This article discusses challenges of language differences in qualitative research, when participants and the main researcher have same non-English native data lead to an English publication. Challenges translation are discussed from perspective that interpretation meaning is core research. As also interpretive act, may get lost process. Recommendations suggested, aiming contribute best possible representation understanding interpreted experiences thereby validity

A common model for learning from evaluation assumes that occurs when evaluators transmit findings and conclusions to programme participants stakeholders. Learning is then understood as a cognitive act, happening in the mind of an individual separated rest our activities. In recent years, this has been challenged by scholars who argue ‘situated learning’ ‘communities practice’. This alternative conception emphasizes context-bound nature (versus material abstracted context) relationships...

A traditional approach to teaching medical ethics aims provide knowledge about ethics. This is in line with an epistemological view on which moral expertise assumed be located theoretical and not the experience of healthcare professionals. The aim this paper present alternative, contextual ethics, grounded a pragmatic-hermeneutical dialogical called case deliberation. Within deliberation, professionals bring their actual questions during structured dialogue. ethicist facilitates learning...

Abstract Background Collaboration with patients in healthcare and medical research is an emerging development. We aimed to develop a methodology for health agenda setting processes grounded the notion of participation as dialogue. Methods conducted seven case studies between 2003 2007 validate Dialogue Model patient setting. The related spinal cord injury, neuromuscular diseases, renal failure, asthma/chronic obstructive pulmonary disease, burns, diabetes intellectual disabilities. Results...

In the public sphere, a management by measurement (MBM) movement can be traced. Practitioners attempt to strengthen transparency and effectiveness of administrative systems introducing rational cycles. When issues are managed, ambitions must stated, options assessed, optimal chosen performance monitored evaluated. This cycle rests upon assumptions that often untenable. ambiguous, interpretative spaces exist; when exist, strict cycles do not work because required conditions cannot met....

Patients are increasingly actively involved in research. We depart from an approach that understands patient participation as dialogue. This idea is grounded hermeneutic philosophy and responsive engaged research via dialogues with other stakeholders. New the inclusion of patients partners. Several methodological notions underpin In two health agenda-setting processes (intellectual disability kidney disease), these have been applied refined for collaboration partners mixed teams. The...

To assess the inclusion of patients as international research partners in Outcome Measures Rheumatology (OMERACT) conferences and how this has influenced scope conduct outcomes rheumatology.

Case studies can provide us with in-depth understanding of a single demarcated entity. Cases be corporations and clinics, but are usually people. There several approaches to case study. Naturalistic study constitutes the science particular. The aim naturalistic is understand minimum intervention particularity in its ordinary situation from multiple perspectives. relies on humanistic commitment world human perspective. purpose here illuminate how five key features used health research. use...

Social impact, defined as an effect on society, culture, quality of life, community services, or public policy beyond academia, is widely considered a relevant requirement for scientific research, especially in the field health care. Traditionally, process knowledge transfer rather linear and one-sided has not recognized integrated expertise practitioners those who use services. This can lead to discrimination disqualification epistemic injustice. Epistemic injustice situation wherein...

Recently, moral deliberation within care institutions is gaining more attention in medical ethics. Ongoing dialogues about ethical issues are considered as a vehicle for quality improvement of health practices. The rise conversation methods can be understood against the broader development ethics which interaction and dialogue seen alternatives both theoretical or individual reflection on questions. In other disciplines, intersubjectivity also way to handle practical problems, methodologies...

This study seeks to explore the sources of strength giving rise resilience among older people. Twenty-nine in-depth interviews were conducted with people who receive long-term community care. The subjected a thematic content analysis. findings suggest that main identified constituted on three domains analysis; individual-, interactional and contextual domain. individual domain refers qualities within comprises sub-domains, namely beliefs about one's competence, efforts exert control capacity...

Abstract Background Different strategies by which patients can be involved in research include consultation, control and collaboration. This article focuses on collaboration within teams considers this with reference to a project about setting social–scientific agenda for health from the perspectives of chronic kidney disease (CKD). Objective To examine dynamics dialogues between patient partners professional researchers. Design A responsive methodology was used project. Two participated...

Participation in Human Papillomavirus (HPV) vaccination and Papanicolaou Screening (Pap smears) is low among ethnic minorities the Netherlands hardly any information available about cervical cancer prevention methods of Somali women living diaspora. This qualitative study, based on Health Belief Model (HBM) an intersectionality-based framework, explores perceptions regarding measures to prevent cancer.Semi-structured interviews have been conducted with young aged 17-21 years (n = 14) mothers...

Co-production and service user involvement are increasingly encouraged in mental health care research. However, power hierarchies knowledge can affect the co-production of by stakeholders. Therefore, purpose this article is to deepen our understanding relational dynamics at stake co-researching teams larger groups stakeholders involved We reflect on a process psychiatric emergency show ethical responsibilities researchers dealing with dynamics. A collaborative reflection shows that voices...

Abstract Background Citizen science and models for public participation in health research share normative ideals of participation, inclusion, patient engagement. Academic researchers collaborate with members the involved an issue, maximizing all assets, competencies, knowledge. In citizen new ethical issues arise, such as who decides, participates, is excluded, what it means to power equally, or whose knowledge counts. This article aims present ethics framework that offers a lens...

This article explores the potential and challenges of inclusive research methodologies when working with older individuals lower literacy levels. We present approaches developed during our discuss their implications for methodology individual well-being among adults Our key insight is that promise lies in relational design praxis. Prioritizing meaningful relationships between researchers participants, we emphasize importance considering participants as active contributors rather than mere...

Abstract Responsive evaluation, as a doctrine extending and disciplining common sense, has an intellectual history, some of it passing through Robert Stake's work in the late sixties. That is where this article begins. It meant to set context for special issue, Evaluation, by presenting work. The text mosaic fragments from extensive conversations with Bob Stake summer 1994 quotes his older more recent chapter thus offers story about original ideas their evolution over period thirty‐five years.

Organizational learning in this article is understood as a collective and relational process which groups of persons are gaining knowledge appreciation issues through stories an ongoing dialogue between stories. This notion forms the departure-point for identification implementation organizational intervention that aims to facilitate storytelling workshops. The value meaning these workshops illustrated with case deals development palliative care cancer patients among various health...

Responsive evaluation offers a perspective in which is reframed from the assessment of program interventions on basis policy makers' goals to an engagement with and among all stakeholders about value meaning their practice. evaluators have be extra sensitive power relations given deliberate attempts acknowledge ambiguity plurality interests values foster genuine dialogue. The author illustrates practice politics responsive case examples two fields, arts education mental health care. In these...

Traditionally, patients are rarely seen as partners in health research; their influence on priority setting, research design, the undertaking of research, and interpretation dissemination findings was marginal. Nowadays, researchers, funding agencies, governments, patient organizations beginning to acknowledge that passive role is no longer satisfactory. The emerging commitment consensus concerning aims features participation have created a need for an appropriate method engage research. In...