Sarah Masefield
A5005959841- Asthma and respiratory diseases
- Chronic Obstructive Pulmonary Disease (COPD) Research
- Global Maternal and Child Health
- Tracheal and airway disorders
- Healthcare Systems and Reforms
- Family and Disability Support Research
- Infant Development and Preterm Care
- Respiratory and Cough-Related Research
- Cystic Fibrosis Research Advances
- Respiratory Support and Mechanisms
- Mental Health and Patient Involvement
- Child and Adolescent Health
- Neonatal Respiratory Health Research
- Delphi Technique in Research
- Pediatric health and respiratory diseases
- Maternal Mental Health During Pregnancy and Postpartum
- Healthcare Policy and Management
- Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis
- IL-33, ST2, and ILC Pathways
- Chronic Disease Management Strategies
- Breastfeeding Practices and Influences
- Global Public Health Policies and Epidemiology
- Smoking Behavior and Cessation
- Attachment and Relationship Dynamics
- Inhalation and Respiratory Drug Delivery
University of York
2020-2024
Bradford Teaching Hospitals NHS Foundation Trust
2023
Karolinska Institutet
2020-2023
Karolinska University Hospital
2023
University of Manchester
2021
Manchester University
2021
Wythenshawe Hospital
2021
British Lung Foundation
2013-2019
University of Amsterdam
2019
NIHR Southampton Biomedical Research Centre
2019
Section:ChooseTop of pageAbstract <<ContentsOverviewIntroductionMethodsBackground: PRIncreasing Awareness and ...Increasing Patient Access...Ensuring Quality PR Pr...Future Research To Advanc...ReferencesCITING ARTICLES
Bronchiectasis is a disease of renewed interest in light an increase prevalence and increasing burden on international healthcare systems. There are no licensed therapies, large gaps knowledge terms epidemiology, pathophysiology therapy. The European Multicentre Audit Research Collaboration (EMBARC) Respiratory Society (ERS) Clinical Collaboration, funded by ERS to promote high-quality research bronchiectasis. objective this consensus statement was define priorities From 2014 2015, EMBARC...
Bronchiectasis is one of the most neglected diseases in respiratory medicine. There are no approved therapies and few large-scale, representative epidemiological studies. The EMBARC (European Multicentre Audit Research Collaboration) registry a prospective, pan-European observational study patients with bronchiectasis. inclusion criterion primary clinical diagnosis bronchiectasis consisting of: 1) history consistent bronchiectasis; 2) computed tomography demonstrating Core exclusion criteria...
Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by progressive sino-pulmonary disease, with symptoms starting soon after birth. A European Respiratory Society (ERS) Task Force aims to address disparities in diagnostics across Europe providing evidence-based clinical practice guidelines. We aimed identify challenges faced patients when referred for PCD diagnostic testing. patient survey was developed representatives and healthcare specialists capture experience....
Rationale: New approaches are needed to guide personalized treatment of asthma.Objectives: To test if urinary eicosanoid metabolites can direct asthma phenotyping.Methods: Urinary prostaglandins (PGs), cysteinyl leukotrienes (CysLTs), and isoprostanes were quantified in the U-BIOPRED (Unbiased Biomarkers for Prediction Respiratory Diseases Outcomes) study including 86 adults with mild-to-moderate (MMA), 411 severe (SA), 100 healthy control participants. Validation was performed internally...
Abstract Background All countries face challenging decisions about healthcare coverage. Malawi has committed to achieving Universal Health Coverage (UHC) by 2030, the timeframe set out Sustainable Development Goals (SDGs). As in other low income countries, scarce resources stand way of more equitable health access and quality Malawi. Its sector is highly dependent on donor contributions, recent poor governance government-funded saw donors withdraw funding, limiting services resources. The...
Home mechanical ventilation is increasingly used by people with chronic respiratory failure. However, there are few reports on attitudes towards treatment. A web-based survey in eight languages was disseminated across 11 European countries to evaluate the perception of home provision ventilator-assisted individuals and caregivers. Out 787 responders from countries, 687 were patients 100 95% 94% caregivers only 4 (Germany, Netherlands, Italy, Spain). The majority respondents male aged 46–65...
Inclusive engagement in healthcare policies and decision-making is essential to address the needs of patients communities, reduce health inequities increase accountability government. In low income countries such as Malawi, with significant challenges, stakeholder inclusion particularly important improve performance service delivery. The 2017 National Health Plan II (NHP II) accompanying Sector Strategic (HSSP aimed functioning system. Ministry for Malawi intended involve all key sector...
<b>Pulmonary rehabilitation benefits people with chronic respiratory diseases, yet few eligible patients enrol. People lung diseases are often unaware of or lack access to PR. This is an important healthcare disparity that should be addressed.</b>http://ow.ly/2HER30mxLLj
This study aimed to gain insight into the impact of lung conditions on smoking behaviour and cessation, identify recommendations for cessation professional-patient communications. The was led by European Lung Foundation in collaboration with Respiratory Society Task Force “Statement COPD other pulmonary diseases smokers comorbidities who find it difficult quit”. A web-based observational cross-sectional questionnaire developed from a patient-centered literature review. Topics covered were:...
This paper explores commonalities in the experience and unmet needs of idiopathic pulmonary fibrosis (IPF) patients carers Europe throughout care pathway, focusing specifically on communication carers. Four patient organisations/groups held focus groups (Italy (seven four carers); Belgium (six patients); Ireland (23 10 England, UK (five three carers)). A group schedule was provided translated into language each by European Lung Foundation (ELF). Content analysis conducted ELF verified...
Perinatal mental health (PMH) difficulties affect approximately one in five birthing women. If not identified and managed appropriately, these PMH can carry impacts across generations, affecting relationship outcomes. There are known inequalities identification management the healthcare pathway. Whilst barriers facilitators have been there is a lack of clarity about how relate to avoidable unfair experienced by various groups Further research required understand address PMH.To key factors...
Patients with severe asthma are dependent upon treatment high doses of inhaled corticosteroids (ICS) and often also oral (OCS). The extent endogenous androgenic anabolic steroid (EAAS) suppression in has not previously been described detail. objective the present study was to measure urinary concentrations EAAS relation exogenous corticosteroid exposure.Urine collected at baseline U-BIOPRED (Unbiased Biomarkers for Prediction Respiratory Disease outcomes) adult asthmatics (SA, n=408)...
Abstract We explored the association between caregiving for preschool children with developmental disabilities and maternal health healthcare use using linked primary care Born in Bradford birth cohort data. Adjusting prenatal health, socioeconomic status, mothers who were caregivers more likely than other to have symptoms of psychological distress (odds ratio 1.24; 95% CI 1.01, 1.53), exhaustion (1.42; 1.12, 1.80) possibly head musculoskeletal pain (1.18; 0.97, 1.43). Despite higher...
Lymphangioleiomyomatosis (LAM) is a rare lung disease that almost exclusively affects women and develops in about one 400 000 adult females. The European Lung Foundation worked closely with of the patient organisations within its network, LAM Federation, to raise awareness at 2014 Respiratory Society International Congress Munich, Germany. In addition, an invitation-only workshop 45 individuals from 13 countries was held discuss priorities for Europe living disease. need ongoing...