A5000144298- Congenital Heart Disease Studies
- Childhood Cancer Survivors' Quality of Life
- Pulmonary Hypertension Research and Treatments
- Heart Failure Treatment and Management
- Cardiac Arrest and Resuscitation
- Cardiac Structural Anomalies and Repair
- Adolescent and Pediatric Healthcare
- Cardiovascular Effects of Exercise
- Cardiac Imaging and Diagnostics
- Cardiovascular Function and Risk Factors
- Cardiac Health and Mental Health
- Cardiovascular Issues in Pregnancy
- Cerebral Palsy and Movement Disorders
- Resilience and Mental Health
- Cardiac pacing and defibrillation studies
- Congenital heart defects research
- Vascular anomalies and interventions
Texas Children's Hospital
2024
Baylor College of Medicine
2024
C. S. Mott Children's Hospital
2024
University of Michigan
2023-2024
Rady Children's Hospital-San Diego
2020-2023
University of California, San Diego
2021-2023
Abstract The Fontan Outcomes Network was created to improve outcomes for children and adults with single ventricle CHD living circulation. network mission is optimise longevity quality of life by improving physical health, neurodevelopmental outcomes, resilience, emotional health these individuals their families. This manuscript describes the systematic design this new learning network, including initial steps in development a national, lifespan registry, pilot testing data collection forms...
Background Congenital heart disease (CHD) is a life‐long with long‐term consequences on physical and mental health. Patients CHD face multifaceted psychosocial challenges. Resilience an important factor that can be protective positively impact We studied resiliency its associated factors in teenagers young adults without using social media–delivered survey. was measured the 25‐item Connor‐Davidson Scale, validated metric historical mean of 80.4/100 general adult population. Methods Results...
Abstract Background: The study of psychological well-being and related resilient outcomes is increasing focus in cardiovascular research. Despite the critical importance promoting optimal cardiac health, there have been very few interventions directed towards children with heart disease. This paper describes development theoretical framework WE BEAT Wellbeing Education Program, a group-based psychoeducation coping skills training intervention designed to improve resilience adolescents...
Abstract Objective(s): To examine feasibility, acceptability, and preliminary effectiveness of a novel group-based telemedicine psychoeducation programme aimed at supporting psychological well-being among adolescents with Fontan-palliated CHD. Study design: A 5-week (WE BEAT) was developed for ( N = 20; 13–18 years) CHD improving resiliency well-being. Outcome measures included surveys resilience (Connor–Davidson Resilience Scale), benefit finding (Benefit/Burden Scale Children), depression,...
Abstract Background: Emerging evidence suggests that routine physical activity may improve exercise capacity, long-term outcomes, and quality of life in individuals with Fontan circulation. Despite this, it is unclear how active these are what guidance they receive from medical providers regarding activity. The aim this study was to survey patients on personal behaviours their cardiologist-directed recommendations set a baseline for future targeted efforts this. Methods: An electronic...
Abstract Background and Objectives: Despite advances in treatment outcomes for paediatric heart failure, both physical psychosocial comorbidities remain notable among this patient population. We aimed to qualitatively describe the experiences of adolescent young adults with failure their caregivers’ perceptions, specific focus on personal challenges, worries, coping skills, resilience. Methods: Structured, in-depth interviews were performed 16 14 caregivers. Interviews recorded transcribed....
Fontan-associated liver disease is a well-known sequela following the Fontan procedure for patients living with single-ventricle heart disease. Pulmonary vasodilators, such as phosphodiesterase type 5 inhibitors, have emerged potential therapeutic option lowering central venous pressures by reducing pulmonary vascular resistance.We performed single-center retrospective review of who were placed on vasodilator therapy prehemodynamic and posthemodynamic, MR elastography, histologic...
A 4-hour-old infant with profound cyanosis on an alprostadil infusion was urgently transferred to Rady Children's Hospital suspected CHD. Upon arrival, urgent echocardiography performed but could not confirm the presence of discrete pulmonary veins or venous drainage. Given difficulty in delineating anatomy, a cardiac CT scan and demonstrated nearly atretic common vein multiple small collaterals that drained systemic veins. Due high risk mortality associated operative repair, decision made...