A5066170055- Stroke Rehabilitation and Recovery
- Acute Ischemic Stroke Management
- Cerebral Palsy and Movement Disorders
- Rheumatoid Arthritis Research and Therapies
- Dementia and Cognitive Impairment Research
- Health Systems, Economic Evaluations, Quality of Life
- Musculoskeletal pain and rehabilitation
- Musculoskeletal Disorders and Rehabilitation
- Moyamoya disease diagnosis and treatment
- Autoimmune and Inflammatory Disorders Research
- Clinical practice guidelines implementation
- Healthcare Systems and Practices
- Delphi Technique in Research
- Botulinum Toxin and Related Neurological Disorders
- Cardiac Health and Mental Health
Leiden University Medical Center
2013-2024
Leiden University
2022
Bridging Bionics Foundation
2021
Sophia Revalidatie
2018
Rijnlands Revalidatie Centrum
2018
Introduction and aim: Many caregivers of stroke patients experience a high burden. This study aims to describe the course burden in individual first year after stroke.Methods: is part Stroke Cohort Outcomes REhabilitation study, multicentre, longitudinal cohort including consecutive admitted two rehabilitation facilities. Caregivers were asked complete Caregiver Strain Index questions on their sociodemographic characteristics 6 12 months post admission. Patients' clinical extracted from...
Objective: To make a cross-cultural comparison of the contents rehabilitation goals patients admitted for and to compare with comprehensive International Classification Functioning, Disability Health (ICF) Core Set rheumatoid arthritis, by linking their ICF.Patients: A random sample 80 arthritis was retrieved from clinics in 4 countries.Methods: Rehabilitation were extracted medical records linked ICF using standardized rules.Results: total 495 identified 952 codes, resulting 151 unique...
To estimate societal costs and changes in health-related quality of life stroke patients, up to one year after start medical specialist rehabilitation.Observational.Consecutive patients who received rehabilitation the Stroke Cohort Outcomes REhabilitation (SCORE) study.Participants completed questionnaires on (EuroQol EQ-5D-3L), absenteeism, out-of-pocket healthcare use at end 6 12 months start. Clinical characteristics were extracted from financial records, respectively.From 2014 2016 a...
The Patient-Reported Outcomes Measurement Information System® (PROMIS) Profile Computer Adaptive Testing (CAT) consists of seven CATs and one single item measuring most relevant aspects health-related quality life (HRQoL). aim our study was to determine construct validity floor ceiling effects the PROMIS CAT in Dutch people with stroke.
Objective: To compare the responsiveness of Utrecht Scale for Evaluation Rehabilitation (USER) to Barthel Index in stroke patients an inpatient rehabilitation facility. Design: Observational study. Setting: Inpatient Subjects: Consecutive admitted clinical rehabilitation. Interventions: Not applicable. Main measures: The USER and were administered by a nurse at admission discharge. Effect Size Standardized Response Mean (SRM) calculated as measures responsiveness. Results: From 198 (78%) 254...
To examine patient activation from the start of stroke rehabilitation and its course up until 6-month follow-up.Inception cohort study with a follow-up 6 months.Multidisciplinary facility.A total 478 patients (N=478) who received inpatient or outpatient rehabilitation, median age 63.0 years (interquartile range, 56.0-70.0 years) 308 (64.2%) being men. The was completed by 439 (91.8%).Not applicable.Patient measured Patient Activation Measure (PAM) (score 0-100, 4 levels, where higher score...
<h3>Background</h3> Despite important improvements in pharmacological care for patients with rheumatoid arthritis (RA), many RA need additional to achieve and maintain an optimal level of functioning (1). Delivery comprehensive multidisciplinary a rehabilitation setting may be required if treatment by other health professionals has failed (2). <h3>Objectives</h3> This study aimed explore whether patients' perspectives on are covered current instruments. <h3>Methods</h3> A qualitative focus...
Purpose To assess the presence of upper extremity pain after stroke over time and course its intensity in patients with persistent pain.Materials methods Patients completed a question on (yes/no) rated visual analogue scale (0–10) at 3, 18, 30 months starting multidisciplinary rehabilitation. The were analysed Generalized Estimating Equations models Linear Mixed Models, respectively.Results 678 included. proportions reporting 41.8, 36.0, 32.7% months, respectively, decline reaching...
The International Consortium for Health Outcomes Measurement (ICHOM) developed a standard set of patient-centered outcome measures use in stroke patients. In addition to the Patient-Reported Information System (PROMIS) Global Health, it is comprised 25 questions that are not part specific questionnaire. This study aimed translate these single into Dutch.Two native Dutch-speaking translators independently translated original ICHOM Dutch. A consensus translation was made by and third person....
Knowledge on long-term participation is scarce for patients with paid employment at the time of stroke.