A5014289964- Down syndrome and intellectual disability research
- Chronic Disease Management Strategies
- Healthcare innovation and challenges
- Family and Disability Support Research
- Dementia and Cognitive Impairment Research
- Frailty in Older Adults
- Psychiatric care and mental health services
- Autism Spectrum Disorder Research
- Healthcare Decision-Making and Restraints
- Geriatric Care and Nursing Homes
- Pediatric Pain Management Techniques
- Emergency and Acute Care Studies
- Health Systems, Economic Evaluations, Quality of Life
- Family Support in Illness
- Assistive Technology in Communication and Mobility
- Family and Patient Care in Intensive Care Units
- Educational and Psychological Assessments
- Disability Rights and Representation
- Migration, Aging, and Tourism Studies
- Child and Adolescent Psychosocial and Emotional Development
- Child and Adolescent Health
- Retirement, Disability, and Employment
- Interprofessional Education and Collaboration
- Musculoskeletal pain and rehabilitation
- Counseling, Therapy, and Family Dynamics
Surrey and Borders Partnership NHS Foundation Trust
2012-2025
University of Stirling
2017
University of Kent
2003
Surrey and Sussex Healthcare NHS Trust
1999
Società Italiana di Fisica
1977
People with Down syndrome (DS) are an ultra-high risk population for Alzheimer's disease (AD). Understanding the factors associated age of onset and survival in this could highlight modulation amyloid cascade.This study aimed to establish typical at diagnosis AD DS these.Data was obtained from Aging Syndrome Intellectual Disabilities (ADSID) research database, consisting data extracted clinical records patients seen by Community Disability Services (CIDS) England. Survival times when...
ABSTRACT Background People with Down syndrome (DS) have an increased risk for Alzheimer's disease ( AD ). Identifying factors associated dementia onset and subsequent survival will support in understanding the profile, improving timely diagnosis, management, care planning. Method Variables age at times were assessed 279 adults DS who accessed a community learning disability service. After outliers removed, regression hazard models used n = 265) 180), respectively. Results Earlier first...
Accessible summary People with learning disabilities might have their children taken from care. If they do, what then happens to the parents? I talked nine mums who had away They told me about this was like and how felt. This research gives advice people (particularly professional people) work better removed. It also shows that sometimes it is difficult for know rights say think. Abstract There a recognised risk of parents having Little has investigated impact on these parents. article looks...
There is little evidence to guide pharmacological treatment in adults with Down syndrome and Alzheimer's disease. Aims To investigate the effect of cholinesterase inhibitors or memantine on survival function disease.This was a naturalistic longitudinal follow-up clinical cohort 310 people diagnosed disease collected from specialist community services England.Median time (5.59 years, 95% CI 4.67-6.67) for those medication (n = 145, mainly inhibitors) significantly greater than not prescribed...
Objectives: Post diagnostic support (PDS) has varied definitions within mainstream dementia services and different health social care organizations, encompassing a range of supports that are offered to adults once diagnosed with until death.Method: An international summit on intellectual disability held in Glasgow, Scotland 2016 identified how PDS applies an dementia. The Summit proposed model encompassed seven focal areas: post-diagnostic counseling; psychological medical surveillance;...
Accessible summary Pain is not recognised and managed well for people with learning disabilities in residential settings – People are getting timely appropriate ‘as required’ medication their pain. Staff do use pain recognition tools or communication aids. Some staff still believe that have a higher threshold than without disability. They also let this belief affect how they manage This research matters to disabilities. It important carers recognise well. We developed training pack leaflets...
Accessible summary Sometimes older people get confused and forget things need lots of help: this is called dementia. People with Down’s syndrome are more likely to develop dementia than other learning disabilities. When have dementia, they extra help from their families or care staff. Psychologists talked staff about what knew found difficult caring for somebody They were asked got services would like in the future. It was that: Most it hard looking after someone Review meetings very...
Accessible summary People with learning disabilities describe pain in terms of feelings or emotions. Staff and doctors do not use recognition tools communication aids. often tell staff family carers that they are pain. If do, unlikely to be given medication, more likely taken the doctors. mostly know who is their doctor understand what does. The majority people said explained was wrong them, medication for how needed take it. This research matters disabilities. It important recognise manage...
The Improving Access to Psychological Therapies (IAPT) programme was established treat people with mild moderate depression and anxiety bring them recovery. Although the Positive Practice Guide for intellectual disabilities published in 2009, no geographical areas are listed as having a special interest specifically rolling out IAPT disabilities. Issues related whether current services can meet needs of considered, along adaptations that would be needed ensure service is accessible meets
Accessible summary Managers of learning disability services in Surrey were invited to come training on pain recognition and management. The managers asked how they recognised managed for people with disabilities, before 3–5 months after training. We found that more using communication aids tools had included information about their service users’ health action plans. People disabilities should have effectively. Staff helps be aware improves the range methods used. Summary Following Beacroft...
