A5076369361- Dutch Social and Cultural Studies
- Family and Disability Support Research
- Disability Rights and Representation
- Healthcare innovation and challenges
- Down syndrome and intellectual disability research
- Disability Education and Employment
- Children's Rights and Participation
- Collaborative Teaching and Inclusion
- Education in Diverse Contexts
- Mental Health and Patient Involvement
- Child and Adolescent Health
- Chronic Disease Management Strategies
- Educational Practices and Policies
- Hearing Impairment and Communication
- Inclusion and Disability in Education and Sport
- Foucault, Power, and Ethics
- Cerebral Palsy and Movement Disorders
- Teacher Education and Leadership Studies
- Family Support in Illness
- Educational and Psychological Assessments
- Participatory Visual Research Methods
- Occupational Therapy Practice and Research
- Posthumanist Ethics and Activism
- Autism Spectrum Disorder Research
- Adolescent and Pediatric Healthcare
Ghent University Hospital
2014-2024
Ghent University
2015-2024
Amsterdam UMC Location Vrije Universiteit Amsterdam
2018-2019
University of Malta
2018
Tilburg University
2018
Trinity College Dublin
2018
University of Vienna
2018
Curtin University
2018
University of Amsterdam
2018
Makerere University
2016
Background POMONA II was a European Commission public health-funded project. The research questions in this article focus on age-specific differences relating to environmental and lifestyle factors, the 17 medical conditions measured by Checklist of Health Indicators (P15).Method P15 completed cross-sectional design for stratified sample 1,253 adults with ID across 14 member states.Results Older people (55+) were more likely live larger residential homes. Rates smoking use alcohol lower than...
To understand the impact of COVID-19 public health response on families children with disabilities in Central Uganda we conducted phone interviews parents and during first 5 months outbreak (March - July 2020). Most were well informed about keen to adhere government prevention measures. The majority said lock-down measures had a negative effect their mental physical health, social life, finances, education food security. Access medical services medication for chronic illness been limited or...
Abstract Background During the COVID‐19 outbreak, service providers in Netherlands had to switch towards providing remote support for people with intellectual disabilities living independently. This study aims provide insight into use of online during outbreak. Methods We analysed quantitative data on planned and unplanned contacts between DigiContact its users. Results The results indicate that outbreak related containment measures a strong impact use, specifically support. Conclusion...
Abstract Quality of life scores obtained from self‐reports might not be the same as those a family member or direct support staff. The purpose two studies reported in this article was to evaluate further impact on quality self‐report vs. proxy ratings. Personal Outcomes Scale administered persons with an intellectual disability. version, well observation administered. In use form, staff and members acted respondents. Study 1, which evaluated consistency between data using respondents, found...
Abstract With inclusive research being an emerging field of interest, there is growing recognition that establishing collaborative relationships between researchers with and without ID entails specific demands. However, since studies on collaboration in merely provide individual reports experiences challenges one particular project, building a shared knowledge base concrete competencies considered important for those involved merits attention. This study contributes to asking people...
Abstract Background Studies from the UK have shown that children with Down syndrome acquire more academic skills in regular education. Does this likewise hold true for Dutch situation, even after effect of selective placement has been taken into account? Method In 2006, an extensive questionnaire was sent to 160 parents (specially and regularly placed) (born 1993–2000) primary education Netherlands a response rate 76%. Questions were related child's school history, non‐academic skills,...
Even though supports are a major part of the daily lives children with special educational needs who participate in general education schools, little attention has been paid to how experience supports. Six and their peers were interviewed appreciated because they remove restrictions activities due impairment. However, experiences also show these positive can have negative psycho‐emotional repercussions, less focused on addressing disabling barriers. The children's accounts demonstrate...
Abstract Background Despite progress in the process of deinstitutionalisation, very little is known about health conditions people with intellectual disability (PWID) who live large institutions and PWID living small residential services, family homes or independent within community. Furthermore, there are no international comparison studies at European level status risk factors fully staffed services formal support care compared those unstaffed houses support. Methods A total 1269 persons...
Abstract Background This article reports on the results of a study conducted in Belgium family quality life situated within larger project focusing development support strategies for young and adolescent siblings persons with intellectual disabilities. The objectives this are twofold: (1) to present measures contained nine domains Family Quality Life Survey‐2006 ( FQOLS‐2006 ) from perspective parents quantitative analysis); (2) come more in‐depth understanding two important by exploring...
Background The Netherlands are lacking reliable empirical data in relation to the development of birth and population prevalence Down syndrome. For UK Ireland there more historical available. A theory-based model is developed for predicting syndrome from 1950s onwards. It likewise applied purpose validation. Furthermore, a prediction 2050 constructed. Materials Methods Maternal age births general population, maternal related risk syndrome, on selective terminations pregnancies mortality...
It is suggested that participation should be achieved at the end of rehabilitation process. However, there a lack consensus on definition, conceptualization and measurement participation. This study aims to add existing body knowledge by exploring 'person perceived participation' in individuals with spinal cord injury (SCI). On basis 'grounded theory' approach, in-depth, semistructured interviews were conducted 11 SCI patients from cohort their transition period hospital home, gain an...
When early testing indicates a hearing loss, parents find themselves on roller-coaster of experiences leaving little time or space for reflection. This study is based interviews with families in the Flemish region Belgium, one earliest world to introduce universal neonatal screening loss. Starting from phenomenological approach, we explore parents' accounts their order uncover meanings parenting child identified label. Soon after birth, these encounter different which intertwined discourses...
The Netherlands are lacking reliable national empirical data in relation to the development of birth prevalence Down syndrome. Our study aims at assessing valid live rates for period 1986-2007.On basis annual child/adult ratio syndrome diagnoses five out eight Dutch cytogenetic centres, figures National Cytogenetic Network on total numbers postnatal were transformed into newborn children only. In combination with Working Group Prenatal Diagnostics and Therapeutics pregnancies not aborted...
The first information parents receive after referral through Universal Newborn Hearing Screening (UNHS) has significant consequences for later care-related decisions they take and thus the future of child with a hearing loss. In this study, 11 interviews were conducted representative sample Flemish service providers to discover (a) content provided (b) providers’ assumptions beliefs concerning deafness care. To do this, we an interpretative phenomenological analysis, followed by discourse...