Dorthe Susanne Nielsen

ORCID: 0000-0002-3954-7551
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About
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Research Areas
  • Education, Healthcare and Sociology Research
  • Palliative Care and End-of-Life Issues
  • Interpreting and Communication in Healthcare
  • Geriatric Care and Nursing Homes
  • Migration, Health and Trauma
  • Cultural Competency in Health Care
  • Research in Social Sciences
  • Intergenerational Family Dynamics and Caregiving
  • Family and Patient Care in Intensive Care Units
  • Pharmaceutical Practices and Patient Outcomes
  • Health Systems, Economic Evaluations, Quality of Life
  • Interprofessional Education and Collaboration
  • Social and Educational Sciences
  • Dementia and Cognitive Impairment Research
  • Family Support in Illness
  • Chronic Disease Management Strategies
  • Global Health Workforce Issues
  • Patient-Provider Communication in Healthcare
  • Health, psychology, and well-being
  • Grief, Bereavement, and Mental Health
  • Cerebral Palsy and Movement Disorders
  • Bone health and osteoporosis research
  • Empathy and Medical Education
  • Health and Well-being Studies
  • Hepatitis C virus research

Odense University Hospital
2016-2025

University of Southern Denmark
2016-2025

Copenhagen University Hospital
2000-2022

University College Lillebaelt
2016-2022

Family Healthcare
2019-2021

Kongsberg Innovasjon (Norway)
2021

Office of Infectious Diseases
2012-2017

NTNU Samfunnsforskning
2016

VIA University College
2015

Hvidovre Hospital
2012

Summary Background Studies of children with food allergy typically only include the mother and have not investigated relationship between amount allergen needed to elicit a clinical reaction (threshold) health‐related quality life ( HRQL ). Our aims were (i) compare self‐reported parent‐reported in different age groups, (ii) evaluate impact severity allergic threshold on , (iii) investigate factors associated patient‐reported . Methods Age‐appropriate Food Allergy Quality Life Questionnaires...

10.1111/cea.12849 article EN Clinical & Experimental Allergy 2016-11-05

To investigate attitudes towards family involvement in care among a broad sample of Danish nurses from all sectors and healthcare settings.Evidence suggests that hold both supportive less about members the patients, existing findings are limited to specific contexts.A cross-sectional study adhering Strengthening Reporting Observational Studies Epidemiology for reporting observational studies.Using snowball sampling, Families' Importance Nursing Care-Nurses' Attitudes questionnaire was...

10.1111/jocn.15196 article EN Journal of Clinical Nursing 2020-01-23

Objectives To explore barriers in access to dementia care Turkish, Pakistani and Arabic speaking minority ethnic groups Denmark.Method Semi-structured qualitative individual- group interviews with family carers, primary coordinators, staff elderly daycare, multicultural link workers. Hermeneutic phenomenology was used as theoretical framework.Results A total of 21 6 were conducted, including a 35 participants. On the service user side, related lacking language proficiency strong cultural...

10.1080/13607863.2020.1787336 article EN cc-by-nc-nd Aging & Mental Health 2020-07-03

Purpose When serious illness occurs, effective communication is essential but challenged by language barriers. This study explores how patients with limited Danish proficiency and their families experience barriers during cancer care in two public hospitals.

10.1080/17482631.2024.2448127 article EN cc-by-nc International Journal of Qualitative Studies on Health and Well-Being 2025-01-13

Objectives: Ethical considerations are central to deciding on resuscitation in a prehospital setting. A systematic study of ethical views can enlighten the area and potentially reveal variations decision-making. We aimed explore their impact reasoning healthcare professionals using qualitative approach structured questionnaire. This describes validation questionnaire designed its professionals. Methods: observational cross-sectional used mixed-methods approach. The included free-text fields...

10.3390/healthcare13030267 article EN Healthcare 2025-01-30

ABSTRACT Aim To explore how youth understand and manage risk associated with food allergy in everyday life, aiming to inform future advanced nursing care initiatives. Design Qualitative study based on critical psychological practice research. Methods Data was generated through participant observation informal interviews during a 2‐day camp aged 18–23years ( n = 10), diagnosed childhood. analysis used thematic informed by psychology theoretical framework. Findings Risk is an integrated aspect...

