A5089634487- Palliative Care and End-of-Life Issues
- Grief, Bereavement, and Mental Health
- Patient Dignity and Privacy
- Childhood Cancer Survivors' Quality of Life
- Family and Patient Care in Intensive Care Units
- Ethics in medical practice
- Pediatric Pain Management Techniques
- Health Systems, Economic Evaluations, Quality of Life
- Geriatric Care and Nursing Homes
- Family Support in Illness
- Religion, Spirituality, and Psychology
- Pharmaceutical Practices and Patient Outcomes
- Patient-Provider Communication in Healthcare
- Family Caregiving in Mental Illness
- Forgiveness and Related Behaviors
- Pharmaceutical Economics and Policy
- HIV/AIDS Research and Interventions
- Music Therapy and Health
- Family and Disability Support Research
- Intensive Care Unit Cognitive Disorders
- Simulation-Based Education in Healthcare
- Human-Animal Interaction Studies
- Communication in Education and Healthcare
- Lipoproteins and Cardiovascular Health
- Cancer survivorship and care
Case Western Reserve University
2011-2020
National Institute of Nursing Research
2016-2019
Centre for Nursing Innovation
2000-2017
Cornell University
2017
University of Nebraska Medical Center
2017
MetroHealth
2016
Hospice of the Western Reserve
2003-2013
American Cancer Society
2013
Seattle Cancer Care Alliance
2012
University of Washington
2012
For patients with limited prognosis, some medication risks may outweigh the benefits, particularly when benefits take years to accrue; statins are one example. Data lacking regarding and of discontinuing statin therapy for life expectancy.To evaluate safety, clinical, cost impact medications in palliative care setting.This was a multicenter, parallel-group, unblinded, pragmatic clinical trial. Eligibility included adults an estimated expectancy between 1 month year, 3 months or more primary...
Purpose/Objectives: To explore the use of virtual reality as a distraction intervention to relieve symptom distress in women receiving chemotherapy for breast cancer.
Purpose/Objectives: To advance understanding of the social well-being domain, a dimension quality life, from perspective dying individuals.
As a society, we simply don't talk about this universal experience called dying and death; in fact, ignore it until have to face it. Thus, is often crisis when make decisions while are laden with uncertainty intense emotions. Sixty percent of people say making sure their family not burdened by tough extremely important, yet 56% them held conversation its context. Instead waiting end-of-life decisions, let us begin think what matters most living, value most, how translate these values into...
The COVID-19 pandemic brought a disruption to nurse education for both nursing faculty and students as all non-clinical courses worldwide moved distance or online learning. sudden shift meant the loss of traditional activities learn communication skills creating critical demand open educational resources faculty. Tools support development teaching are nearly non-existent pedagogical content knowledge is needed.The purpose this study was test two COMFORT Communication Modules (PPE...
Background: The importance of communication in close, personal relationships has been well-documented. At the end life, communication, social relationships, and spirituality seem to have greater importance. Some studies suggest that quality life at (QOLEOL) involves these components. Objective: primary aim this study was investigate communicative acts love, gratitude, forgiveness, explore extent which acts, well-being, spiritual well-being predict overall QOLEOL when controlling for physical...
Introduction: Forgiveness has begun to receive empirical attention in end-of-life contexts, but primarily among patients. This study examined forgiveness issues and communication priorities family members of hospice Methods: Surveys were distributed home-care patients a large not-for-profit the Great Lakes region United States. Family wrote what they would like say before died. They also rated importance several expressions (love, gratitude, giving seeking forgiveness, saying farewell)...
Nurses have opportunities to engage in goals of care conversations that can promote palliative communication. The purpose this study was describe nurses' experiences communication as summarized the literature and present a conceptual model pathways for nurses.
Anger toward God is a common form of spiritual struggle, one that people often experience when they see as responsible for severe harm or suffering. The aim this study was to assess the prevalence, correlates, and preferred coping strategies associated with anger among family members hospice patients.Teams from large in midwestern United States distributed surveys, per household, home-care patients. survey assessed feelings (anger/disappointment positive feelings), depressive symptoms,...
Optimal management of chronic medications for patients with life-limiting illness is uncertain. Medication deprescribing may improve outcomes in this population, but patient concerns regarding are unclear.The aim study was to quantify the perceived benefits and statin discontinuation among illness.Baseline data from a multicenter, pragmatic clinical trial were used.Cognitively intact participants life expectancy 1-12 months receiving primary or secondary prevention enrolled.Responses 9-item...
Family caregivers are an increasingly diverse group of individuals who provide significant amounts direct and indirect care for loved ones with long-term chronic illnesses. Caregiver needs vast, particularly as these relate to the caregiver's quality life. However, often unlikely address their personal health-related concerns. Unmet combined caregiving role lead high levels caregiver anxiety. Unaddressed, this anxiety is likely result in poor health low Nurses, along team, well positioned...
Purpose/Objectives: To explore the new and complex phenomenon of distance caregiving in advanced cancer population.
The care of pediatric patients with cancer and their families is complex rapidly evolving. Despite significant advances in outcomes, symptoms the disease complications therapy continue to cause suffering that may improve involvement palliative (PPC) services. This descriptive study responds observation great variability PPC utilization within oncology. Data collected from 156 health professionals (nurses, advanced practice professionals, physicians) a statewide hematology alliance evaluates...
People living with HIV (PLWH) who survive to older adulthood risk developing multiple chronic medical conditions. Health policymakers recognize the role of early palliative care and advance planning in improving health quality for at-risk populations, but misperceptions about care, hospice, are common. Before testing a program PLWH other conditions, we conducted focus groups elicit perceptions our target population. Overall, participants were unfamiliar term confused concepts and/or...
Fatigue is a subjective, unpleasant, potentially disabling symptom rooted in physiological, psychological, and behavioral causes. People living with human immunodeficiency virus (HIV) are population highly affected by fatigue because of risk factors associated HIV infection, treatment, psychosocial disease burden. longer facing the challenge trajectory. Palliative nurses expertise management can play crucial role helping people to engage health behaviors that prevent or mitigate fatigue. In...
Long-term survival of people living with HIV (PLWH) is associated the development co-morbid conditions and need for symptom management other efforts to enhance quality life. We conducted a longitudinal, randomized trial over 36 months evaluate effect community-based navigator intervention provide early palliative care 179 PLWH chronic conditions. Outcomes included life, management, coping ability, social support, self-management, completion advance directives. Data were analyzed using SAS...
People living with HIV (PLWH) experience an increase in chronic conditions aging, but little is known about experiences of multimorbidity HIV. Because early palliative care services may improve well-being for individuals multimorbidity, we planned to test intervention provide these community-dwelling PLWH other conditions. To tailor our the target population, conducted four focus groups (n = 22) that elicited health-related needs, experiences, and views regarding health services. We...
There is very little high-quality evidence to guide clinical practice in hospice care. In the areas of medical therapy, patient-centered and family-centered outcomes, patient safety, there are numerous high-impact questions for which answers needed. Although randomized controlled trials gold standard research, such difficult, time consuming, expensive conduct a population. Moreover, they cannot examine implementation therapies real-world settings. Therefore, need novel, complementary...