A5057754602- Hemoglobinopathies and Related Disorders
- Iron Metabolism and Disorders
- Religion, Spirituality, and Psychology
- Childhood Cancer Survivors' Quality of Life
- Pancreatitis Pathology and Treatment
- Pediatric Pain Management Techniques
- HIV/AIDS Research and Interventions
- Food Security and Health in Diverse Populations
Seattle Children's Hospital
2021-2025
Severe acute and chronic pain are the most common complications of sickle cell disease (SCD). Pain results in disability, psychosocial distress, repeated clinic visits/hospitalizations, significant healthcare costs. Psychosocial interventions that teach cognitive behavioral strategies for managing have been effective other adolescent populations when delivered person or through digital technologies. Our aim was to conduct a multisite, randomized, controlled trial improve coping youth aged 12...
Severe abdominal pain is a cardinal symptom of chronic pancreatitis (CP) associated with high economic and societal burden. In other conditions, cognitive-behavioral therapy (CBT) has demonstrated efficacy in improving patient outcomes (e.g., pain-related disability depression). However, CBT not yet been evaluated adult patients painful CP. We aimed to (i) evaluate the feasibility acceptability an adapted Internet program for CP (ii) generate pilot data regarding effects treatment on...
Abstract Pain is the hallmark symptom of sickle cell disease (SCD). By adolescence, 20% youth with SCD develop chronic pain. Our randomized controlled trial found significant reductions in pain receiving digital cognitive-behavioral therapy (CBT) vs education control. However, little known about factors that moderate effects CBT adolescents SCD. This secondary data analysis aims to identify adolescent and family characteristics treatment on outcomes 111 aged 12 18 (M = 14.9, SD 1.9, girls...
Background Sickle cell disease (SCD) is characterized by severe acute pain episodes as well risk for chronic pain. Digital delivery of SCD self-management support may enhance skills and accessibility youth. However, little known about how youth with their caregivers engage digital health programs. iCanCope a platform adapted through user-centered design approach. The program was delivered via website (separate versions caregiver) mobile app (youth only). Objective We aimed to characterize...
<sec> <title>BACKGROUND</title> Sickle cell disease (SCD) is characterized by severe acute pain episodes as well risk for chronic pain. Developing self-management skills early in the trajectory can support improved coping. Digital delivery of SCD may enhance accessibility youth. However, little known about how youth with and their caregivers engage digital health programs. iCanCope Pain a platform originally developed The was adapted through user-centred design approach. </sec>...