10.1111/jan.16858 article EN cc-by-nc-nd Journal of Advanced Nursing 2025-03-03

The aim of this study was to gain in-depth knowledge and an increased understanding on how isolation from close relatives carers, during the COVID-19 pandemic, impacted older patients hospitalisation in a Geriatric department.We conducted qualitative using semi-structured interviews phenomenological-hermeneutic approach, get participants' perspectives lived experiences. Complete were available for 11 patients-six men five women, between 69 91 years age.The narratives identified several...

10.1111/opn.12362 article EN International Journal of Older People Nursing 2021-01-02

Abstract Introduction An increased risk of sexual health problems is seen among patients with chronic illnesses. The background likely to be multifactorial, but it remains poorly understood. Aim To investigate the and functioning rheumatoid arthritis (RA) examine gender differences, general population comparisons, possible somatic, psychological, disease-specific determinants. Methods A cross-sectional study using a digital questionnaire distributed 380 diagnosed RA in Danish university...

10.1016/j.esxm.2020.07.004 article EN cc-by-nc-nd Sexual Medicine 2020-09-08

Abstract Background Individuals with mental health disorders have a higher risk of sexual problems impacting intimate relations and quality life. For individuals bipolar disorder (BD) the mood shifts might to particular degree affect their function possible hypersexual interest during manic episodes low depressive episodes. The diagnosis is often given in late adolescence, which may impact identity development. Only few studies looked at BD life, no qualitative research on topic. We...

10.1186/s40345-023-00285-9 article EN cc-by International Journal of Bipolar Disorders 2023-02-03

The aim of this qualitative study was to increase understanding the importance osteoporosis information and knowledge for patients’ ways handling in their everyday lives. Interviews were performed with 14 patients recruited from two English university hospitals 12 a Danish hospital. Critical psychology used as theoretical framework data analysis, which aimed at shedding light on conducting life osteoporosis. themes that emerged analysis showed conditions influenced way risk, pain handled....

10.1111/j.1471-6712.2012.01055.x article EN Scandinavian Journal of Caring Sciences 2012-08-27

To explore and better understand the impact that peanut allergy can have on family experiences in everyday life through interviews with individual members.Peanut affects adolescents' quality of need to avoid eating peanut-containing food risk anaphylaxis. Adolescence is a period increasing separation from parents has highest fatalities.A qualitative interview study taking phenomenological-hermeneutical approach.Data were generated semi-structured adolescent allergy, both sibling. Five...

10.1111/jocn.13696 article EN Journal of Clinical Nursing 2016-12-21

Background People from minority ethnic groups are under-represented in dementia diagnosis, treatment, and care. The aim of this study was to examine barriers accessing post-diagnostic care support communities the perspective primary coordinators Denmark. Method A survey questionnaire investigating issues related provision services conducted among 41 representing all Danish geographic regions. Responses were primarily based on five-point Likert scales. Results regions with different rates...

10.1177/1471301219853945 article EN cc-by-nc Dementia 2019-06-05

Purpose: To explore and describe the experience of people having young-onset dementia.Methods: This was a qualitative study that used semi-structured interviews to collect data from nine persons with dementia (aged 47–65; five men four women). Data were collected in spring 2018. All conducted at participants' choice their own homes by one interviewer. The analysed using six-stage process reflexive thematic analysis model.Results: revealed three themes: Dementia causing loss control over...

10.1080/17482631.2020.1734277 article EN cc-by International Journal of Qualitative Studies on Health and Well-Being 2020-01-01

Background Although minority ethnic families have a lower uptake of dementia care services, little research has explored how carers cope with and manage in their everyday lives. The aim this study was to investigate organization family Turkish, Pakistani, Arabic speaking from the perspective carers, primary coordinators, multicultural link workers Denmark. Methods Semi-structured qualitative individual group interviews workers. Hermeneutic phenomenology used as theoretical framework results...

10.1177/1471301220914751 article EN cc-by-nc Dementia 2020-03-24
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