A5059704145- Family and Disability Support Research
- Dutch Social and Cultural Studies
- Autism Spectrum Disorder Research
- Down syndrome and intellectual disability research
- Assistive Technology in Communication and Mobility
- Education in Diverse Contexts
- Disability Education and Employment
- Behavioral and Psychological Studies
- Educational and Psychological Assessments
- Healthcare innovation and challenges
- Family Support in Illness
- Infant Development and Preterm Care
- Hearing Impairment and Communication
- Cerebral Palsy and Movement Disorders
- Educational Practices and Policies
- Child and Adolescent Psychosocial and Emotional Development
- Chronic Disease Management Strategies
- Language Development and Disorders
- Child and Adolescent Health
- Genetics and Neurodevelopmental Disorders
- Congenital Heart Disease Studies
- Evaluation and Performance Assessment
- Stuttering Research and Treatment
- Collaborative Teaching and Inclusion
- Health Policy Implementation Science
KU Leuven
2016-2025
Google (United States)
2015-2020
Columbia University
2017
University of Wisconsin–Madison
2017
Ghent University
2013
UCLouvain
2013
Catholic University of America
2012
Parenting Research Centre
2012
Centre Hospitalier Universitaire de Reims
2004
Université de Reims Champagne-Ardenne
2004
Background This study considered the general validity of basic domains quality life that appear in theoretical models, relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these for They investigated effect setting age disabilities on this operationalization. Methods A number ( n = 76) were interviewed. Transcripts analysed depth. Results showed five as described within model Felce & Perry [Research...
In several subdomains of the social, behavioral, health, and human sciences, research questions are increasingly answered through mixed methods studies, combining qualitative quantitative evidence elements. Accordingly, importance including those primary articles in systematic reviews grows. It is generally known that critical appraisal an essential step development a methodologically sound review. This article provides overview available frameworks developed to evaluate articles. addition,...
Abstract Background Within the context of Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss methodological problems challenges they are confronted with. The aim current article was to give an overview these challenges. Methods centred six topics. These reflect main components a study's design: (a) participant demarcation, (b) recruitment, (c) data collection instruments, (d) analysis, (e) ethics/including...
In this exploratory study, the neuropsychological and learning profile of nine primary school age children with velo-cardio-facial syndrome (VCFS) was studied by systematic testing. five out children, following found: a VIQ-PIQ discrepancy (in favor VIQ), significantly better scores (.05 level) for reading (decoding) spelling compared to arithmetic, deficient tactile-perceptual skills (difficulties mainly on left side body), weak but not visual-perceptual abilities, visual-spatial skills,...
During the last decade, there has been a growing interest in outpatient support services for persons with intellectual disability (ID) and psychiatric and/or behavioural problems their families. In this study, we explore family burden that is associated children or adults ID living at home.The research group consisted of 66 clients Casa, project treatment. Their average age 18.97 years IQ 55.37. The Reiss Screen Maladaptive Behaviour (adults) Scales Children's Dual Diagnosis (children)...
This study tested whether children's more anxious and avoidant attachment is linked to decreased support‐seeking behavior toward their mother during stress in middle childhood, enhances the impact of experiencing life events on increase depressive symptoms 18 months later. Ninety‐eight 8‐ 12‐year‐old children filled out questionnaires assessing level symptoms. Children's was observed through measuring time waited before calling for mother's help while carrying a stressful task. Results...
Mixed methods single case research (MMSCR) is in which experimental and qualitative study methodologies, their accompanying sets of techniques, are integrated to answer questions that concern a case. This article discusses the historical roots distinct nature MMSCR, kinds knowledge MMSCR produces, its philosophical underpinnings, examples trustworthiness validity MMSCR. Methodological challenges relate development critical appraisal tool for team work involved designing conducting studies,...
In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects support people with profound multiple disabilities (PMD). present panel experts assessed content structure this in order to enhance its validity usefulness.A two-round Delphi study was set up. The consisted 45 experts, whom 12 were theory-experts, practice-experts experience-experts from Belgium (n = 12), Germany Netherlands 11) UK/Ireland 10). Both quantitative qualitative...
The aim of this study was to explore a procedure for drafting individualised profiles how people with profound multiple disabilities express pleasure and displeasure.There were 6 participants disabilities. involved an observational analysis videotaped critical incidents by researcher questionnaire parents support workers.The is useful making profile the ways person expresses his/her displeasure. Despite significant correlation between parents, workers researcher, each has complementary...
Previous research has identified that staff-client interactions play an important role in the origin and maintenance of challenging behaviour. Particularly, reciprocity between staff behaviour client been considered a key issue. Furthermore, severe found to elicit negative emotional reactions from which turn may influence staff's Another variable associated with are attributions regarding clients' The present study tested several hypotheses about associations variables...
The goal of this study was to evaluate a key word signing (KWS) program in which adults with mild severe intellectual disability (ID) were taught manual signs through their support staff. Our hypothesis that spontaneous sign production participants would increase significantly after 12 months implementation the KWS program.A immersion implemented facility for ID. First, 8 workers received hr training. These ambassadors then 2 per week colleagues, who modeled use throughout day natural...
Children with a significant cognitive and motor developmental delay are pre-symbolic communicators. The primary aim of this study was to reveal the variability within communicative functioning group children in terms communication level, reasons communicate behavioural expressions.Twenty-six between 14 58 months were recruited. Communication Matrix Rowland (2011, Disorders Quarterly, 32, 190) used integrate different sources information on children's functioning.These primarily communicated...