A5022156763- Palliative Care and End-of-Life Issues
- Childhood Cancer Survivors' Quality of Life
- Ethics and Legal Issues in Pediatric Healthcare
Ludwig-Maximilians-Universität München
2020-2021
Background: Although international guidelines recommend discussions about goals of care and treatment options for children with severe life-limiting conditions, there are still few structured models paediatric advance planning. Aim: The study aimed at identifying key components planning through direct all involved parties. Design: had a qualitative design participatory approach. Participants constituted an advisory board took part in two transdisciplinary workshops. Data were collected...
Decision-making in pediatric palliative care concerns mainly children without decision-making capacity. It has to balance the child's best interests, parental responsibility and impact on family system.Advance planning (ACP) supports decision making about future medical care. A consistent approach is still missing. This study aimed at developing a ACP program (pedACP) meeting specific needs of children, parents professionals.Bereaved with life-limiting conditions professionals involved...
Context: Advance care discussions (ACD) between health professionals (HCPs) and parents of children with a life-limiting disease are core element successful pediatric advance planning (pACP). Yet, they perceived as challenging situation for all participants. Objectives: Our goal was to investigate the first step ACD identify its challenges helpful communication strategies develop conversation guide initiating pACP process structure conversational opening. Methods: We performed participant...