This paper presents a coherent framework for designing and evaluating public involvement in research by drawing on an extensive literature the authors’ experience. The consists of three key interrelated dimensions: drivers involvement; processes impact involvement. pivotal point this is opportunity researchers others to exchange ideas. results from which bring them together support their debates decisions. It also at that interest open influence interaction can anyone directly involved....

#### What you need to know In spite of a wealth guidance,1 young people making the transition from children’s adults’ services are often inadequately or inconsistently supported.2 3 4 This can lead disrupted care.5 It also mean they disengage services, which be costly, both for them and care providers. Transition is process should not conflated with transfer, discrete event. Simple transfer may result in poor understanding person’s treatment needs by new adult team. Healthcare gradual,...

Background Patient and public involvement means researchers working with members of the public, patients or carers to jointly plan carry out research.Aim This article is written by three groups, university employees that they work with. We wanted reflect on what enables our collaborative work, challenges are for everyone involved.What we did how it establish literature defines as 'good' compare this processes practices in groups. therefore carried a review each group met separately discuss...

Patient and public involvement (PPI) in health research is required by some funders publications but we know little about how common it is. In this study estimated the frequency of PPI inclusion papers analysed varied relation to topics, methods, funding sources geographical regions.

ABSTRACT This article discusses two related areas of research practice with children and young people that have received less attention in the literature than they might. The first is working teenagers for whom traditional, discursive nature interview‐based accessible. second disinclination researchers to report on difficulties process. As researchers, we scanned assistance some problems encountered, little reward. In describing everyday (and our – still developing solutions) hope encourage...

Abstract Objectives The objective of this study was to identify what children and young people in a health district large urban area experience as positive – not so about their local services, the light growing expectation that users play more central role design delivery services. Design A qualitative incorporating range methods, including interviews, techniques website. Setting Schools, nurseries, community groups, in‐ outpatient settings an inner London authority. Participants Young aged...

Health research funders in the UK now ask applicants to state how their will involve patients and members of public. Such involvement can help with questions that researchers repeatedly face: about improving trial recruitment, response rates follow-up. Patient Public Involvement (PPI) is usually presented form a ladder, from low rung where studies are led by no patient involvement, high patient-led. This hierarchy does not sit well many clinicians academics whose expertise appears have been...

Abstract Background A large number of children are affected by foot and ankle problems owing to congenital deformities, clinical syndromes, neuromuscular conditions or trauma. This study aimed identify how children's lives from the child's perspective as first stage in developing a family‐assessed instrument. Methods was qualitative using focus groups involving with variety aged 5–7, 8–11 12–15 years, separate concurrent for their parents. The were child‐centred involved creative activities;...

Young people in residential or foster care experience multiple transitions around their 18th birthday without the long term and consistent support from family of origin that most peers can expect. We report a mixed methods qualitative study across health social services for children leaving care, providing narratives what young described as positive, they professionals think might be improved.Data were collected participatory meetings individual interviews between researchers (n = 24) with...

People with lived experience of health and illness are increasingly being involved in research. Knowing what creates interest becoming research may help identify appropriate ways facilitating meaningful involvement. The study aimed to investigate why people became public collaborators helped sustain their commitment staying involved.

Patient and public involvement in research is anchored moral epistemological rationales. Moral rationales relate to the having a right influence how knowledge about them generated. Epistemological design implementation can improve when informed by experiential, as well technical, knowledge. In other words, increase resources of researchers, contribute that fit for purpose has high external validity.This article presents an analysis 3 meetings 11 interviews with collaborators researchers...

Abstract Background and aim This paper explores the tension between participation protection at a time when professionals are encouraged to engage patients citizens in both “R” (research) “D” (development) of services. Concerns protect groups perceived as “vulnerable” can mean that not everyone is afforded same opportunity participate. Methods Our data draw on literature secondary analysis study designed explore experiences young peoples' transitions from health social care adult In seeking...

A new group based treatment for patients with bulimia nervosa (BN) and binge eating disorder (BED), combining guided Physical Exercise Dietary therapy (PED-t), has shown the capacity to alleviate BN BED symptoms. The PED-t is run by therapists a professional background in sport sciences nutrition, which many clinical settings an uncommon of professionals. symptom reduction effects using need validation from who have been given this kind treatment, as negative experiences may impinge further...

For patients and the public to work collaboratively with researchers, they need support opportunities engage in learning that builds on their skills grows confidence. In this article, we argue for a different approach learning, which starts expertise patients/ arrive with, helps them identify develop soft required influence researchers effectively. Much of current training focuses addressing gaps knowledge awareness about how research works involvement adds value. Our complements by...

In recent years a variety of initiatives have been created with the aim increasing use research in social care practice. This article reports findings from one-year pilot information service provided by What Works for Children project. Taking note evidence utilization literature, was set up to support practitioners using their service-planning. An implementation officer worked service-planners identify areas where could be helpful. Researchers responses practitioners' questions searching...

Young unaccompanied asylum seekers have been portrayed as vulnerable, resilient or both. Those granted residency in Europe are offered support by health and social care systems, but once they leave the system to make independent lives, what part can these services play? Our review of research with migrants who Sweden United Kingdom found evidence unmet need, little describing their own views services. The limited published evidence, supplemented interviews leavers a UK inner city, suggests...

Expert opinion is that about 20% of emergency stroke patients should receive thrombolysis. Currently, 11% to 12% in England and Wales thrombolysis, ranging from 2% 24% between hospitals. The aim this study was assess how much variation due differences local patient populations, clinical decision-making pathway performance, while estimating a realistic target thrombolysis use.

Introduction Reporting data from a case study of collaborative systematic review, this paper discusses the impact service user involvement might have on research, and how research benefit this. Methods This was qualitative study. The researcher analysed process collaboration in form meeting transcripts minutes, reflective interviews researchers’ own field diary. review also compared with two reviews similar topic, using AMSTAR checklist. Results young people had influence at all stages but...

Co-production and