- Childhood Cancer Survivors' Quality of Life
- Family and Disability Support Research
- Family Support in Illness
- Adolescent and Pediatric Healthcare
- Family and Patient Care in Intensive Care Units
- Infant Development and Preterm Care
- Ethics and Legal Issues in Pediatric Healthcare
- Palliative Care and End-of-Life Issues
- Child and Adolescent Health
- Child and Adolescent Psychosocial and Emotional Development
- Grief, Bereavement, and Mental Health
- Intergenerational Family Dynamics and Caregiving
- Patient-Provider Communication in Healthcare
- Ethics in medical practice
- Geriatric Care and Nursing Homes
- Early Childhood Education and Development
- Attention Deficit Hyperactivity Disorder
- Obesity, Physical Activity, Diet
- Diabetes Management and Research
- Nursing Roles and Practices
- Community Health and Development
- Congenital Heart Disease Studies
- Health disparities and outcomes
- Food Security and Health in Diverse Populations
- Maternal Mental Health During Pregnancy and Postpartum
University of Pennsylvania
2016-2025
Children's Hospital of Philadelphia
2006-2025
Philadelphia University
2001-2025
Hinds Community College
2024
Bell (Canada)
2024
California University of Pennsylvania
1996-2023
Wilmington University
2023
Nemours Children’s Clinic
2020
Volpe National Transportation Systems Center
2015
Marymount University
1998-2011
To provide an overview of qualitative methods, particularly for reviewers and authors who may be less familiar with research.A question answer format is used to address considerations writing evaluating research.When producing research, individuals are encouraged the research raised explicitly identify systematic strategies ensure rigor in study design analysis, presentation findings. Increasing capacity review publication within pediatric psychology will advance field's ability gain a...
Abstract Cognitive interviews assess respondents' understanding of questionnaire items and are increasingly used to improve instrument design. Although investigators have described the contributions cognitive for development, few guidelines available analyzing data from when they that purpose. In this article we address development application analytic strategies summarizing, interpreting, using were conducted during process creating a measure parental management childhood chronic...
To understand if patient-provider race-concordance is associated with improved health outcomes for minorities.A comprehensive review of published research literature (1980-2008) using MEDLINE, HealthSTAR, and CINAHL databases were conducted. Studies included they had at least one question examining the effect on minority patients' pertained to minorities in USA. The database search data analysis each independently conducted by two authors. was limited tabular text format. A meta-analysis not...
Self-care is vital for successful heart failure (HF) management. Mastering self-care challenging; few patients develop sufficient expertise to avoid repeated hospitalization.To describe and understand how in HF develops.Extreme case sampling was used identify 29 chronic predominately poor or particularly good self-care. Using a mixed-methods (qualitative quantitative) design, participants were interviewed about self-care, surveyed measure factors anticipated influence tested cognitive...
Objective This paper reports development of the Family Management Measure (FaMM) parental perceptions family management chronic conditions. Method By telephone interview, 579 parents children age 3 to 19 with a condition (349 partnered mothers, 165 partners, 65 single mothers) completed FaMM and measures child functional status behavioral problems functioning. Analyses addressed reliability, factor structure, construct validity. Results Exploratory analysis yielded six scales: Child's Daily...
Abstract Concept analysis entails the systematic examination of attributes or characteristics a given concept for purpose clarifying meaning that concept. The term “normalization” appears frequently in reports how families respond to illness disability member. While most authors agree who have an ill disabled member attempt normalize their family life, definitions and applications vary considerably across investigators. Following guidelines proposed by Chinn Jacobs (1983), origin development...
That too few youth with special health care needs make the transition to adult-oriented successfully may be due, in part, lack of readiness transfer care. There is a theoretical models guide development and implementation evidence-based guidelines, assessments, interventions improve readiness.To further validate Social-ecological Model Adolescent Young Adult Readiness Transition (SMART) via feedback from stakeholders (patients, parents, providers) medically diverse population need life-long...
This article reports the authors’ efforts to expand family management style framework and describes revised framework. Framework development was based on a review of results from 46 studies focusing response childhood chronic conditions. The contributed modification original further specification three major components framework—definition situation, behaviors, perceived consequences. implications for research practice current develop standardized measure are discussed.
Heart failure (HF) self-care is extremely challenging and few people master it. Self-care was defined as an active, cognitive process in which persons engage for the purpose of maintaining their health (maintenance) managing symptoms (management).To examine contribution attitudes, self-efficacy, cognition to HF management.In this mixed methods study, 41 individuals (63.4% male, 68.3% Caucasian, mean age 49.17 (10.51) years, 58.5% NYHA III, median ejection fraction 30%) were interviewed...
Purpose: To describe the development, testing, modification, and results of Quality Cost Model Advanced Practice Nurses (APNs) Transitional Care on patient outcomes health care costs in United States over 22 years, to delineate what has been learned for nursing education, practice, further research. Organizing Construct: The APN Care. Methods: Review published seven randomized clinical trials with very low birth‐weight (VLBW) infants; women unplanned cesarean births, high risk pregnancies,...
This concept analysis includes the definition, characteristics, boundaries, preconditions, and outcomes of trust between family health care provider. Based on results this analysis, provider is defined as a process, consisting varying levels, that evolves over time based mutual intention, reciprocity, expectations. These six characteristics were identified regardless patient age, condition, provider, situation, setting. Trust important its development attainment has significant effects...
Obstructive sleep apnea (OSA) patients’ consistent use of continuous positive airway pressure (CPAP) therapy is critical to realizing improved functional outcomes and reducing untoward health risks associated with OSA. We conducted a mixed methods, concurrent, nested study explore OSA beliefs perceptions the diagnosis CPAP treatment that differentiate adherent from nonadherent patients prior after first week treatment, when pattern established. Guided by social cognitive theory, themes were...
Purpose: The mortality reduction rate for adolescents and young adults (AYAs) with cancer has not demonstrated the same of improvement as children, due partly to insufficient phase III clinical trial enrollment. This study describes three key components enrollment-family decision-making patterns, factors that influence AYAs' involvement, attitudes (perceived barriers benefits) toward participation-and evaluated a measure attitudes. Methods: Participants were AYAs (15-23 years old at study)...