Abstract Background Early engagement in advance care planning ( ACP ) is seen as fundamental for ensuring the highest standard of children and young people with a life‐limiting condition LLC ). However, most families have little knowledge or experience . Objective To investigate how parents s approach Methods Open‐ended, semi‐structured interviews were conducted 18 children; nine who currently receiving palliative services, had received died. Verbatim transcripts audiotaped analysed...

Children and young people (CYP) with learning disabilities (LD) are a vulnerable population increased risk of abuse accidental injury whose parents have reported concerns about the quality, safety accessibility their hospital care. The Care Quality Commission's (CQC) view best practice for this group patients includes: access to senior LD nurse provision; clearly visible flagging system identifying them; use passports; defined communication strategies (Glasper, Comp Child Adolesc Nurs...

Abstract Background Children and young people with learning disabilities experience poor health outcomes lengthier hospital admissions than those without disabilities. No consistently applied, systematic approach exists across the NHS to identify record this population. This paper describes practices in English hospitals children Method Interviews : 65 staff. Questionnaire 2,261 Conducted 24 England. Results standardized or a disability for information be recorded, communicated relevant...

Managing diagnostic uncertainty is a major challenge in primary care due to factors such as the absence of definitive tests, variable symptom presentations and disease evolution. Maintaining patient trust during period investigative uncertainty, whilst minimising scope for error challenge. Mismanagement can lead errors, treatment delays, suboptimal outcomes.

In response to multiple United Kingdom investigations and inquiries into the care of adults with learning disabilities, Mencap produced Getting it Right Charter which campaigned for appointment a Learning Disability Liaison Nurse in every hospital. More recent best practice guidelines from Care Quality Commission included need all children's units have access senior disability nurse who can support staff help them manage difficult situations. However, little evidence exists extent provision...

Abstract Background Previous studies have found that parents of children with cancer desire more prognostic information than is often given even when prognosis poor. We explored in audio‐recorded consultations the kinds they seek. Methods Ethnographic study including observation and audio recording at diagnosis. Consultations were transcribed analyzed using an interactionist perspective tools drawn from conversation discourse analysis. Results Enrolled 21 12 clinicians 13 cases diagnosed a...

Background To our knowledge, there has yet to be a comprehensive review of how well hospital services are meeting the needs children and young people (hereafter referred as children) with learning disability their families. The extent which experiences differ from those parents without is not known. views almost non-existent in literature. Aims identify cross-organisational, organisational individual factors NHS hospitals that facilitate prevent families receiving equal access high-quality...

Abstract Background Low levels of cancer awareness may contribute to delays in seeking medical help and subsequent diagnosis. For blood this be a particularly prominent problem due the high prevalence undifferentiated symptoms such as bodily pain, weakness, nausea weight loss, resulting low symptom awareness. The delay is exacerbated by dismissal similar which are often interpreted mild disease, multiple consultations prior This study describes development Cancer Awareness Measure for Blood...

Abstract Objective Approaches to improve earlier diagnosis of cancer often focus on symptom awareness as a key driver help‐seeking behaviour and other psychological influences are less well understood. This is the first study explore role patient enablement for people experiencing potential blood symptoms. Methods A cross‐sectional, nationally representative survey was completed by 434 respondents (>18 years). Questions asked about experiences, medical re‐consultation. Existing items were...

Abstract Background Low levels of cancer awareness may contribute to delays in seeking medical help and subsequent diagnosis. For blood this be a particularly prominent problem due the high prevalence undifferentiated symptoms such as bodily pain, weakness, nausea weight loss, resulting low symptom awareness. The delay is exacerbated by dismissal similar which are often interpreted mild disease, multiple consultations prior This study describes development Cancer Awareness Measure for Blood...

<title>Abstract</title> <bold>Background</bold> Managing diagnostic uncertainty is a major challenge in primary care due to factors such as the absence of definitive tests, variable symptom presentations and disease evolution. Maintaining patient trust during period investigative uncertainty, whilst minimising scope for error challenge. Mismanagement can lead errors, treatment delays, suboptimal outcomes. <bold>Objective</bold> Our aim was explore how UK physicians (GPs) address communicate...

Background The UK’s National Institute for Health and Care Excellence (NICE) advises GPs to inform patients referred the Urgent Suspected Cancer (USC) pathway about their impending service expectations. However, little is known patient experiences information needs post-referral. often grapple with conveying urgency of referrals while offering reassurance. Aim This study explores GP communication regarding cancer USC referrals. Method A secondary analysis 23 audio-recorded GP-patient...

Abstract Background Non‐invasive ventilation (NIV) for sleep‐disordered breathing (SDB) in children and young people (CYP) can result multiple health outcomes; however, adherence to NIV be challenging. Suboptimally treated SDB may increase the risk of adverse consequences. Placing children's parents' goals at core their treatment support NIV. To identify these outcomes, it is necessary gain a greater understanding CYP's experiences using NIV, whether they perceive any benefits from use, as...

Background The UK National Institute for Health and Care (NICE) recommends that GPs inform patients referred onto the Urgent Suspected Cancer (USC) pathway about what to expect from service. However, there is a lack of evidence on patient experience information needs at point referral. It challenge communicate reasons referral provide reassurance. Aim This study aimed examine how potential cancer diagnosis USC in practice. Design &amp; setting secondary analysis dataset 23 audio-recorded...

Non-invasive ventilation (NIV) is a known effective and safe treatment for children young people with sleep disordered breathing (SDB). Adherence can be challenging poor adherence risks undertreatment of SDB. While the risk factors non-adherence have been widely reported, very few interventions tested in any capacity to address barriers adherence. We will conduct mixed methods study over three phases. The aim identify components toolkit some NIV usage who test these their feasibility...

There is limited qualitative research focussed specifically on what it like for children and young people with intellectual disabilities coming into hospital, much of the evidence-base being about those Autism Spectrum Condition or adults disabilities.To share rich detail emotional physical impact attending from their own parent's perspective.Talking Mats interviews, sticker survey photography disabilities, in-depth hospital diaries parents.The multiple compounding layers complexity...

<h3>Background</h3> There has yet to be a comprehensive review of how well the needs children and young people (CYP) with Learning Disabilities (LD) are met when accessing hospital services. Hence, we do not know whether existing recommendations, generated in response evidence poor experiences outcomes for adults LD, <i>can</i> <i>should</i> applied CYP, what extent they <i>are</i> being if so, <i>difference</i> making. The aim Phase 1 Pay More Attention study was map at organisational...

The Society for Acute Medicine launched their ultrasound accreditation in September 2016, involving a practical course alongside completion of scanning competencies. Candidates require registered supervisor to oversee training. We present here the results survey attendees courses approximately 2 years after launch. majority respondents were Consultants or trainees within AIM. Fourteen 76 (18.4%) had completed whole process, whilst 51 (67.1%) not any three individual modules. biggest barriers...

<h3>Background</h3> The COVID-19 pandemic, the GOSH hospital construction programme and industrial action in 2023 have changed aspects of care for children treated sleep disordered breathing (SDB) using non-invasive ventilation (NIV). This patient population continues to increase, supported by a hospital-based specialist NIV team has wide range clinical conditions, high levels co-morbidities medical complexity. paper presents findings from two studies asking parents about their child's care:...