A5059812995- Cancer survivorship and care
- Head and Neck Cancer Studies
- Geriatric Care and Nursing Homes
- Aging and Gerontology Research
- Lymphatic System and Diseases
- LGBTQ Health, Identity, and Policy
- Fibromyalgia and Chronic Fatigue Syndrome Research
- Palliative Care and End-of-Life Issues
- Digital Mental Health Interventions
- Empathy and Medical Education
- Cultural Competency in Health Care
- Sleep and related disorders
- Cancer Diagnosis and Treatment
- Body Composition Measurement Techniques
- Acupuncture Treatment Research Studies
- Family Support in Illness
- Health, psychology, and well-being
- Genetic Neurodegenerative Diseases
- Childhood Cancer Survivors' Quality of Life
- Musculoskeletal pain and rehabilitation
- Patient-Provider Communication in Healthcare
- Balance, Gait, and Falls Prevention
- Body Image and Dysmorphia Studies
- Racial and Ethnic Identity Research
- Facial Nerve Paralysis Treatment and Research
Vanderbilt University
2015-2024
National Center for Advancing Translational Sciences
2023
Agency for Healthcare Research and Quality
2023
Hospital of the University of Pennsylvania
2023
American Association of Critical-Care Nurses
2023
Vanderbilt University Medical Center
2018-2022
Vanderbilt-Ingram Cancer Center
2018
This paper describes the development and implementation of a robust lesbian, gay, bisexual, transgender, queer (LGBTQ) cultural competence curriculum for training health human service providers across New York State. Between 2013-2018, The National LGBT Cancer Network developed published Best Practices in Creating Delivering LGBTQ Cultural Competency Trainings Health Social Service Agencies designed curriculum. They also conducted Train Trainer sessions, evaluated pre- post- knowledge,...
Body image-related distress (BID) is common among head and neck cancer (HNC) survivors associated with significant morbidity. Risk factors for HNC-related BID remain poorly characterized because prior research has used outcome measures that fail to fully capture as experienced by HNC survivors.To assess the association of demographic oncologic characteristics using Inventory Measure Assess imaGe disturbancE-Head & Neck (IMAGE-HN), a validated, multidomain, patient-reported measure BID.This...
Abstract Background This study examined the relationships of depressive symptoms and social anxiety with perceived neck function in patients treated for head cancer. Methods Depressive symptoms, anxiety, neck‐related were measured at baseline, posttreatment, every 6 weeks thereafter 1 year after end treatment, 15 18 months posttreatment. Group‐based trajectory modeling was used to generate clusters similar baseline trajectories cancer treatment. Results Participants included 83 subjects who...
Legacy-making (actions/behaviors aimed at being remembered) may be a significant component for quality of life (QOL) during advanced illness and end life. Although legacy interventions have been tested in adults, the impact activities on QOL children has yet to clearly defined.
A significant percentage of breast cancer survivors are at risk for lymphedema which lifelong self-care is required. Previous studies suggest that less than 50% with (BCS-LE) perform prescribed tasks and even wearing a compression sleeve, the most commonly reported activity, done irregularly. Reasons poor adherence include perceived lack results from (no available arm volume data) inability to manage condition.A two-part pilot study was conducted to: 1) develop determine feasibility...
Objective: The Inventory to Measure and Assess imaGe disturbance - Head Neck (IMAGE-HN) is a validated patient-reported outcome measure of head neck cancer-related body image-related distress (BID). However, the IMAGE-HN score corresponding clinically relevant BID unknown. study objective determine cutoff that identifies cancer patients with BID. Methods: We conducted cross-sectional at six academic medical centers. Individuals ≥18 years old history treated definitive intent were included....
Background: The late effect continuum of lymphedema and fibrosis (LEF) affects more than 70% patients after treatment for head neck cancer (HNC). LEF is associated with symptom burden decreased function quality life. Although surveillance imaging common posttreatment, objective assessment soft tissues not, likely due to the lack evaluation methods understanding significance LEF. We undertook development a tool measure using CT scans in HNC patients. Methods Results: developed measurement...
