A5022145312- Family and Patient Care in Intensive Care Units
- Childhood Cancer Survivors' Quality of Life
- Intensive Care Unit Cognitive Disorders
- Adolescent and Pediatric Healthcare
- Climate Change and Health Impacts
- Social and Educational Sciences
- Pediatric Pain Management Techniques
- Health, psychology, and well-being
- Infant Development and Preterm Care
- Family and Disability Support Research
- Children's Rights and Participation
- Geriatric Care and Nursing Homes
- Environmental Education and Sustainability
- Frailty in Older Adults
- COVID-19 and Mental Health
- Respiratory Support and Mechanisms
- Research in Social Sciences
University of Borås
2016-2025
Lund University
2023-2024
Purpose Children living with respiratory support rely on medical technology, either fully or partially, throughout the day to meet their breathing requirements. Although children and young people at home undergo long-term treatments make extensive use of health social care services, there is a notable absence comprehensive outcome data this group. The establishment first nationwide Course DISease reported Swedish CPAP Oxygen VEntilator RegistrY paediatrics cohort aims investigate disease...
Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim this study was to explore everyday life experiences young people living ventilation (HMV). Data were obtained through interviews nine participants. supported by photovoice methodology: photographs taken participants before during used facilitate conversation....
Abstract Aim Children requiring home mechanical ventilation (HMV) have grown in number and complexity. Parents of children with HMV are often responsible for the advanced homecare. This study explored health‐related quality life (HRQoL), family functioning sleep parents HMV. A secondary aim was to explore impact on HRQoL, selected potential determinants. Methods Questionnaires were completed by 45 mothers 40 fathers, 55 receiving identified via respiratory clinics Swedish national register...
Aim The aim of this study was to describe personal care assistants' ( PCA ) experiences working with a ventilator‐assisted person at home. Methods Data were collected from fifteen audiotaped semistructured interviews PCAs supporting child or adult using home mechanical ventilation (HMV). Thirteen women and two men participated; their experience HMV users ranged one 17 years (median 6 years). subjected qualitative content analysis in an inductive interpretive manner. Findings Five categories...
Background: Children are a relatively marginalized group when doing research in the context of illness, young children particularly so. This even though can and should contribute their point view providing evidence-based care. article contributes experiences Nurse Researchers gathering data Sweden on lived undergoing needle-related medical procedures, living with home mechanical ventilation or treatment for cancer. Methods: Nine published articles from four unique Swedish PhD dissertations...
Over the past few decades, there has been an increase in number of children receiving home mechanical ventilation (HMV), and many ways, families have taken responsibility for required advanced homecare, which placed considerable time demands on family unit. Little is known about life situation siblings HMV-assisted children; their own voices insider perspective are missing. The aim this study was to illuminate everyday experiences children. Data were obtained via interviews with 10 a median...
An increasing number of children and young adults with complex medical conditions respiratory failure are treated home mechanical ventilation (HMV). The current study aimed to describe how using HMV experience their everyday life the ventilator, physical impairments opportunities for an educational professional career.
This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood adulthood in relation everyday life, perceived health and into adult professional healthcare.