A5031398828- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Health Systems, Economic Evaluations, Quality of Life
- HIV/AIDS Research and Interventions
- Patient Dignity and Privacy
- Grief, Bereavement, and Mental Health
- Global Cancer Incidence and Screening
- Cervical Cancer and HPV Research
- Family and Patient Care in Intensive Care Units
- Adolescent Sexual and Reproductive Health
- Family Support in Illness
- Ethics and Legal Issues in Pediatric Healthcare
- Global Maternal and Child Health
- HIV/AIDS drug development and treatment
- Ethics in medical practice
- Patient-Provider Communication in Healthcare
- HIV-related health complications and treatments
- Pediatric Pain Management Techniques
- Ethics in Clinical Research
- Global Health and Surgery
- Pain Management and Opioid Use
- Mobile Health and mHealth Applications
- Chronic Disease Management Strategies
- Pharmaceutical studies and practices
- Poverty, Education, and Child Welfare
African Palliative Care Association
2016-2025
Kabale Hospital
2018
Kalongo Hospital
2018
Makerere University
2018
Mildmay Uganda
2006-2018
Ministry of Health
2018
Kibuli Hospital
2018
Medical Research Council
2018
Pontifical Academy of Sciences
2018
University College London
2018
ContextThe International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief serious health-related suffering, concept put forward by Lancet Commission Global Access to Pain Relief.ObjectiveThe main objective this article is present research behind new definition.MethodsThe three-phased consensus process involved health workers from countries in all income levels. In Phase 1, 38 PC experts evaluated components...
Cytomegalovirus (CMV), a member of the herpesvirus family, was familiar cause blindness and death in patients with advanced AIDS Western countries prior to introduction highly active antiretroviral therapy (HAART). CMV retinitis then occurred roughly one-third AIDS, accounted for over 90% cases HIV-related [1]. Extraocular disease major AIDS-related morbidity mortality [2]. is now clinically infrequent developed countries, thanks widespread availability HAART, although problem has not...
Abstract Background Fewer than 1 in 20 people on the African continent need of palliative care receive it. Malawi is a low-income country sub-Saharan Africa that has yet to achieve advanced integration accompanied by unrestricted access pain and symptom relieving medicines. This paper studied impact Malawi’s Waterloo Coalition Initiative (WCI) – local project promoting through service development, staff training, increased access. Methods Interdisciplinary health professionals at 13...
Introduction Cervical cancer (CC) is the leading cause of cancer-related deaths among Uganda women, yet rates CC screening are very low. Training women who have recently screened to engage in advocacy for their social network a network-based strategy promoting information dissemination and uptake. Methods Drawing on Exploration, Preparation, Implementation Sustainment (EPIS) framework implementation science, this hybrid type 1 randomized controlled trial (RCT) peer-led, group training...
Background: The demand for children’s palliative care is increasingly urgent, with over 21 million children worldwide needing access, yet only 5–10% currently receiving it. Mapping the development of important in tracking progress and focusing priorities future work. Methods: In 2023, a cross-sectional survey was conducted to assess status globally, on eight key indicators. Children’s experts stakeholders were asked evaluate perceived levels their countries across five defined levels,...
The Pontifical Academy for Life (PAV) is an academic institution of the Holy See (Vatican), which aims to develop and promote Catholic teachings on questions biomedical ethics. Palliative care (PC) experts from around world professing different faiths were invited by PAV strategic recommendations global development PC ("PAL-LIFE group").Thirteen in advocacy participated online Delphi process. In four iterative rounds, participants asked identify most significant stakeholder groups then...
Integrating palliative care into national health systems in Africa: a multi-country intervention study Background The WHO is calling for the integration of all settings globally.Methods A 3.5-year program was implemented 12 government hospitals, three each Kenya, Rwanda, Uganda and Zambia.A fourpillared approach advocacy, staff training, service delivery strengthening international regional partnership working utilized.A baseline assessment undertaken to ascertain needs, 27 indicators were...
ContextTo date, there is no study comparing palliative care (PC) development among African countries.ObjectivesTo analyze comparatively PC in countries based on region-specific indicators.MethodsData were obtained from the Association Atlas of Africa, and a comparative analysis was conducted. Nineteen indicators developed defined through qualitative interviews with experts two-round modified Delphi consensus process international global indicators. Indicators grouped by World Health...
Medicine availability is improving in sub-Saharan Africa for palliative care services. There a need to develop strong and sustainable pharmaceutical systems enhance the proper management of medicines, some which are controlled. One approach addressing these needs use mobile technology support data capture, storage retrieval. Utilizing healthcare (mHealth) has recently been highlighted as an enhancing services but development at early stage. An electronic application was implemented part two...
PURPOSE The purpose of this study was to describe follow-up care for breast and colorectal cancer survivors in countries with varying levels resources highlight challenges regarding posttreatment survivorship care. METHODS We surveyed one key stakeholder from each 27 expertise on questions including the components/structure care, delivery treatment summaries plans, involvement primary survivorship. Descriptive analyses were performed characterize results across variations between WHO income...
This article provides a progress update on the development of palliative care in five countries Africa-Kenya, Rwanda, South Africa, Tanzania, and Uganda-between 2017 2021, explores role advocates Open Society Foundations this process.To provide Kenya, Uganda between 2021 to examine impact twenty years support for region integration into publicly funded health systems.In mid-2000s, pioneers these countries, supported by Foundations, began train providers engage policy makers ensure that...
Family-centred HIV care models have emerged as an approach to better target children and their caregivers for testing care, further provide integrated health services the family unit’s range of needs. While there is significant international interest in family-centred approaches, a dearth research on operational experiences implementation scale-up. Our retrospective case study examined best practices enabling factors during scale-up ten facilities community clinics supported by...
Non-communicable diseases (NCDs) in Africa have been comparatively neglected, partly due to donor-driven funding priorities. This is despite NCDs being the principal cause of mortality globally, with majority incidence occurring low-income and middle-income nations. Most patients will suffer from pain, breathlessness other physical symptoms, or need support psychosocial spiritual problems. Reflecting regional disease prevalence, late-stage clinical presentation, limited restricted access...
Background: Paediatric life-limiting and life-threatening conditions (life-limiting conditions) place significant strain on children, families health systems. Given high service use among this population, it is essential that care addresses their main symptoms concerns. Aim: This study aimed to identify the symptoms, concerns other outcomes matter children with in sub-Saharan Africa. Setting participants: Cross-sectional qualitative Kenya, Namibia, South Africa Uganda. Children/caregivers of...