A5063786648- Health and Wellbeing Research
- Congenital Heart Disease Studies
- Glycogen Storage Diseases and Myoclonus
- Trypanosoma species research and implications
- Retirement, Disability, and Employment
- Lysosomal Storage Disorders Research
Chang Gung Memorial Hospital
2015-2025
Congenital heart disease (CHD), a severe cardiac defect in children, has unclear influences on young patients. We aimed to find the impacts of differently structure defects and various treatments psychology health-related quality life (HRQoL) CHD children adolescents. patients aged between 6 18 years old visited our hospital from 1 May 2018 31 September 2018, their principal caregivers were asked participate. used two validated questionnaires, Children Depression Inventory-TW (CDI-TW) Child...
This is a descriptive analysis of cohort 59 Taiwanese patients with Fabry disease and either classical or cardiac variant IVS4+919G>A (IVS4) mutations from registry, the Outcome Survey (FOS; sponsored by Shire). Most our were symptomatic identified upon seeking medical advice at clinics, whereas most IVS4 attended clinics after newborn screening this mutation in their grandsons. The objective was to determine differences manifestations between comparing age onset selected symptoms. Data...