A5071982673- Autism Spectrum Disorder Research
- Family and Disability Support Research
- Patient Dignity and Privacy
- Cystic Fibrosis Research Advances
- Genetic and Kidney Cyst Diseases
- Prenatal Screening and Diagnostics
- Mental Health and Psychiatry
- Ethics and Legal Issues in Pediatric Healthcare
- Ethics in medical practice
- Child Nutrition and Feeding Issues
- Child Development and Digital Technology
- Obsessive-Compulsive Spectrum Disorders
- Cultural Differences and Values
- Urban Green Space and Health
- Adolescent and Pediatric Healthcare
- Neuroscience, Education and Cognitive Function
- Noise Effects and Management
- Children's Rights and Participation
- Child and Adolescent Psychosocial and Emotional Development
- Urban Agriculture and Sustainability
- Child and Animal Learning Development
KU Leuven
2018-2024
University of Antwerp
2020-2024
Ghent University
2023
Sorbonne Université
2017
Hôpital Armand-Trousseau
2017
Assistance Publique – Hôpitaux de Paris
2017
The relationships between neurodivergent and disabled communities, healthcare practices, are marked by ambivalence. While there is a history of harmful discriminatory the clinical encounter also holds beneficial empowering potential for people. To address this ambivalence, paper's central question whether how bioethical decision-making in settings can become more informed critical insights from neurodiversity disability studies. debate Western countries on early interventions young autistic...
The neurodiversity movement has introduced a new era for autism research. Yet, the paradigm and clinic remain largely unconnected. With present work, we aim to contribute filling this lacuna by putting forward phenomenology as foundation developing neurodiversity-affirming clinical interventions autism. In first part of paper, highlight that autistic people face severe mental health crisis. We argue approaches focused on reducing 'symptoms' are unlikely solve problem, is positively...
Autism is increasingly viewed as an expression of neurodiversity deserving accommodation, rather than merely a disorder in need remediation or even prevention. This reconceptualization has inspired calls to broaden the ethical debate on early autism care beyond matters efficient screenings and effective interventions. We conducted 14 in-depth interviews with 26 parents infants at increased likelihood for (siblings, preterms children persistent feeding difficulties) understand which benefits...
In clinical practice and research, we often explain what autism is by using several definite seemingly neutral sentences. However, can know in a truly objective sense? Is it moreover justified to put forward persistently the medical-clinical perspective as an explanation? To answer these questions, first look at interdisciplinary field of Disability Studies, paying special attention concept neurodiversity. Drawing on that its insights, do not only unravel multiple meanings autism, but also...
DiGeSt 9(1) General Issue - What are you reading?
IntroductionPsycho-education is a practice often used in autism care, bridging between diagnosis and clinical counselling. In literature, there shift towards defining terms of deficit to neurodiversity. Literature increasingly indicates that this neurodiversity conceptualisation may lead more positive identity less internalised stigma. After providing key elements from both psycho-educational we investigated what extent neurodiversity-affirmative psycho-education has already occurred the...
Abstract Autism is increasingly viewed as an expression of neurodiversity deserving accommodation, rather than merely a disorder in need remediation or even prevention. This reconceptualization has inspired calls to broaden the ethical debate on early autism care beyond matters efficient screenings and effective interventions. We conducted 14 in-depth interviews with 26 parents infants at increased likelihood for (siblings, preterms children persistent feeding difficulties) understand which...
Primary ciliary dyskinesia (PCD) is a rare autosomal-recessive disorder characterized by abnormal motile function. Because cilia and sperm flagella share common axonemal structures, male individuals are supposed to be infertile female may have hypofertility. We hypothesize that correlation exist between the risk of hypofertility genotype in PCD. retrospectively recorded fertility status adult patients with definite PCD diagnosis, based on ultrastructural phenotype an established...
The relationships between neurodivergent and disabled communities, healthcare practices are marked by ambivalence. While there is a history of harmful discriminatory practices, the clinical encounter also holds beneficial empowering potential for people. To address this ambivalence, paper’s central question whether how bioethical decision-making in settings can become more informed critical insights from neurodiversity disability studies. debate Western countries on early interventions young...