Jaci C. Huws

ORCID: 0000-0002-2339-9689
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About
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Research Areas
  • Family and Disability Support Research
  • Autism Spectrum Disorder Research
  • Virology and Viral Diseases
  • Grief, Bereavement, and Mental Health
  • Immune responses and vaccinations
  • Family Support in Illness
  • COVID-19 Digital Contact Tracing
  • Child and Adolescent Psychosocial and Emotional Development
  • Disability Rights and Representation
  • Infant Development and Preterm Care
  • Obsessive-Compulsive Spectrum Disorders
  • Pediatric health and respiratory diseases
  • Child Development and Digital Technology
  • Mindfulness and Compassion Interventions
  • Psychotherapy Techniques and Applications
  • Behavioral and Psychological Studies
  • Complementary and Alternative Medicine Studies
  • Clostridium difficile and Clostridium perfringens research
  • COVID-19 and Mental Health
  • Antibiotic Use and Resistance
  • Mental Health and Psychiatry
  • Down syndrome and intellectual disability research
  • Intergenerational Family Dynamics and Caregiving
  • Health Policy Implementation Science
  • Technology Use by Older Adults

Bangor University
2012-2021

Five first-hand web page accounts of unusual sensory perceptual experiences written by persons who claimed to have high-functioning autism were selected for qualitative analysis. Four core categories emerged: turbulent experiences, coping mechanisms, enjoyable and awareness being different, suggesting that people with experience both distress enjoyment from their experiences. The use specific mechanisms enabled the person deal or difficulties experienced helped derive some experience. Some...

10.1080/1366825031000147058 article EN Journal of Intellectual & Developmental Disability 2003-06-01

Background Although there is extensive research examining parental experiences of assessment and diagnosis autism, a paucity from the perspective individuals with autism.Method Semi‐structured interviews were conducted nine young people high functioning autism who capable providing verbal account their perceptions experiences. Data analysed using interpretative phenomenological analysis.Results Diagnosis, disclosure embedded in respondents' "having" autism. This superordinate theme included...

10.1080/13668250802010394 article EN Journal of Intellectual & Developmental Disability 2008-06-01

Abstract Internet-based first-hand accounts of five people who describe themselves as 'high functioning autistic' were analysed using a thematic analytic approach. Four central themes identified. These sense alienation, frustration, depression emotion, and pervasive fear or apprehension. The findings not only imply that emotional issues are important relevant to with autism, but there is an implication the predominant experienced emotions unpleasant ones. This in contrast much literature on...

10.1080/09687590120045950 article EN Disability & Society 2001-05-01

Parents of children with autism have difficulties obtaining adequate information and support to guide them in the care their children. However, growth communication technologies such as email has created greater opportunities for accessing resources. This article presents a grounded theory analysis messages sent an group by parents autism. The core category emerging from indicates that functioned making sense comprises four categories: searching meaning; adjusting changes; providing...

10.1177/135910530100600509 article EN Journal of Health Psychology 2001-09-01

Accessible summary This study examines how autism is portrayed in newspapers the United Kingdom. The findings indicate that many of stories about are not based on interviews with individuals autism. Newspaper accounts tend to focus children autism, rather than adults. Summary Past research indicates newspaper representations developmental disability reinforce negative stereotypes. aim this was examine depictions British newspapers. A qualitative content and discourse analysis conducted over...

10.1111/j.1468-3156.2010.00624.x article EN British Journal of Learning Disabilities 2010-06-02

The prevalence of autism spectrum disorders is believed to be higher than that other conditions, such as Down syndrome or diabetes, yet few studies have explored the ideas lay people about autism. Semi‐structured interviews were used explore how 10 with no knowledge experience conceptualised Interpretative phenomenological analysis and discourse illuminated four discourses: (1) transgressing normative expectancies; (2) dependency functional ability discourse; (3) mental status; (4)...

10.1080/09687591003701231 article EN Disability & Society 2010-04-28

The present qualitative study comprised interviews with nine young people autism (aged 16-21 years) about their perceptions of autism. Using interpretative phenomenological analysis, three underlying themes were illuminated, and all these formed the superordinate theme Making Comparisons: (a) Changes over time: 'I'm really glad this is developmental'; (b) Degrees autism: 'They've got it bad'; (c) ability: not disabled-disabled'. Such comparisons explicitly sought at outset study, instead...

10.1177/1362361313512426 article EN Autism 2013-12-11

Abstract There is a paucity of research that explores the use touch within psychotherapy from therapists' perspectives. This qualitative study explored clinical psychologists' accounts offering or excluding therapeutic practice. Semi-structured interviews were conducted with six psychologists working adult mental health services. The interview transcripts analysed using interpretative phenomenological analysis (IPA). Five superordinate themes emerged data: (1) instinct; (2) and professional...

10.1080/09515070.2012.671595 article EN Counselling Psychology Quarterly 2012-05-28

Background Individuals with intellectual disability are at higher risk of premature death compared individuals without disability, and therefore parents people more likely to outlive their children. However, there has been relatively little research investigating the bereavement experiences deceased children disability. Method Semi‐structured interviews were used explore nine mothers whose child had died. The transcripts analysed qualitatively using Interpretative Phenomenological Analysis....