There is a current emphasis from Department of Health publications on the need for people to take responsibility monitoring and improving their own health. This includes with learning disability (PLD). paper presents findings pilot study which investigated whether disabilities can understand communicate more effectively symptoms illness. Assessments GPs, clients carers were designed in order ascertain nature consultations currently taking place, level awareness that had body being ill. From...
Accessible summary This study is about the life stories of six older people with Down’s syndrome who spent some part their childhoods in institutionalised settings. They have interesting and moving to tell lives. talked childhood current lives, likes dislikes, strengths difficulties hopes dreams. also spoke important The participants did not talk themselves as being ‘old’, ‘disabled’ or having ‘Down’s syndrome’. other ways, such ‘normal’, a ‘man’ ‘beautiful lady’. researcher learnt herself...
An International Summit on Intellectual Disability and Dementia, held in Glasgow, Scotland (October 13–14, 2016), drew individuals representatives of numerous international national organizations universities with a stake issues affecting adults intellectual disability (ID) affected by dementia. A discussion-based consensus process was used to examine produce series topical reports examining three main conceptual areas: (a) human rights personal resources (applications the Convention for...
Accessible summary We looked at how staff think about the changes from working in a long‐stay hospital setting to home for people with learning disabilities. In homes, said that they were more relaxed and could spend time offer choices residents than when worked settings. With changes, often had make their own decisions care provide worried getting it right. Staff felt managers looking closely what doing. team meetings, supervision training helped them cope changes. Summary This study...
Easy to read summary ■ Even though more psychologists are being trained, it can still be hard for Intellectual Disability (ID) services employ psychologists. This article talks about the psychology training process and how this might not encourage people work in ID. We give some ideas of things that help during training, so Trainees learn working ID services. hope make them likely consider is important because if there enough services, with intellectual disabilities may struggle find...
Individuals with Down syndrome (DS) are at significant risk for early onset Alzheimer's disease (AD), likely due to the triplication of genes on chromosome 21 that facilitate AD neuropathology. To aid effective diagnosis dementia in DS, we demonstrate strategy using single point assessment cognitive performance scoring normed degree intellectual disability generate age related prevalence data acquired mild impairment (AMCI).
Dementia is common in people with Down's syndrome as they age. Having dementia raises huge care considerations for carers and staff. Excellence requires attention to a wide variety of interrelated issues. Carers staff need have good understanding what it means deliver person-centered care. In addition, be clear at all stages the disease about outcomes want achieve person. This will necessitate taking into account both health social issues, well looking physical environment. Staffing training...
This article looks at how people with learning disabilities, including disabilities who develop dementia, make the transition to old age. It identifies key issues in understanding age for ageing process may be different this group, lack of agreement as what constitutes heterogeneity population and inadequacy service responses their changing needs. advocates a number clinical that might help easier people.
Purpose – Outcome measurement is a key priority for services. There are no papers on specific overall quality outcome measures people with intellectual disabilities who have dementia. The purpose of this paper to describe the development and piloting new measure. Design/methodology/approach A process was developed measure outcomes across all stages reliability tool measured using Cronbach’s α coefficients, along data about its clinical utility. Findings QOMID has good reliability, face...
The focus of interest in dementia people with learning disabilities has been largely on epidemiology, prevalence, assessment and diagnosis. There less care issues interventions, a paucity research papers but growing number books resource packs addressing these issues. Psychological non‐pharmacological approaches are useful services for dementia, must be delivered line clear conceptual framework that aids staff understanding what is happening to the person effect their responses. This paper...
Purpose – There is little research addressing the delivery of training for health professionals who are interested in using cognitive-behaviour therapy (CBT) techniques as an adjunct to their current role. This paper describes establishment and evaluation a CBT course develop skills staff working with people intellectual disabilities Trust healthcare settings. The would enable learn how they could incorporate these into daily practice help them understand work more effectively disabilities....
Suraba Mahendiran and Karen Dodd describe an audit undertaken to establish whether care homes were suitably adapted for people with learning disabilities who develop dementia
Purpose This paper aims to describe the development and evaluation of integrated intensive support service (ISS) for adults with learning disabilities who have complex needs are at risk admission an inpatient unit. Design/methodology/approach Existing services were remodelled. The explored external models established ISS comprising community beds. Findings Data indicates that majority people referred avoid both unit placement breakdown. Most admitted not known services. Length stay has...