages 16-20) their parents participated. reported on...
Background: Mobile health medication reminder apps may be a useful supplement to traditional adherence-promotion interventions for pediatric chronic illness populations because they can give real-time reminders and provide education promote behavior modification (components known enhance adherence in interventions) an engaging developmentally acceptable way. Moreover, have the potential used by youth parents, important consideration given that shared involvement condition management is...
Abstract Objectives Access to evidence‐based self‐management support in pediatric inflammatory bowel disease (IBD) is a significant challenge. Digital therapeutic solutions can increase access and provide data patients providers that would otherwise not be available. We have iteratively developed mobile application, Self‐Management Assistance with Recommended Treatment (SMART) IBD, allows record symptoms medication adherence. Methods conducted pilot feasibility study for this digital tool...
Youth with inflammatory bowel diseases are at risk for impaired health-related quality of life (HRQoL) and problems social functioning. This study examined the impact attending Camp Oasis (a disease-specific weeklong camp experience) on HRQoL functioning youth diseases. Additionally, collected pilot data whether a postcamp Facebook group contributed to maintenance or enhancement these factors.Twenty-one ages 14 17 years who attended were users participated. (i.e., support connectedness)...
Physical activity (PA) is important for adolescents with inflammatory bowel diseases (IBDs) given the increased risk of developing osteoporosis and IBD-related complications among those IBD obesity. Symptoms such as fatigue, abdominal pain, nausea, frequent movements can interfere PA. Sports participation an source PA adolescents; however, extent to which interferes sports unstudied. The present study aimed examine demographic, health-related, physical, psychosocial correlates perceived...
Summary Background Medication non‐adherence in paediatric ulcerative colitis (UC) has been associated with negative health outcomes including flares disease activity. However, no studies to date have examined longitudinal adherence maintenance medication a prospective controlled trial. Aims To determine whether objectively measured standardised mesalazine (mesalamine) therapy over time was related remission at 52 weeks and the need for treatment escalation newly diagnosed patients UC Methods...
Illness-related parenting stress in parents of adolescents/young adults (AYA) with inflammatory bowel diseases (n = 51) was compared younger youth 48), using the Pediatric Inventory for Parents. Parents and AYA self-reported psychological functioning. Physicians rated disease activity. experienced comparable levels types stress. most commonly endorsed items within emotional distress domain. Poorer parent functioning explained additional variance beyond that activity greater poorer may...
Abstract Background Disparities in asthma persist despite advances interventions. Adherence and self‐management behaviors are critical yet challenging during adolescence. Treatment barriers include individual factors as well structural social determinants of health. Objective To determine differences controller medication adherence, control, treatment by race, income, insurance whether racial disparities when controlling for income insurance. Associations between barriers, control were also...
Cross-sectionally, more adherence barriers are associated with lower medication adherence. However, little is known about longitudinal associations between and Among adolescents inflammatory bowel diseases (IBD), this study examined both (1) how time-varying self-reported affect daily thiopurine (2) at baseline over a six-month period.Eighty-one 11-18 years old prescribed once-daily oral IBD maintenance participated in observational study. Adherence were monthly via the Medication Measure...
Background and aims Traditional definitions of healthcare utilization (HCU) emphasize clinical visits procedures. Clinic calls, an understudied form HCU, occur with high frequency. Understanding examining predictors such as disease activity parent distress, may help reduce overutilization. Methods A total 68 adolescents inflammatory bowel [IBD; mean (SD) =14.18 (1.92) years] their parents participated. Parent distress was assessed through report on the PedsQL Family Impact Module, physicians...
ABSTRACT Objectives: Adolescents and young adults (AYAs) with chronic illnesses use substances at similar, if not greater, rates compared to healthy peers. The present study aimed examine patterns of tobacco use, marijuana binge drinking in AYAs inflammatory bowel diseases. We expected that substance would be associated poorer physical health, psychosocial functioning, disease management. Methods: One hundred thirty‐two completed a single set surveys assessing demographics, activity,...
Children with very early-onset inflammatory bowel disease (VEO-IBD) represent a distinct group of patients IBD unique phenotypic and genetic characteristics; however, they are frequently omitted from psychosocial research. This study used novel, brief measure pediatric global health to assess (1) overall health-related quality life (HRQOL) in children VEO-IBD, (2) HRQOL compared healthy children, (3) whether gastrointestinal symptoms account for the differences between these...