BackgroundThere is currently no gold standard instrument for assessing pain in severely cognitively impaired adults who are unable to provide self-report.AimsTo determine interrater reliability of the PACSLAC and PAINAD behaviors patients with same stimulus, consistency reliable changes between within instruments assess nurse preference either instrument.DesignA single-group, within-subjects repeated-measures design was implemented.SettingThe study took place a small suburban...
Background: There is a critical need to prepare diverse nursing workforce and address issues of structural racism health inequities. Problem: A shortage underrepresented nurse faculty exacerbates the lack diversity in education. Microaggressions discrimination experienced by students hinder their personal professional growth. Evaluating diversity, equity, inclusion (DEI) belonging within school crucial for progress. Approach: An alumni survey faculty/staff were conducted assess DEI...
Background: Less than half of breast cancer survivors with lymphedema perform self-care as directed. Effective is required to obtain acceptable health outcomes. Self-Regulation Theory suggests that objective self-measurement physiological conditions necessary promote self-regulation/self-care. Bioelectric Impedance Spectroscopy (BIS) represents a potential method for arm lymphedema. The purpose this pilot study was examine the impact on daily activities and outcomes in Methods Results: A...
Hide and Seek: Body Image-Related Issues for Breast Cancer Survivors with Lymphedema Although previous studies of breast cancer survivors lymphedema have examined body image, none image as a multidimensional experience within this population. The purpose paper is to present focus group findings related in lymphedema. Focus groups were conducted at Vanderbilt University School Nursing audio recorded transcribed verbatim. Transcripts coded line-by-line using ATLAS.ti software by three...
Background: Symptoms associated with midline lymphedema are not fully understood and it is unclear if symptoms swelling in the head neck similar to those truncal region of body. Objectives: Describe experienced by lymphedema. Compare symptom presence, intensity, distress among two groups participants no Methods: Cross-sectional descriptive study administered online survey. Results: Nonlymphedema were younger than groups. Those took more diuretic medications other Participants a greater...
Neuropsychiatric and cognitive symptoms account for substantial morbidity in Huntington's disease (HD), but their impact on functional status may not be captured using the Total Functional Capacity (TFC) scale. The objective of this study was to assess motor, cognitive, neuropsychiatric persons with HD, comparing two instruments.Multiple regression analyses assessed relationship between neuropsychiatric, motor as measured TFC Adult Adaptive Behavior (AFAB) scales.Greater burden (P = 0.017),...
Given the role of perceived stress in disability and suicidality military, intervening early before service members become at risk for severe injuries, hospitalizations, chronic could improve health outcomes. The purpose this study was to explore feasibility acceptability a standardized acupuncture (SSA) approach on U.S. military personnel. This had following aims: examine recruitment SSA implementation procedures preparation methodologically rigorous study; treatment sample personnel with...
Shared-decision making for head and neck squamous cell carcinoma (HNSCC) is challenged by the difficulty to integrate patient perception of value within framework a multidisciplinary team approach. The aim this study was develop questionnaire assess preferences HNSCC patients with respect disease trajectory, expected treatment, toxicities. In accordance standardized EORTC Quality Life Group’s methodology development quality life modules, phase 1–2 envisaged. Following systematic review...
Aim People with head and neck cancer (HNC) are at risk of dissatisfaction sexual activity due to the highly disfiguring nature treatment associated physical dysfunction. Facial nerve damage, impaired saliva production difficulty turning some impediments survivors experience. As is an important quality life issue it critical that these issues addressed. The aim this pilot study describe effect HNC its on survivors' experience activity.Method aged 21 years or older a history were recruited...
Neuropsychiatric symptoms in Huntington disease (HD) are commonly encountered, but their effects on functional status poorly understood. In this qualitative study guided by the Theory of Unpleasant Symptoms, 15 HD patients and caregivers completed semi-structured interviews regarding perceived neuropsychiatric status. Physical, cognitive, social were reported, with negative daily activities withdrawal being reported greatest number subjects. Participants also improved function intervention...