A5065153779- BRCA gene mutations in cancer
- Cancer Genomics and Diagnostics
- Patient-Provider Communication in Healthcare
- Genetic factors in colorectal cancer
- Ethics in Clinical Research
- Global Cancer Incidence and Screening
- Genomics and Rare Diseases
- Empathy and Medical Education
- Mental Health and Psychiatry
- Prostate Cancer Treatment and Research
- CRISPR and Genetic Engineering
- Economic and Financial Impacts of Cancer
- Viral-associated cancers and disorders
- Genetically Modified Organisms Research
- Prostate Cancer Diagnosis and Treatment
University of Southampton
2022-2024
St George’s University Hospitals NHS Foundation Trust
2023-2024
Shepherd University
2022
Family-history assessment can identify individuals above population-risk for cancer to enable targeted Screening, Prevention and Early Detection (SPED). The online patient-facing Family History Questionnaire Service (cFHQS) is a digitalised, resource efficient tool family history data capture facilitate this. capturing of digital from cFHQS allows interrogation patients referred Clinical Genetics the purposes service improvement. Digital 4,044 respondents over three-year period was collected...
Abstract Introduction Patient decision aids (PtDA) complement shared decision‐making with healthcare professionals and improve quality. However, PtDA often lack theoretical underpinning. We are codesigning a to help people increased genetic cancer risks manage choices. The aim of an innovative workshop described here was engage the who will use regarding underpinning logic model outlining our hypothesis how would lead more informed decision‐making. Methods Short presentations about...
Abstract Background Resources including Patient Decision Aids (PtDA) are useful and valued by patients clinicians to provide information complement shared decision‐making. Despite their promise, few PtDA exist for with genetic cancer susceptibility facing difficult decisions about risk management. We aimed fill this gap, partnering codesign Lynch Choices TM , a website families Syndrome. In addition Reference Panel, we purposively invited an international stakeholder panel charities, public...
Background Testing for germline pathogenic variants (GPVs) in cancer predisposition genes is increasingly offered as part of routine care patients with cancer. This often urgent oncology clinics due to potential implications on treatment and surgical decisions. also allows identification family members who should be predictive genetic testing. In the UK, it common practice healthcare professionals provide a patient information leaflet (PIL) at point diagnostic testing cancer, after results...
Lynch syndrome carriers ('carriers') are presented with complex, emotionally laden choices regarding management of increased genetic cancer risks. Decision aids encourage active involvement in values-based health decisions. This paper aimed to address the research question: How do make sense their chances developing cancer, and what implications for providing support decision making about risk management?