- Palliative Care and End-of-Life Issues
- Patient Dignity and Privacy
- Ethics in medical practice
- Cancer survivorship and care
- Family Support in Illness
- Childhood Cancer Survivors' Quality of Life
- Geriatric Care and Nursing Homes
- Patient-Provider Communication in Healthcare
- Health disparities and outcomes
- Hematopoietic Stem Cell Transplantation
- Obesity, Physical Activity, Diet
- Homelessness and Social Issues
- Grief, Bereavement, and Mental Health
- Family and Patient Care in Intensive Care Units
- Optimism, Hope, and Well-being
- Ethics and Legal Issues in Pediatric Healthcare
- Aging and Gerontology Research
- Intergenerational Family Dynamics and Caregiving
- Amyotrophic Lateral Sclerosis Research
- Literature Analysis and Criticism
- Physical Activity and Health
- Suicide and Self-Harm Studies
- Death, Funerary Practices, and Mourning
- Health Systems, Economic Evaluations, Quality of Life
- Organ Donation and Transplantation
Malmö University
2008-2019
Scania (Sweden)
2013
Lund University
1998-2012
Swedish Institute for Health Economics
2012
Kristianstad University
2012
Department of Medical Sciences
2002-2007
Swedish Institute
2005-2006
A minority of terminally ill patients achieve a peaceful death. Many factors, including existential distress, contribute to the emotional disquiet patients. This study focuses on reactions cancer questions concerning issues within themes meaning, relations, autonomy, guilt, dignity, and communication. The results this indicate that experience number problems dealing with issues, consider these important, wish be able discuss types someone.
For the individual as well for those caring patients, diagnosis of amyotrophic lateral sclerosis (ALS) provides a great emotional challenge. Many factors, including existential distress, contribute to strain patients with ALS. This study focuses on diagnosed ALS and how they communicate issues related meaning guilt, relations, information, physical inability, dying dignity respect person. The results present indicate that (1) experience number problems, particularly in connection (2) need...
This article analyses the general ethical milieu in a nursing home for elderly residents and provides decision-making model analysing situations that arise. It considers what it means to live together staff be ethically problematic when caring residents. An interpretative phenomenological approach Sandman’s proved useful this purpose. Systematic observations were carried out interpretation of was summarized as ‘being same world without meeting’. Two themes four subthemes emerged from...
In this article, a teleological model for analysis of everyday ethical situations in dementia care is used to analyse and clarify perennial problems nursing home persons with dementia. This done the aim describing how such could be useful concrete context. The was developed by Sandman based on four aspects: goal; side-constraints what can realize structural constraints; nurses' competency. contains following main steps: identifying normative situation; different possible alternatives;...
In order to better understand people in demanding medical situations, an awareness of existential concerns is important. Studies performed over the last twenty years conclude that when dying and death come closer, as case with older who are stricken by infirmity diseases, will fore. However, studies concerning experiences loneliness (EL) sparse and, addition, there no clear definition EL. EL described a complex phenomenon referred condition life, experience, process inner growth. Listening...
The emphasis of palliative care has been to support both patients and their family caregivers, maintain the caregivers' involvement through patient's illness death. This study challenges assumption that people with amyotrophic lateral sclerosis (ALS) those who for them at home have a similar view disease, experience problems needs in same way as professionals. By interviewing ALS close relatives patients, by comparing quotes from interviews, some differences between these two groups are...
Attempted suicide is a risk factor for future suicidal behaviour, but understanding suicidality from the perspective of people who have experienced attempted limited. The aim study was to explore lived experience being and having made attempt, in order identify possible implications health care professionals. Semi-structured individual interviews were held with 10 persons shortly after they analysed through qualitative content analysis. participants' could be described as "Being on road...
As frail older people might have difficulties in expressing themselves, their needs are often interpreted by others, for example, significant whose information health care staff to rely on. This, turn, can put ethically difficult situations, where they choose between alternative courses of action. One aspect that be especially express is existential loneliness. We only sparse knowledge about whether, and what way, the views persons others concerning loneliness concordance.To contrast (>75)...
International research concerning end-of-life issues emphasizes the importance of health care professionals (HCPs) being prepared to deal with existential aspects, like loneliness, in order provide adequate care. The last phase life is often related losses different kinds, which might trigger feelings isolation general and loneliness (EL) particular. There a large body among older people general, but little known about phenomenon concept EL old age.This study aims describe framing, design,...
It is well known that close relatives of terminally ill patients endure great emotional stress. Many factors, such as existential concerns, contribute to the distress these relatives. In this study, interviews were conducted explore experiences concerning life restrictions, distress, and limited support, in a group with amyotrophic lateral sclerosis (ALS). The purpose was identify, illuminate clarify ethical problems related experiences. results indicate ALS need someone talk to, more...
It is well known that patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) experience changes in quality of life. We investigated factors associated with life adult HSCT patients. The Functional Assessment Cancer Therapy - Bone Marrow Transplantation (FACT-BMT) scale, supplemented the Chronic Illness Spiritual Well-being (FACIT-Sp) subscale, was administered on three occasions, immediately before transplantation, 100 days and 12 months after transplantation....
The aim of this paper is to present and discuss nurses' physicians' comments in a questionnaire relating patients' transition from curative treatment palliative care. four-page experiences attitudes towards communication, decision-making, documentation responsibility nurses physicians the competence patients was developed sent random sample 1672 10 specialties. response rate 52% (n = 844), over one-third made comments. respondents differed their about three areas: concept care, unclear...
Existential concerns are of great importance to those who terminally ill. However, these matters seldom brought into focus in the care patients. One crucial question is: should take patient's existential needs? The present study focuses on possible alternatives for dealing with such concerns, including staff or significant others. A group was set up gather and examine reflections from people having first-hand experience this problem. results indicate that, regard needs, there no general...
The aim of this study was to test the feasibility two instruments within an Icelandic context, Brief Symptom Inventory 18 (BSI 18) and Ways Coping – Cancer Version (WOC-CA) with specific focus on gender type treatment coping techniques among cancer patients during time treatment. sample consisted 40 in three oncology outpatient clinics Iceland, 53% were women 47% men. majority participants belonged age group 51–70. Cronbach alpha, means, confidence intervals standard deviations used for...
Important issues in the transition from curative treatment to palliative care are agreement, timing, and decision making. A survey of 309 nurses 415 physicians Sweden showed that 61% 83% thought agreement was current practice. None said decisions were made too early, but 19% 14% they often late. Very few respondents stated such changed, 0% 1%, respectively. More than half informants detailed comments on transitions indicating awareness flexibility desirable make well-informed decisions....