Maria Berghs

ORCID: 0000-0002-6512-7921
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About
Contact & Profiles
Research Areas
  • Disability Rights and Representation
  • Hemoglobinopathies and Related Disorders
  • Healthcare innovation and challenges
  • Employment and Welfare Studies
  • Homelessness and Social Issues
  • Patient Dignity and Privacy
  • Grief, Bereavement, and Mental Health
  • Palliative Care and End-of-Life Issues
  • Chronic Disease Management Strategies
  • Iron Metabolism and Disorders
  • Social Policy and Reform Studies
  • Biomedical Ethics and Regulation
  • Prenatal Screening and Diagnostics
  • Migration, Health and Trauma
  • Labor Movements and Unions
  • Healthcare Decision-Making and Restraints
  • Migration, Refugees, and Integration
  • Health disparities and outcomes
  • Global Maternal and Child Health
  • Food Security and Health in Diverse Populations
  • Cambodian History and Society
  • LGBTQ Health, Identity, and Policy
  • Health and Conflict Studies
  • Italian Fascism and Post-war Society
  • Children's Rights and Participation

De Montfort University
2017-2025

University of York
2014-2019

Columbia University
2019

University of Leeds
2010-2011

Living with Disability
2010

KU Leuven
2004-2006

Background Public health interventions that are effective in the general population often assumed to apply people with impairments. However, evidence support this is limited and hence there a need for public research take more explicit account of disability perspectives Objectives (1) To examine literature on theories models disability; (2) assess whether or not, how, intervention studies effectiveness could incorporate inclusive approaches consistent these models; (3) use findings draw out...

10.3310/phr04080 article EN publisher-specific-oa Public Health Research 2016-07-01

We introduce the social model of disability by reflecting on its origins and legacy, with particular reference to work Union Physically Impaired against Segregation. argue that there has been a gradual rolling back rights entitlements associated disability. Yet no alternative for proposed in response such threats disabled people's human rights. Disabled people need stronger acts as means society which enables ensures their rights; right live dignified life, well an environment flourish

10.1080/09687599.2019.1619239 article EN Disability & Society 2019-06-01

This paper begins by giving a description of the relationship between austerity and neoliberal policy focus on work in UK, how this impacts negatively disabled people. It examines why Black people's employment experiences have been missing literature despite fact that they are more affected austerity. job market tend to racism discrimination, whilst other struggles linked disability, what implies for people, poorly understood. A case study, workers, living with sickle cell condition, is...

10.1080/09687599.2020.1829556 article EN Disability & Society 2020-10-20

Background: Southern African scholars and activists working in disability studies have argued that ubuntu or unhu is a part of their world view. Objectives: Thinking seriously about ubuntu, as shared collective humanness social ethics, means to examine how Africans framed struggle for this humanity terms decolonisation activism. Method: Three examples applications are given, with two mainly linked making explicit umaka. Firstly, visible the invisible inequalities common South Africa....

10.4102/ajod.v6i0.292 article EN cc-by African Journal of Disability 2017-01-31

Background : Southern African scholars and activists working in disability studies have argued that ubuntu or unhu is a part of their world view. Objectives Thinking seriously about , as shared collective humanness social ethics, means to examine how Africans framed struggle for this humanity terms decolonisation activism. Method Three examples applications are given, with two mainly linked making explicit umaka . Firstly, visible the invisible inequalities common South Africa. Secondly, it...

10.4102/ajod.v6.292 article EN cc-by African Journal of Disability 2017-01-31

Abstract Interventions that promote public health have the potential to transform lives, particularly for those who experience disability, where marked social and material inequalities occur across life‐course. When evaluating such interventions, health‐related quality‐of‐life is regarded as a primary outcome used inform evidence‐based practice. Quality‐of‐life measures, however, are not straightforward heuristic devices but express technologies of epistemic power. By prioritizing...

