A5062758955- Craniofacial Disorders and Treatments
- Species Distribution and Climate Change
- Genetic Neurodegenerative Diseases
- Race, Genetics, and Society
- Medical and Biological Sciences
- Social and Educational Sciences
- Animal and Plant Science Education
- Morphological variations and asymmetry
- Insect and Arachnid Ecology and Behavior
- Forensic Anthropology and Bioarchaeology Studies
- Cleft Lip and Palate Research
- Biotechnology and Related Fields
- European and International Law Studies
- Digital Games and Media
- BRCA gene mutations in cancer
- Education, Healthcare and Sociology Research
- Image Retrieval and Classification Techniques
- Postmodernism in Literature and Education
- Innovative Human-Technology Interaction
- Neonatal Respiratory Health Research
- Children's Rights and Participation
- Neuroethics, Human Enhancement, Biomedical Innovations
- Environmental law and policy
- Science Education and Perceptions
- Wikis in Education and Collaboration
University of Gothenburg
2017-2024
Heidelberg University
2021-2024
German Center for Lung Research
2024
University Hospital Heidelberg
2021-2023
University of Oslo
2021
Institute of Ethnology
2009-2016
Lund University
2010-2013
Eilenburger Elektrolyse - und Umwelttechnik (Germany)
1923
This paper focuses on how particularities are performed and made to travel through the creation of trust. The Swedish Species Observation System (Artportalen) is one largest inscription calculation centers for citizen data in world, used extensively by public authorities Sweden. Observations members become actionable environmental governance laws These observations networks things humans which trust created but unevenly distributed. Important them be trusted such as computer software filter...
Abstract Biological recording is a prominent and widely practised form of citizen science, but few studies explore long-term demographic trends in participation knowledge production. We studied age gender participants reporting to large online science multi-taxon biodiversity platform ( www.artportalen.se ). Adoption by user communities continually developing Information Communications Technologies (ICTs) greatly increased the number data, profound imbalances contribution across species...
This article investigates user roles in virtual citizen science projects through a case study of the Talk-forum Shakespeare's World, humanities project on Zooniverse platform. To address collective knowledge production, we use hashtags, pinging, and linking as way differentiating how researchers, moderators, different groups forum according to their roles. We show both volunteers researchers have much deeper interest texts that they transcribe actively seek contextual information, shape new...
The purpose of this article is to explore the intersections between genes, body and lived experience a genetic disease. This based on empirical material from study how individuals affected by Huntington’s disease their everyday life. identified two themes that represent capture individuals. are (1) noticing symptoms in life (2) neither health nor analysis was performed employing theoretical framework phenomenology. findings showed experiences among were both fluid dynamic nature....
In 2021 Sweden’s first national portal for citizen science will be launched to help researchers practice sustainable and responsible with different societal stakeholders. This paper present findings from two surveys on attitudes experiences of among at Swedish universities. Both provided input the development portal, which are a key stakeholder group. The survey (n=636) was exclusively focused involved other personnel University Agricultural Science (SLU). 63% respondents SLU had heard about...
The concept of boundary work (Gieryn 1983, 1999) has been developed to capture theways in which scientists collectively defend and demarcate their intellectual territories.This article applies the ethical realm investigates theethical performed by researchers field citizen science (CS) througha literature review analysing accounts ethics presented CS literature.Results show that is, a large extent, matterof managing ambiguities paradoxes without any clear boundaries drawn between...
There is an increasing international trend in environmental activism to use legal institutions and infrastructures for citizen science (CS) affect policy regulation. However, knowledge about observations produced activist CS their functions at courts scarce. To address this, we analyze how (COs) reported established infrastructure assist producing obligations. Sweden provides exemplary case due the integration between biodiversity infrastructures, regulation, number of conflicts. Data was...
Introduction Segmentation of lung structures in medical imaging is crucial for the application automated post-processing steps on diseases like cystic fibrosis (CF). Recently, machine learning methods, particularly neural networks, have demonstrated remarkable improvements, often outperforming conventional segmentation methods. Nonetheless, challenges still remain when attempting to segment various modalities and diseases, especially visual characteristics pathologic findings significantly...
The purpose of this paper is to investigate online public participation and engagement in science through crowdsourcing platforms. In order fulfil purpose, will use the platform Zooniverse as a case study, it constitutes most prominent established citizen today. point departure for analysis that can be seen “platformization” scientific citizenship. suggests mobilisation individuals who participate engage on takes place an epistemic culture emphasises both authenticity prospects novel...
The aim of this article is to perform a cultural analysis the effects and implications predictive genetic testing for individuals who have undergone Huntington's disease (HD). Moreover, aims relate these tests current initiatives that advocate large-scale incorporation genetics genomics into mainstream health care. abstract elusive character our genes found generate liminal space wherein affected are situated between normality abnormality. This juxtaposition classifications in turn...
Introduction Photogrammetric surface scans provide a radiation-free option to assess and classify craniosynostosis. Due the low prevalence of craniosynostosis high patient restrictions, clinical data are rare. Synthetic could support or even replace for classification craniosynostosis, but this has never been studied systematically. Methods We tested combinations three different synthetic sources: statistical shape model (SSM), generative adversarial network (GAN), image-based principal...
Modernity has meant a cultural and social differentiation within the western society, which, according to Jürgen Habermas’ theory on communication, can be seen as division between different forms of actions that takes place in realms society. By combining notions lifeworld system with Arthur Frank’s analysis stories way experience illness, article performs meeting families involved caregiving relation Huntington’s disease Swedish welfare system. The ethnographic material shows how is given...
A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting same issues, was initiated by Cultural Scientific Research Team BAGADILICO. The latter is an international biomedical research environment neurological disease at Lund University. data two studies crystallized through analysis into themes around which informants’ personal negotiations opinions emotions relation to topic...
The assessment of craniofacial deformities requires patient data which is sparsely available. Statistical shape models provide realistic and synthetic enabling comparisons existing methods on a common dataset. We build the first publicly available statistical 3D head model craniosynostosis patients focusing infants younger than 1.5 years. further present shape-model-based classification pipeline to distinguish between three different classes control group photogrammetric surface scans. To...
<h3>Background</h3> Apart from the biological aspects of Huntington9s disease (HD), HD can also be understood in terms cultural and social frameworks which shape lived experience among affected individuals. <h3>Aims</h3> The aim this interdisciplinary study between medical sciences was to increase understanding how factors <h3>Methods</h3> Semi-structured in-depth interviews were conducted with individuals by (n=10), using qualitative ethnographic methods. Key-features participants9...