Skin conditions carry a substantial psychological burden but support for patients is limited. Digital technology could patient self-management; we found preliminary evidence the effectiveness and acceptability of digital interventions adults living with skin conditions. We have, therefore, developed complex intervention called MiDerm patients. This qualitative study explored prospective delivered via smartphone application (app), possible barriers facilitators to use.

Abstract Background The Global Research on the Impact of Dermatological Diseases (GRIDD) project is developing new Patient‐Reported (PRIDD) measure. PRIDD measures impact dermatological conditions patient's life. Objectives This study aimed to seek consensus from patients which items prioritize for inclusion in PRIDD. Methods A modified, two‐round Delphi was conducted. Adults (≥18 years) with were recruited. survey consisted a demographic's questionnaire and 263 potential six languages....

Fatigue is prevalent amongst people with long COVID, but poorly understood. The sensory attenuation framework proposes that impairments in processing lead to heightened perception of effort, driving fatigue. This study aims investigate the role somatosensory COVID fatigue and quantify how relates other prominent symptoms including autonomic dysfunction, mood illness beliefs experience We will recruit 44 individuals neither nor (controls). Our primary objective compare baseline between...

The Global Research on the Impact of Dermatological Diseases (GRIDD) project is developing a patient-reported measure impact dermatological disease patient's life called Patient Reported (PRIDD). We developed list 263 potential items through global qualitative interview study with 68 patients. next conducted Delphi to seek consensus which these prioritize for inclusion in PRIDD. This aims explore patterns demographic (e.g. country) and clinical variables group) across impacts ranked as most...

Abstract Background Existing dermatology-specific Patient-Reported Outcome Measures (PROMs) do not fully capture the substantial physical, psychological and social impact of dermatological conditions on patients’ lives are recommended for use according to COSMIN criteria. Most were developed with insufficient patient involvement relied classical psychometric methods. We developing new Impact Dermatological Diseases (PRIDD) measure in research clinical practice partnership patients....

Purpose: Psychological distress is reasonably well documented in people with facial disfigurement; however, patients following eye removal surgery this has not been studied adequately. We hypothesised that lower levels would be associated age and more adaptive coping strategies women likely to report higher of and, therefore, use maladaptive strategies.Methods: This exploratory, cross-sectional study measured a sample 56 post enucleation or evisceration patients. The Hospital Anxiety...

Existing patient-reported outcome measures cannot comprehensively capture the full impact of living with a dermatological condition. The aim this study was to develop conceptual framework on which build new Patient-Reported Impact Dermatological Diseases (PRIDD) measure. Adults (≥ 18 years age) condition, worldwide and/or representatives from patient organization recruited via global network, were invited an individual or group interview. Data analyzed thematically. Sixty-five people 29...

The Global Research on the Impact of Dermatological Diseases (GRIDD) team is developing new Patient-Reported (PRIDD) measure impact dermatological conditions patient's life, in partnership with patients. To develop PRIDD, we conducted a systematic review, followed by qualitative interview study 68 patients worldwide and subsequently global Delphi survey 1,154 to ensure PRIDD items were meaningful important patients.To pilot test conditions, focusing its content validity (comprehensiveness,...

Abstract Background Patient-reported outcome measures (PROMs) are crucial in assessing the impact of dermatological conditions on people’s lives, but existing dermatology-specific PROMs not recommended for use, according to COSMIN. We developed Patient-Reported Impact Dermatological Diseases (PRIDD) measure partnership with patients. It has strong evidence content validity, structural internal consistency, acceptability and feasibility. Objectives To test remaining measurement properties...

Skin conditions carry a significant physical, psychological, and social burden. People with skin often engage in health-threatening behaviours that can worsen symptoms increase cardiovascular disease risk. However, access to dedicated psychological behaviour-change support is limited. The impact, management, existing available adults living was qualitatively explored inform the development of psychologically supportive digital intervention. Qualitative research involving hybrid inductive-...

The Psoriasis and Well-being (PsoWell)™ training programme, incorporating motivational interviewing, improves clinicians' knowledge skills to manage complex psoriasis, including behaviour change. aims of this study were deliver the PsoWell™ programme dermatology specialists, evaluate acceptability feasibility implementing model across services. Framework analysis 19 qualitative semi-structured interviews was performed, following delivery nine, 1-day days involving 119 participants. Two...

Evidence suggests that people with facial palsy may experience higher levels of distress, but the reasons for this are yet to be explored. This study aimed explore people's illness beliefs, emotions, and behaviours in relation their understand how distress is experienced by group. Semi-structured individual interviews were conducted UK adults palsy. Interview questions theoretically informed Common-Sense Self-Regulatory Model (CS-SRM). Thematic Analysis was following a combined inductive...

Patient feedback plays a vital role in healthcare, offering insights into the quality of care and promoting professional development. Despite emphasis on collection from regulatory bodies, institutional policies appear to focus processing complaints negative over positive feedback. The aim this study is investigate processes relevant systematic logging patient dental hospitals across UK Republic Ireland. A cross-sectional survey was conducted with prior local serving as pilot. Of 22 ADH, 13...

Abstract Background There is currently a lack of qualitative research exploring how cognitive and emotional reactions to the threat SARS-CoV-2 affected health behaviours people living with without pre-existing mental physical conditions. We aimed investigate influenced thoughts, feelings conditions in UK. Methods A cross-sectional online survey UK adults (aged 18 over). Free-text responses were analysed using framework approach guided by Common-Sense Model Self-Regulation. Results Of 9110...