A5032685560- Dementia and Cognitive Impairment Research
- Geriatric Care and Nursing Homes
- Palliative Care and End-of-Life Issues
- Mental Health and Patient Involvement
- Health Systems, Economic Evaluations, Quality of Life
- Suicide and Self-Harm Studies
- Cancer survivorship and care
- Cancer-related cognitive impairment studies
- Health Policy Implementation Science
- Restraint-Related Deaths
- Poisoning and overdose treatments
- Psychosomatic Disorders and Their Treatments
- Traumatic Brain Injury Research
- Frailty in Older Adults
- Ovarian function and disorders
- Family and Patient Care in Intensive Care Units
- Reproductive Health and Technologies
- Patient-Provider Communication in Healthcare
- Child and Adolescent Health
- Health and Well-being Studies
- Mentoring and Academic Development
- Healthcare Decision-Making and Restraints
- Family Caregiving in Mental Illness
- Mental Health and Psychiatry
- Reproductive Biology and Fertility
Leeds Beckett University
2017-2025
Myer Foundation
2023-2024
University of Leeds
2011-2021
Dementia UK
2018
There are many validated quality-of-life (QoL) measures designed for people living with dementia. However, the majority of these completed via proxy-report, despite indications from community-based studies that consistency between proxy-reporting and self-reporting is limited. The aim this study was to understand relationship self- one generic three disease-specific in dementia care home settings.As part a randomised controlled trial, four (DEMQOL, EQ-5D-5L, QOL-AD QUALID) were by dementia,...
Delirium is common and distressing for hospice in-patients. Hospital-based research shows delirium may be prevented by targeting its risk factors. Many preventative strategies address patients' fundamental care needs. However, there little regarding how interventions need to tailored the in-patient setting. To explore behaviours of staff in relation prevention, influences that shape these behaviours. Focused ethnography supported behaviour change theory. Observation, semi-structured...
Psychosocial person-centred interventions are considered best practice for addressing complex behaviours and care needs such as agitation anxiety, improving the quality of life people with dementia in homes. Dementia Care Mapping (DCM™) is an established development tool process aimed to help home staff deliver more care. To date, few studies have evaluated efficacy DCM™ found mixed results. These results suggested be outcome intervention implementation, which may impacted by a range...
Background: Medical students consistently report low rates of interest in psychiatry as a career over time with negative perceptions the specialty. Only 3–6% enter specialty.Aim: To explore medical students' current choices and attitudes to factors affecting these.Methods: at four UK schools completed questionnaire related specialty their placement experiences.Results: A total 905 questionnaires were returned. Psychiatry was first choice 4% but top three 14%. The this group who had...
Abstract Objective Increasing numbers of people are expected to live with comorbid cancer and dementia. Cancer treatment decision‐making for these individuals is complex, particularly those lacking capacity, requiring support across the care pathway. There little research inform practice in this area. This ethnographic study reports on experiences dementia, their families, healthcare staff. Methods Participant observations, informal conversations, semi‐structured interviews, medical note...
The quality of care for people with dementia in homes is concern. Interventions that can improve outcomes are required.To investigate the clinical effectiveness and cost-effectiveness Dementia Care Mapping™ (DCM) reducing agitation improving living homes, versus usual care.A pragmatic, cluster randomised controlled trial an open-cohort design, follow-up at 6 16 months, integrated analysis process evaluation. Clusters were not blinded to allocation. primary end point was completed by staff...
Providing cancer care and treatment for ageing populations with complicating comorbidities like dementia is a growing global challenge. This study aimed to examine the hospital-based challenges support needs of people dementia, identify potential ways address these.A two-site ethnographic in England involving semi-structured interviews, observations accompanying conversations, medical record review. Participants (N = 58) were comorbid (n 17), informal caregivers 22) hospital staff 19)....
