A5051344157- Economic and Financial Impacts of Cancer
- Health Systems, Economic Evaluations, Quality of Life
- COVID-19 and healthcare impacts
- Childhood Cancer Survivors' Quality of Life
- Cancer survivorship and care
- Ethics in Clinical Research
- Adolescent and Pediatric Healthcare
- Global Cancer Incidence and Screening
- Multiple and Secondary Primary Cancers
- Vaccine Coverage and Hesitancy
- Healthcare Policy and Management
- Healthcare cost, quality, practices
- Food Security and Health in Diverse Populations
- Primary Care and Health Outcomes
- Electronic Health Records Systems
- SARS-CoV-2 and COVID-19 Research
- Palliative Care and End-of-Life Issues
- Mobile Health and mHealth Applications
- Healthcare Systems and Technology
- Theatre and Performance Studies
- Radiation Therapy and Dosimetry
- COVID-19 epidemiological studies
- Patient Dignity and Privacy
- Patient-Provider Communication in Healthcare
- Myasthenia Gravis and Thymoma
Patient Advocate Foundation
2017-2025
University of Michigan
2021
Wake Forest University
2021
Research Advocacy Network
2021
Overton Brooks VA Medical Center
2021
Universidad de Londres
2020
University of Warwick
2020
Royal Central School of Speech and Drama
2020
Centre for Social Justice
2020
University of Ulster
2020
Few studies have reported on interventions to alleviate financial toxicity in patients with cancer. We developed a navigation program collaboration our partners, Consumer Education and Training Services (CENTS) Patient Advocate Foundation (PAF), improve patient knowledge about treatment costs, provide counseling, help manage out-of-pocket expenses. conducted pilot study assess the feasibility impact of this program.Patients cancer received education course followed by monthly contact CENTS...
Few studies have engaged patients and caregivers in interventions to alleviate financial hardship. We collaborated with Consumer Education Training Services (CENTS), Patient Advocate Foundation (PAF), Family Reach (FR) assess the feasibility of enrolling patient-caregiver dyads a program that provides counseling, insurance navigation, assistance medical cost living expenses.Patients solid tumors aged ≥18 years their primary caregiver received education video, monthly contact CENTS counselor...
Given the high risk of COVID-19 mortality, patients with cancer may be vulnerable to fear COVID-19, adverse psychological outcomes, and health care delays.This longitudinal study surveyed pandemic's impact on (N= 1529) receiving Patient Advocate Foundation services during early later pandemic. Generalized estimating equation repeated measures was conducted assess effect distress. Logistic regression used any delays in accessing (e.g., specialty doctors, laboratory, or diagnostic testing,...
Background: Primary data collection is a critical activity in clinical research. Even with significant advances technical capabilities, clear benefits of use, and even user preferences for using electronic systems collecting primary data, paper-based still common research settings. However, recent developments both tablet computer technology, the comparative advantages disadvantages methods should be determined. Objective: To describe case studies multiple collection, including...
Abstract Purpose Many cancer patients and caregivers experience financial hardship, leading to poor outcomes. Gastric gastroesophageal junction (GEJ) are particularly at risk for hardship given the intensity of treatment. This pilot randomized study among gastric/GEJ tested a proactive navigation (FN) intervention obtain signal efficacy inform larger, more rigorous study. Methods We 3-month FN compared usual care. Caregiver participation was optional. The primary endpoint incidence defined...
Abstract Background Given excellent survival outcomes in breast cancer, there is interest de‐escalating the amount of chemotherapy delivered to patients. This approach may be even greater importance setting COVID‐19 pandemic. Methods concurrent mixed methods study included (1) interviews with patients and patient advocates (2) a cross‐sectional survey women cancer served by charitable nonprofit organization. Questions evaluated de‐escalation trial participation, perceived...
PURPOSE Over the course of COVID-19 pandemic, Food and Drug Administration allowed cancer clinical trials to make modifications. As policymakers consider sustaining these modifications, understanding patient perspectives on impact is critical. METHODS This cross-sectional study used survey data collected between August 2021 September by Translational Breast Cancer Research Consortium December 2022 Patient Advocate Foundation among female breast survivors. Respondents reported how changes...
Cancer-related employment disruption contributes to financial toxicity and associated clinical outcomes through income loss changes in health insurance may not be uniformly experienced. We examined racial/ethnic differences the consequences of disruption.We surveyed a national sample cancer patients employed at diagnosis who had received assistance from nonprofit about impact treatment on employment. used logistic regression models examine coverage.Of 619 included, 63% identified as...