10.1111/j.1468-3148.2008.00427.x article EN Journal of Applied Research in Intellectual Disabilities 2008-04-01

Objectives: The objective of this study was to gain an insight into how people with autism spectrum disorder (ASD) view the concept and they society's reactions diagnosis.Methods: Nine students attending a specialist college for individuals ASD were interviewed about their views on nature autism. Once initial qualitative analysis had been completed, sent person that person's secondary also included in present paper.Results: results suggested awareness complexity interpersonal relationships,...

10.1179/2047387712y.0000000007 article EN International Journal of Developmental Disabilities 2013-07-01

Acceptance of pain has been found to play an important role in adjusting chronic pain, and the evidence-base is growing with regards effectiveness acceptance-based interventions such as acceptance commitment therapy, mindfulness contextual cognitive behavioural therapy within management settings. Despite interest interventions, previous studies into programmes (PMPs) are quantitative exact processes at work during remain unknown. This study aims add research area by qualitatively exploring...

10.1080/08870446.2013.845667 article EN Psychology and Health 2013-09-18

Background The perceptions of individuals with Down syndrome are conspicuously absent in discussions about the use prenatal testing. Method Eight were interviewed their views and experience topic Results Interpretative phenomenological analysis revealed two major themes subthemes: (1) a devalued condition valued life (2) question ‘want?’ Foucauldian discourse highlighted main discursive practices: (i) social deviance (ii) tragedy catastrophe birth baby syndrome. Conclusions findings suggest...

10.1111/jar.12256 article EN Journal of Applied Research in Intellectual Disabilities 2016-05-11

Purpose – The purpose of this paper is to understand the experiences acquired brain injury (ABI) family caregivers who attended an acceptance based group intervention. Design/methodology/approach A qualitative design and interpretative phenomenological analysis methodology were used. Findings Five key themes identified: increasing personal awareness; dialectic emotional vs avoidance; integration commitment therapy (ACT) principles; peer support; moving forward after group. It seemed that...

10.1108/scn-02-2013-0005 article EN Social Care and Neurodisability 2014-01-25

This study explored the experience of young adults having a parent with young-onset dementia. In-depth interviews were undertaken five participants aged between 23 and 36 years age these analysed using interpretative phenomenological analysis. Participants found to number stresses in relation their parent's illness, many which linked loss guilt. Five main themes identified related relationship changes, shifts roles responsibilities, support for non-affected parent, self impact living own...

10.1177/1471301217702977 article EN Dementia 2017-09-05

Accessible summary Sleep hygiene education (SHE) is a “behavioural” intervention which helps parents create the best sleeping conditions for their child. It often used to improve sleep problems that children with developmental disabilities have. SHE includes advice around creating bedtime routines, calming bedroom environment and eating healthily. Lots of health social care professionals use SHE, but there are not many research papers show way support try out advice. This tells story nine...

10.1111/bld.12270 article EN British Journal of Learning Disabilities 2019-05-16

Abstract Individuals with Down syndrome are at increased risk of congenital heart conditions (CHCs), and mortality is higher in people a CHC than those without (J. C. Vis et al., 2009). As consequence, parents children more likely to outlive their child. In this research, semistructured interviews were used explore the experiences 6 couples whose child had died. The analyzed qualitatively using interpretative phenomenological analysis (IPA), 4 themes emerged: dilemmas associated dual...

10.1352/1934-9556-48.6.403 article EN Intellectual and developmental disabilities 2010-12-01

Little evidence exists to show the exact impact of link nurse role in promoting best practice infection prevention. This paper is a report implementation and evaluation programme for community hospitals across one NHS organisation.The main aim study was implement evaluate an prevention programme. The objectives were: 1) develop materials bespoke which incorporated education, behaviour change, reward recognition 2) programme, learn about barriers enablers implementation.Data were collected...

10.1177/1757177418789480 article EN Journal of Infection Prevention 2018-10-04

Therapist self-disclosure of sexuality can be therapeutically beneficial when both therapist and client identify as gay. This study attempted to explore the views experiences gay male clinical psychologists disclosing their clients. Five were interviewed, subsequent transcriptions analysed using Interpretative Phenomenological Analysis (IPA). Six main themes emerged from data: Being in a straight world; Disclosure therapeutic agenda; Contexts disclosure; Other ways knowing; sexuality: big...

10.53841/bpssex.2010.1.1.59 article EN Psychology of Sexualities Review 2010-01-01

This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working children and adolescents. The findings suggest that a lack clear empirical understanding leads to 'working uncertainty', whereby utilise previous experiences make sense the condition inform their clinical practice. How may influence labels given young people interventions they receive. provide insight into...

10.1177/1359105315583367 article EN Journal of Health Psychology 2015-05-09

This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve problems children with developmental disabilities. In co-design workshops, eight parents and six practitioners deliberated themes developed from findings of earlier exploratory stakeholder perceptions SHE. A SHE tool underpinned by was evidenced mid-range theories change. Analytical were explain complexities successful intervention: need...

10.1177/1744629518818950 article EN Journal of Intellectual Disabilities 2019-01-17

Abstract Background Health professionals were trained to deliver adapted psychological interventions for depression people with learning disabilities and alongside a supporter. Exploring the delivery of can help increase access therapy. Method Twenty‐seven participants took part in six focus groups, data subject Framework Analysis. Results The structure manualised therapies, use specific techniques perceived as key service‐user engagement. Supporters' involvement was valued by therapists if...

10.1111/jar.12886 article EN cc-by Journal of Applied Research in Intellectual Disabilities 2021-04-07
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