<sec> <title>BACKGROUND</title> Individuals with spinal cord injury or disease (SCI/D) experience disproportionately high rates of recurrent urinary tract infections (UTIs), which are often complicated by atypical symptoms and delayed diagnoses. Patient-centered tools, like the Urinary Symptom Questionnaires for Neurogenic Bladder (USQNB), have been developed to support symptom assessment yet remain underutilized. Generative AI such as ChatGPT, may offer a more usable approach improving...

Urinary symptoms are common for people with neurogenic lower urinary tract dysfunction (NLUTD). No nonprescription approach has been proven safe and effective self-management of symptoms. Our objective was to describe the safety tolerability Lactobacillus rhamnosus GG (LGG®) instilled intravesically inflammatory in adults children NLUTD due spinal cord injury or disease (SCI/D) who use intermittent catheterization (IC).A total 103 individuals SCI/D enrolled an 18-month study consisting three...

Background We developed a Urinary Symptom Questionnaire for individuals with neurogenic bladder due to spinal cord injury (SCI) and spina bifida (SB) who manage their bladders intermittent catheterization, the USQNB-IC. This project followed an approach patient-centered patient reported outcomes development that we created published in 2017, specifically ensure primacy of patient's perspective experience. Participants Two sets responses were collected from either SCI (n = 336) SB (patients,...

Background. Severe poststroke arm impairment is associated with greater activation of the nonlesioned hemisphere during movement affected arm. The circumstances under which this may be adaptive or maladaptive remain unclear. Objective. To identify functional relevance key lesioned and motor areas to reaching performance in patients mild versus severe impairment. Methods. A total 20 participants chronic stroke performed a response time task their During reaction period, transient magnetic...

Objectives To explore the association between dipstick results and urinary symptoms. Method This was a prospective 12-month observational study of real-time self-administered urine symptoms in community setting that included 52 spinal cord injury/disease (SCI/D) participants with neurogenic lower tract dysfunction (NLUTD) who use an indwelling catheter. Symptoms were collected using Urinary Symptom Questionnaire for Neurogenic Bladder–Indwelling Catheter (USQNB-IDC). The USQNB-IDC includes...

To test the effectiveness of intravesical Lactobacillus rhamnosus GG (LGG) to reduce burden urinary symptoms for individuals with spinal cord injury and disease (SCI/D) neurogenic lower tract dysfunction (NLUTD) who manage their bladders intermittent catheterization (IC).A three-phase study (6 months each in baseline, intervention, washout). Participants self-managed following Self-Management Protocol using Probiotics (SMP-Pro), completing online Urinary Symptom Questionnaire Neurogenic...

Rehabilitation outcomes of patients with coronavirus disease 2019 (COVID-19) are unknown.

To describe the scoring approach, considering interpretability, validity, and use, of a new patient-centered patient reported outcome (PRO), Urinary Symptom Questionnaire for Neurogenic Bladder-Intermittent Catheter version (USQNB-IC).Subject matter experts (researchers, clinicians, consumer, psychometrician) classified USQNB-IC items. Profiles were then composed based on self-management decisions made by patients; management clinicians; research-oriented investigators. Participants in an...

Background Neurogenic bladder is associated with bacterial colonization and frequent urinary tract infections. Objectives To explore the effects of one to two doses intravesical Lactobacillus rhamnosus GG (LGG) on urobiomes adults spinal cord injury/disease (SCI/D) who manage their bladders intermittent catheterization (IC). Methods This was a pilot substudy within an 18-month phase 1 clinical trial self-instilled LGG for symptoms as directed by Self-Management Protocol using Probiotics...

Objectives To determine whether assessment and decision-making around urinary symptoms in people with neurogenic lower tract dysfunction (NLUTD) should depend on bladder management. Methods Three surveys of associated NLUTD (USQNBs) were designed specific to management method for those who manage their bladders indwelling catheter (IDC), intermittent (IC), or voiding (V). Each was deployed one time a national sample. Subject matter experts qualitatively assessed the wording validated items...

Background Urinary symptoms and urinary tract infection (UTI) are frequent burdensome problems associated with neurogenic lower dysfunction. Objectives To determine whether an association exists between urine dipstick results among individuals spinal cord injury (SCI) or multiple sclerosis (MS). Methods Prospective 12-month cohort study of 76 participants SCI MS who manage their bladders by voiding. Eligibility criteria included adults ≥18 years old, at least three UTIs since diagnosis,...

A narrow interpretation of “medical necessity” can result in poorer health as well a more restricted life for people with disabilities. We examined the impact US policy on reimbursement intermittent catheters (ICs) lives neurogenic bladder (NB) who require to urinate. conducted in-depth, longitudinal interviews nine stakeholders. Actor-Network Theory was used describe interactions among human agents, IC products, and policies arena. Restrictions type quantities ICs reimbursed emerged most...

INTRODUCTION: The 6-minute push test is often used to estimate cardiorespiratory fitness in people who have spinal cord injury (SCI). PURPOSE: To characterize the relationship between distance (6MPD) and measures of function obtained during cardiopulmonary exercise tests (CPET) with SCI. METHODS: Subjects were 15 individuals SCI reported an inability lift their legs against gravity (Age: 34.5 ± 10.5 years; BMI: 25.5 3.6 kg/m2; paraplegic: N=12, tetraplegia: N=3, incomplete injury: N=5,...

Gait adaptation may be assessed in individuals with incomplete spinal cord injury (iSCI) by measuring center of pressure (COP) and ground reaction force (GRF) during stance phase. Force distribution COP displacement indicators improved walking. Variability these measures change over time as new motor strategies are adopted. PURPOSE: To characterize changes GRF, mediolateral (COPML) their variabilities an individual iSCI after 15 weeks task-specific locomotor training (LT). METHODS: Pressure...

Self-efficacy reflects a person’s belief in one’s ability to perform specific behavior now coupled with expectations that the will achieve desired results later. Perceived rather than actual may even be better predictor of future performance. One expectation for rehabilitation is individuals confident their function and beliefs match objective facts However, can change over time as circumstances change. PURPOSE: We wanted determine how well confidence physical performance mirrored each other...

Background: Existing evidence on rehabilitation of CoronaVirus Disease (COVID) patients primarily focuses system changes, while outcomes have not been reported. The purpose this study is to describe COVID undergoing inpatient and quantify their determine if they benefit from the same extent as non-COVID counterparts. Methods: This a historical prospective observational all inpatients free standing, 128-bed hospital between February 29, 2020 September 30, 2020. Inclusion criteria are: ³18...

Evidence has been presented (Mainguy et al, 2011) that the distance walked (6MWD) on 6-minute walk test (6MWT) is a surrogate measure for engagement in physical activity patients who have pulmonary hypertension (PH). PURPOSE: To determine if relationship between 6MWD and sustained following aerobic exercise training. METHODS: 20 with PH (18 women age=54.3±10.5 yrs, BMI=33±6.9 Kg/m2; 2 male age=60.0±18.4 BMI=41.5±3.5 Kg/m2), were enrolled NIH Exercise Therapy Advanced Lung Disease Trials...