A5039048161- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Geriatric Care and Nursing Homes
- Patient Dignity and Privacy
- Stroke Rehabilitation and Recovery
- Grief, Bereavement, and Mental Health
- Liver Disease and Transplantation
- Childhood Cancer Survivors' Quality of Life
- Complementary and Alternative Medicine Studies
- Organ Donation and Transplantation
- Ethics in medical practice
- Homelessness and Social Issues
- Patient Satisfaction in Healthcare
- Family Support in Illness
- Dialysis and Renal Disease Management
- Health Systems, Economic Evaluations, Quality of Life
- Patient-Provider Communication in Healthcare
- Mindfulness and Compassion Interventions
- Organ Transplantation Techniques and Outcomes
- Liver Disease Diagnosis and Treatment
- Acute Ischemic Stroke Management
- Music Therapy and Health
- Chronic Disease Management Strategies
- Diabetes Management and Education
- Mental Health and Patient Involvement
KK Women's and Children's Hospital
2025
University College London
2014-2023
Barnet Hospital
2023
Royal Free London NHS Foundation Trust
2008-2023
Marie Curie
2013-2022
Cardiff University
2018
University College Lahore
2017
UCL Australia
2015
The Open University
2014
The Royal Free Hospital
2002-2010
Abstract A prospective validation study was conducted in 171 consenting patients from oncology and palliative care outpatient clinics to validate the Distress Thermometer (DT) against Hospital Anxiety Depression Scale (HADS), General Health Questionnaire‐12 (GHQ‐12) Brief Symptom Inventory‐18 (BSI‐18) at baseline, four weeks eight weeks. Receiver Operating Characteristic analysis used examine sensitivity specificity of DT scores clinically significant cut‐off criterion measures reporting 95%...
To describe the components used in practice of occupational therapy and physiotherapy for people with stroke to examine variability between services.A time-sampling strategy which therapists recorded their face-to-face interventions patients during 12 weeks over a total 17 months.Six seven physiotherapists from four services (three day hospitals one domiciliary rehabilitation service) 89 recruited larger randomized controlled trial.Frequencies use interventions, together other details about...
Background : Most stroke-related studies have consisted of people over the age 65. This study examined unmet needs young with stroke, living in community housing UK. Method People a stroke (>1 year ago), two bands (18-45; 46-65) were sent Southampton Needs Assessment Questionnaire for Stroke. Results 315 out 639 (49%) questionnaires returned (mean 55, SD 9; 189 males, 126 females). The median number reported was (IQR 0-6). most frequently were: provision information about responders' (45%);...
Background: Being homeless or vulnerably housed is associated with death at a young age, frequently related to medical problems complicated by drug alcohol dependence. Homeless people experience high symptom burden the end of life, yet palliative care service use limited. Aim: To explore views and experiences current formerly people, frontline homelessness staff (from hostels, day centres outreach teams) health- social-care providers, regarding challenges supporting advanced ill health, make...
Background. Higher levels of religious involvement are modestly associated with better health, after taking account other influences, such as age, sex and social support. However, little is taken spiritual beliefs that not tied to personal or public practice. Our objective was develop a standardized measure spirituality for use in clinical research. Method. We characterized the core components using narrative data from purposive sample people, some whom were near end their lives. These...
Background: Worldwide, the demand for specialist palliative care is increasing but funding limited. The role of volunteers underresearched, although their contribution reduces costs significantly. Understanding what do vital to ensure services develop appropriately meet challenges faced by providers care. Objective: study's objective describe current involvement with direct patient/family contact in U.K. Design: An online survey was sent 290 adult hospices and involving covering service...
To identify the limitations in palliative care provision last year of life for people with liver cirrhosis and potential barriers to enablers care.Mixed methods, including a retrospective case note review, qualitative focus groups individual interviews.A tertiary referral centre south England (UK).Purposively selected notes 30 who attended died during an 18-month period; purposive sample 22 health professionals participated either or interviews.Data collected from included hospital...
Background: When patients are likely to die in the coming hours or days, families often want prognostic information. Prognostic uncertainty and a lack of end-of-life communication training make these conversations challenging. Aim: The objective this study is understand how clinicians relatives/friends at very end life manage reference time conversations. Design: Conversation analysis audio-recorded between hospice inpatients. Setting/participants: Experienced palliative care imminently...
Abstract Objective To understand the feasibility of recruiting people with advanced cancer into a randomised controlled trial acceptance and commitment therapy (ACT) vs standardised talking control (TC) delivering ACT to this population; explore acceptability outcome measures generate normative data. Methods This was two‐arm trial. Participants were attendees at one three hospice‐based day‐therapy units in London, United Kingdom, who demonstrated low scores on Functional Assessment Cancer...
Collaborating with climate justice practitioners, we conducted a nationally representative survey of U.S. adults (n = 1,011) to measure and explore predictors Americans’ beliefs intentions engage in related behaviors. We find that only about one-third Americans have heard justice, but half support goals once they are explained. Support for is predicted by many factors, including views global warming, perceptions racial injustice, cultural worldviews, demographics identity, gender, political...
Abstract Introduction: Fertility-sparing management is an option for young patients with gynaecological cancers, conferring comparable oncological and favourable reproductive outcomes as standard treatment. With delayed childbearing, the need fertility-sparing treatment demand fertility preservation have increased. We describe development of oncofertility model care at a tertiary hospital, along our experiences. Methods: This was retrospective audit who attended OncoFertility Clinic, KK...
One-third of people with cancer experience psychological distress and may suppress distressing thoughts, emotions, concerns, leading to further problems. Conventional treatments reduce by problem solving, but in advanced cancer, when ill health is progressive death be approaching, physical difficulties are complex have no simple solutions. Acceptance Commitment Therapy encourages acknowledgement acceptance mental experiences, increasing people's ability work problems that cannot solved....
To determine the knowledge and practice patterns of a UK cohort relevant healthcare professionals (HCPs) about delivering palliative care in cirrhosis, to inform priorities for future research.An on-line questionnaire survey with closed open responses.HCPs identified from mailing list special interest groups hepatology gastroenterology (liver), general specialist (SPC) across UK.Of 6181 potential contacts identified, 517 HCPs responded. Most believed role exists SPC caring people but many...
Chronic and life-threatening conditions are widely thought to shatter the lives of those affected. In this article, we examine accounts 19 older people diagnosed with late stage chronic kidney disease who declined dialysis. Accounts were collected through in-depth interview in United Kingdom (March–November, 2010). Drawing on a phenomenological approach, focus particularly embodied lived experience condition how participants constructed treatment modalities approached choice. We look toward...
AbstractPurpose: To examine the met and unmet needs of young people with stroke who accessed services run by Stroke Association. Methods: One hundred thirty-five out 200 members 14 participating Young groups completed returned postal version Southampton Needs Assessment Questionnaire for questionnaire. Results: group had a median five needs. An analysis these showed that information about person's stroke, help finances, assistance non-care activities (e.g. social activities) maintaining...