A5028068741- Congenital Heart Disease Studies
- Cardiovascular Issues in Pregnancy
- Adolescent Sexual and Reproductive Health
- Child Abuse and Trauma
- Child and Adolescent Health
- Reproductive Health and Contraception
- Community Health and Development
- Sexual Assault and Victimization Studies
- Adolescent and Pediatric Healthcare
- Bone Metabolism and Diseases
- Health Policy Implementation Science
- Connective tissue disorders research
- Pediatric health and respiratory diseases
- Homelessness and Social Issues
- Cardiac pacing and defibrillation studies
- Stroke Rehabilitation and Recovery
- Ethics and Legal Issues in Pediatric Healthcare
- Global Maternal and Child Health
- Migraine and Headache Studies
- Ethics in Clinical Research
- Family and Disability Support Research
- Bone health and treatments
- Biomarkers in Disease Mechanisms
- Healthcare Decision-Making and Restraints
- Food Security and Health in Diverse Populations
Indiana University – Purdue University Indianapolis
2019-2025
Indiana University School of Medicine
2018-2024
Indiana University
2018-2023
University School
2018-2023
Autosomal dominant osteopetrosis (ADO) is a rare genetic disorder resulting from impaired osteoclastic bone resorption. Clinical manifestations frequently include fractures, osteonecrosis (particularly of the jaw or maxilla), osteomyelitis, blindness, and/or marrow failure. ADO usually results heterozygous missense variants in Chloride Channel 7 gene (CLCN7) that cause disease by negative mechanism. Variants T-cell immune regulator 1 (TCIRG1) are commonly identified autosomal recessive but...
Mistrust of health care providers among persons color is a significant barrier to engaging them in research studies. Underrepresentation particularly problematic when the problem under study disproportionately affects minoritized communities. The purpose this was test validity and reliability an abbreviated adapted version Group Based Medical Scale. GBMMS 12-item scale with three subscales that assess suspicion, experiences discrimination, lack support setting. To adapt for use setting, we...
Abstract Context Autosomal dominant osteopetrosis (ADO) is a rare sclerotic bone disease characterized by impaired osteoclast activity, resulting in high mineral density and skeletal fragility. The full phenotype burden on patients’ daily lives has not been systematically measured. Objective We developed an online registry to ascertain population-based data the spectrum rate of progression identify relevant patient-centered outcomes that could be used measure treatment effects guide design...
Abstract Background: Reproductive issues as related to CHD must be discussed in the clinic and at home. Providers can ensure that correct information is imparted adolescent encourage mothers provide support guidance adolescent. The level which these conversations occur unknown. Methods: A survey distributed female adolescent/mother dyads assessed self-reported with healthcare provider between each other about reproductive health topics. clinician was completed assess diagnosis, risk of...
Although rural youth experience marked inequities in adolescent pregnancy, there is little guidance for implementing evidence-based programs (EBPs) settings. When implementation occurs communities, it frequently focuses on deficits, rather than strengths or capacity growth. Using the consolidated framework research (CFIR), we describe a resiliency-focused of two middle school EBPs Midwestern including intervention, outer and inner settings, individuals, processes preliminary outcomes. Data...
This is the brief submitted in S.D. N.Y. on behalf of AMA and other medical associations by Lori Andrews, Amy Katz, Joshua Sarnoff. It addresses ineligibility for patents isolated DNA cDNA, adverse consequences granting such patents.
Background: Reproductive issues as related to congenital heart disease (CHD) such recurrence risk in offspring, safety of hormonal birth control, and pregnancy for mother baby must be discussed the clinic at home. Providers can ensure correct information assist adolescent making informed decisions about reproductive health allow parent provide proper support guidance adolescent. The level which these conversations occur is unknown. Methods: A survey distributed female adolescent/mother dyads...