Behaviours such as agitation impact on the quality of life care-home residents with dementia and increase healthcare use. Interventions to prevent these behaviours have little evidence supporting their effectiveness or cost-effectiveness. We conducted an economic evaluation alongside a trial assessing Dementia Care Mapping™ (DCM) versus usual care for reducing agitation, highlight methodological challenges conducting evaluations in this population setting.RCT data over 16 months from English...
Abstract Background Many people with dementia live in care homes, where staff can struggle to meet their complex needs. Successful practice improvement interventions these settings require strong managerial support, but little is known about how managers support implementation practice, or what factors hinder home providing this support. Using Dementia Care Mapping™ (DCM) as an example, study explored the of interventions, and identified affecting ability provide Methods We undertook...
Nonfatal self-harm is the strongest predictor of suicide, with some risk factors for subsequent suicide after nonfatal being similar to those in general. However, we do not have sufficient information regarding medical care provided episodes preceding suicide.Our study sought explore hospital and predictive characteristics self-harm.Individuals history who died by were compared had a episode but did later die suicide. Cases identified cross-linking data collected through monitoring project,...
ObjectivesDespite cancer and dementia being conditions in which prevalence increases with age, there remains limited research on the treatment care needs of this population. Our study aimed to address gap paper reports role supportive networks enabling people access care.Materials methodsAn ethnographic involving seventeen dementia, 22 relatives nineteen oncology staff. It comprised observations (46 h) informal conversations during appointments attended by their semi-structured interviews (n...
Important decisions about the future care of people living with dementia are routinely made in hospitals. Very little is known how needs hospitalized understood, or perspectives person, families, and staff intersect to inform decision-making. This study explores understood by their family, hospital (the triad), these shape decision-making.Ethnographic data were collected from 2 care-of-older-people general wards via observations, conversations, interviews dementia, staff. In total, 400 hr...
Abstract Background Psychosocial interventions offer opportunities to improve care for people with dementia in homes. However, implementation is often led by staff who are not well prepared the role. Some use external experts support staff. However little known about expert, home and manager perceptions of such support. This paper addresses this gap. Methods Multi-methods study within a process evaluation cluster randomised controlled trial Dementia Care Mapping™ (DCM). Interviews were...
This study explored intervention implementation within a pragmatic, cluster randomized controlled trial of Dementia Care Mapping™ (DCM) in UK care homes. DCM is practice development tool comprised 5 component cycle (staff briefing, mapping observations, data analysis and reporting, staff feedback, action planning) that supports delivery person-centered care. Two from the 31 homes were trained asked to deliver 3 cycles over 15-month period, supported by expert during 1. Implementation...
Abstract Objectives The risks of developing cancer and dementia increase as we age; however, this comorbidity remains relatively under-researched. This study reports on the challenges that people affected by comorbid face when navigating engagement with treatment within secondary care. Materials methods An ethnographic recruiting 17 dementia, 22 relatives 19 oncology staff in two UK National Health Service Trusts. Observations (46 h) informal conversations were conducted during appointments...
Objectives Agitation is common and problematic in care home residents with dementia. This study investigated the (cost)effectiveness of Dementia Care Mapping™ (DCM) for reducing agitation this population.Method Pragmatic, cluster randomised controlled trial cost-effectiveness analysis 50 homes, follow-up at 6 16 months stratified randomisation to intervention (n = 31) control 19). Residents dementia were recruited baseline 726) 261). Clusters not blinded allocation. Three DCM cycles...
Abstract Background Dementia Care Mapping™ (DCM) is a widely used, staff-led, psychosocial intervention to support the implementation of person-centred care. Efficacy evaluations in care homes have produced mixed outcomes, with problems identified. Understanding experiences staff trained lead DCM crucial understanding challenges, yet this has rarely been formally explored. This study aimed examine home implementation, within large cluster randomised controlled trial. Methods Process...
Managing multiple conditions is difficult for patients and their families, increasing complexity in care. Two of the most common long-term conditions, cancer dementia, both disproportionately affect older adults. However, little known about needs experiences those living with which could inform practice area.