A5063775970- Congenital Heart Disease Studies
- Adolescent and Pediatric Healthcare
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Infant Development and Preterm Care
- Transplantation: Methods and Outcomes
- Child and Adolescent Health
- Congenital Diaphragmatic Hernia Studies
- Family and Disability Support Research
- Emergency and Acute Care Studies
- Mechanical Circulatory Support Devices
- Organ Transplantation Techniques and Outcomes
- Ethics and Legal Issues in Pediatric Healthcare
- Tracheal and airway disorders
- Family Support in Illness
- Renal Transplantation Outcomes and Treatments
- Cardiac Arrest and Resuscitation
- Neonatal Respiratory Health Research
- Heart Failure Treatment and Management
- Cardiac Structural Anomalies and Repair
- Empathy and Medical Education
- Healthcare Policy and Management
- Healthcare Systems and Technology
- Cardiovascular Issues in Pregnancy
- Palliative Care and End-of-Life Issues
Great Ormond Street Hospital for Children NHS Foundation Trust
2016-2025
Great Ormond Street Hospital
2016-2025
University College London
2016-2025
NIHR Great Ormond Street Hospital Biomedical Research Centre
2020-2023
Living with Disability
2023
University of Surrey
2023
National Health Service
2004-2022
NIHR Moorfields Biomedical Research Centre
2021
Ormond (United States)
2020
University of Bristol
2020
Objectives To assess the communication potential of three-dimensional (3D) patient-specific models congenital heart defects and their acceptability in clinical practice for cardiology consultations. Design This was a questionnaire-based study which participants were randomised into two groups: ‘model group’ received 3D model cardiac lesion(s) being discussed during appointment, while ‘control had routine visit. Setting Outpatient clinic, follow-up visits. Participants 103 parents children...
<h3>Abstract</h3> <b>Objective</b> To compare the clinical, angiographic, neurocognitive, and quality of life outcomes off-pump coronary artery bypass surgery with conventional grafting using cardiopulmonary bypass. <b>Design</b> Randomised controlled clinical trial. <b>Setting</b> Tertiary cardiothoracic centre in Middlesex, England. <b>Participants</b> 168 patients (27 women) requiring primary isolated surgery. <b>Interventions</b> Patients were randomised to (n = 84) or 84), carried out...
<h3>Objective</h3> To evaluate the scale and clinical importance of loss to follow-up past patients with serious congenital heart disease, using a common malformation as an example. better understand antecedents specialist patients' attitudes returning. <h3>Design</h3> Cohort study NHS number functionality. Content thematic analysis telephone interviews subset contacted after follow-up. <h3>Patients, intervention setting</h3> Longitudinal complete consecutive list all 1085 UK repair...
The aims of this pilot study were to assess anxiety and stress in parents children admitted hospital identify influencing factors, the feasibility acceptability methodology staff. Parents 28 hospitalised for at least 3 days completed questionnaires assessing psychological functioning after admission, 16 13 whom discharge months discharge, respectively. Almost two-thirds scored borderline/clinical range baseline discharge. Higher scores associated with use self-blame, lower optimism scores,...
This pilot study aimed to assess the impact of using patient-specific three-dimensional (3D) models congenital heart disease (CHD) during consultations with adolescent patients. Adolescent CHD patients (n = 20, age 15-18 years, 15 male) were asked complete two questionnaires a cardiology transition clinic at specialist centre. The first questionnaire was completed just before routine consultation cardiologist, second after consultation. During consultation, each patient presented 3D full...
Background Nurse education and training are key to providing congenital heart disease (CHD) patients with consistent high standards of care as well enabling career progression. One approach for improving educational experience is the use 3D patient-specific models. Objectives To gather pilot data assess feasibility using models CHD during a course cardiac nurses; evaluate potential in this context, from nurses' perspective; identify possible improvements optimise their teaching. Design A...
Electronic health records (EHRs) have contributed to increased workloads for clinicians. Ambient artificial intelligence (AI) tools offer potential solutions, aiming streamline clinical documentation and alleviate cognitive strain on healthcare providers.
The purpose of this multicenter study was to confirm the validity and reliability Pediatric Cardiac Quality Life Inventory (PCQLI).Seven centers recruited pediatric patients (8-18 years age) with heart disease (HD) their parents complete PCQLI generic health-related quality life (Pediatric [PedsQL]) non-quality (Self-Perception Profile for Children [SPPC]/Self-Perception Adolescents [SPPA] Youth Self-Report [YSR]/Child Behavior Checklist [CBCL]) tools. construct assessed through correlations...
Introduction Ethnic differences in the birth prevalence of congenital heart defects (CHDs) have been reported; however, studies contemporary UK population are lacking. We investigated ethnic variations incidence serious CHDs requiring cardiac intervention before 1 year age. Methods All infants who had a England and Wales between January 2005 31 December 2010 were identified national disease surgical audit matched with paediatric intensive care admission records to create linked individual...
To compare the predictive performance of 18 paediatric early warning systems (PEWS) in predicting critical deterioration.Retrospective case-controlled study. PEWS values were calculated from existing clinical data, and area under receiver operator characteristic curve (AUROC) compared.UK tertiary referral children's hospital.Patients without a 'do not attempt resuscitation' order admitted between 1 January 2011 31 December 2012. All patients on wards who suffered deterioration event...
<h3>OBJECTIVE</h3> To evaluate changes in cognitive and academic functioning following cardiac surgery children with congenital heart disease. <h3>DESIGN</h3> A prospective cross sectional study which patients were assessed immediately before treatment 12 months later. <h3>PATIENTS</h3> Three groups of aged 3.5–17 years: a group disease awaiting surgery, another bone marrow transplantation, healthy comparison group. <h3>MAIN OUTCOME MEASURES</h3> Intelligence quotient measures attainment,...
Socioeconomic status (SES) is known to influence children’s health-related quality of life. Many SES indicators assess distinct dimensions a family’s position rather than measuring the same underlying construct. researchers, however, see as interchangeable. The primary aim this study was determine which measure had strongest impact on This secondary analysis Pediatric Cardiac Quality Life Inventory Validation Study. variables were family income, Hollingshead Index (occupational prestige),...