Uninsured or underinsured individuals with cancer are likely to experience financial hardship, including forgoing healthcare non-healthcare needs such as food, housing, utilities. This study evaluates the association between health insurance coverage and hardship among survivors during COVID-19 pandemic. cross-sectional analysis used Patient Advocate Foundation (PAF) survey data from May July 2020. Cancer who previously received case management aid PAF self-reported challenges paying for...
Background Cancer-related financial hardship is associated with negative clinical outcomes, which may be partially explained by cost-related delayed or forgone care in response to barriers. We sought understand patient experiences facing barriers medical following a cancer diagnosis. Methods conducted virtual, semi-structured interviews Fall 2022 20 adults history of who had experienced cancer-related the prior year. used template analysis within pragmatic paradigm, combining constructivist...
The objective of the current study was to understand treatment preferences and their association with financial toxicity in Patient Advocate Foundation clients breast cancer.This choice-based conjoint analysis used data from a nationwide sample women cancer who received assistance Foundation. Choice sets created 13 attributes 3 levels each elicited patient trade-offs. Latent class segmented respondents into distinct preference archetypes. Comprehensive Score for Financial Toxicity (COST)...
Objective: Precision medicine is revolutionizing cancer treatment. However, there has been limited investigation of barriers patients endure to access precision medicine. This study aims report the experiences underserved patient populations with genomic testing, clinical trials, and treatment.Methods: A mixed-method was employed quantitatively evaluate (N=300) seeking medicine between January 2014- August 2017. Qualitatively, we conducted semi-structured interviews eight case managers...
Abstract Background Though financial hardship is a well‐documented adverse effect of standard‐of‐care cancer treatment, little known about out‐of‐pocket costs and their impact on patients participating in clinical trials. This study explored the effects trial participation. Methods cross‐sectional analysis used survey data collected December 2022 May 2023 from individuals with previously served by Patient Advocate Foundation, nonprofit organization providing social needs navigation...
Despite the use of interventions (e.g., monetary incentives, educational campaigns, on-site workplace vaccination) to increase COVID-19 vaccination, differences in uptake persist by poverty level, insurance status, geography, race, and ethnicity, suggesting that these may not be adequately addressing barriers faced populations. Among a sample resource-limited individuals with chronic illnesses, we (1) described prevalence different types vaccination (2) identified associations between...
OBJECTIVES: We aimed to describe 17 months of experience with household recruitment live births for the National Children's Study in Queens, a highly urban, diverse borough New York City (NYC), and assess predictors success. METHODS: Recruitment data (enumeration, pregnancy screening age-eligible women, identification pregnancies, consent) period January 2009 through May 2010 were calculated. Geographic information systems used create 11 community-level variables each 18 study segments where...
Next-generation tablets (iPads and Android tablets) may potentially improve the collection management of clinical research data. The widespread adoption tablets, coupled with decreased software hardware costs, has led to increased consideration for primary data collection. When using Washington Heights/Inwood Infrastructure Comparative Effectiveness Research (WICER) project, we found that devices give rise inherent security issues associated potential use cloud-based storage approaches. This...
Purpose Healthcare discrimination has been associated with health disparities including lower cancer screenings, higher medical mistrust, and strained patient-provider relationships. Our study sought to understand patient-reported among survivors limited resources living in the United States.Design methods We used cross-sectional survey data distributed by Patient Advocate Foundation (PAF) 12/2020 07/2021. Respondents reported source reason of healthcare discrimination. Age, sex, race...
148 Background: The World Health Organization cited vaccine hesitancy as one of 2019’s top ten threats to global health, a threat that has been further exacerbated by COVID-19 pandemic. Existing research focuses on the general population, but less is known about specific concerns medically vulnerable populations, including individuals with cancer. Methods: This cross-sectional analysis used data assessed likelihood vaccination (likely vs unlikely/unsure) among past or current patients cancer...
Patient-level characteristics associated with the prevalence and severity of financial anxiety have yet to be described. We conducted a cross-sectional analysis survey data assessing in patients chronic medical conditions December 2020. 1771 (42.6% response rate) participated survey. Younger age (19-35 compared ≥ 75 age) (β, 5.86; 95% CI 2.10-9.63), male sex - 1.9; 3.1 0.73), Hispanic/Latino race/ethnicity (compared White patients) 2.55; 0.39-4.71), household size 4 (compare single...
281 Background: Adolescents and young adult (AYAs, defined by the NCI as aged 15-39) cancer survivors experience high rates of financial toxicity, risk for severity toxicity are associated with unmet health-related social needs (HRSN: e.g., difficulty affording housing, food, transportation, insurance). Financial navigation may be an effective intervention to reduce improve health outcomes. We have adapted AYA- caregiver-informed burden among English- Spanish-speaking AYAs on active...