10.1111/polp.12515 article EN cc-by Politics &amp Policy 2023-01-12

In this article, a radical social model of disability lens is taken to illustrate what counts as ‘disability’ within neoliberal mindset. The South African and disabled activist Vic Finkelstein describes both an ‘outside-in approach’ that looks at the material conditions how constructed ‘idealist’ ‘inside-out’ approach, or people describe experiences inequality disablement. ‘outside-in’ approach where focus should be in terms trying understand global capitalism neoliberalism (dis)ablest...

10.1080/09687599.2015.1052044 article EN Disability & Society 2015-05-28

### Summary box Why do sickle cell disorders (SCDs) remain a low priority on the global child health agenda when dies from condition every three seconds globally? Why are more resources not invested to save lives and ensure holistic care of people with SCDs? is policy focus shifting towards development genomic cures instead assuring better healthcare for across life-course? The disconnect between practice raises further questions. What point cure if you live in poverty, have basics...

10.1136/bmjgh-2020-002601 article EN cc-by-nc BMJ Global Health 2020-07-01

The term evidence based medicine was introduced in the early 1990s clinical to educate clinicians about how assess 'credibility' of research ensure best treatments for their patients. paradigm has become more diffuse times austerity and randomised controlled designs are being used address complex issues public health disability research. This is not addressing inequalities terms nor people can live well with disabilities.

10.1186/s12889-019-7334-8 article EN cc-by BMC Public Health 2019-07-24

Abstract In this article, drawing on in-depth multi-sited ethnographic field research, a description is given of how an 'amputee and war-wounded' community formed in Sierra Leone after 10-year civil war from 1991 to 2002. Through the shared experiences life camp, medical care, participation rebuilding nation-state, 'managing' everyday structural violence poverty, people find themselves dealing with new local global spaces created post-conflict environment. The way that understand negotiate...

10.1080/01436597.2011.604515 article EN Third World Quarterly 2011-09-01

In this article, we compare conceptions of disability in Sierra Leone using the theoretical category victimhood. We show how it intersects with how: 1) traditional perceptions locate a person within moral economy blame and social remedies, 2) discourses segregated setting are being affected by multiple postconflict ideas around victims victimization, 3) dependency success created as disabled people internalize or reject victimization. these ethnographic snapshots everyday, hope to...

10.2979/africatoday.58.2.19 article EN Africa Today 2011-01-01

Public health research purports to provide the evidence base for policies, programmes and interventions improve of a population. However, there is increasing awareness that experiences disabled people have played little part in informing this base. This paper discusses one aspect study commissioned by England's National Institute Health Research (NIHR) review implications public theories models disability. focused on development tool or decision aid promote ethical inclusion randomised...

10.1080/09687599.2017.1339588 article EN cc-by-nc-nd Disability & Society 2017-06-24

Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms 'racialised' risks. Historically, socio-politically allied to ideas repair, the state improving neglected ethnic minority population. Yet, we elucidate partial improvements care and education arose alongside preventative screening efforts. Using research based United Kingdom, show focus on collective efforts repair can lie tension...

10.1177/1363459315595850 article EN Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine 2015-07-25

This paper uses Margaret Urban Walker’s “expressive collaborative” method of moral inquiry to examine and illustrate the morality nurses in Great Britain from around 1860 1915, as well nursing complicity one first eugenic policies. The authors aim focus on how context shapes limits agency contributes a better understanding debates ethics both past present.

10.1136/jme.2004.011171 article EN Journal of Medical Ethics 2006-01-30

In this article, I describe how during my anthropological research in post‐conflict Sierra Leone with a disabled community, was confronted by experiences of inequality and exploitation. Many people had previous disabling contact other researchers, organisations journalists. Others described difficulties surviving the socio‐economic conditions were not viewed as 'development' partners, despite fact that their images stories played big role rebuilding 'healing' Leonean nation state. ask...

10.1080/09687599.2010.520903 article EN Disability & Society 2010-11-19
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