A5107185594- Autism Spectrum Disorder Research
- Family and Disability Support Research
- Family Support in Illness
Indiana University School of Medicine
2024
Franciscan Health Indianapolis
2024
Indiana University – Purdue University Indianapolis
2024
One of the roles a genetic counselor, when returning test results for Parkinson's disease (PD), is to provide emotional support patient. However, whether or not these needs are being met in counseling setting unknown. In this cross-sectional qualitative study, semi-structured interviews with 15 PD research participants were conducted evaluate their and expectations throughout process. Interview questions assessed participants' background understanding counseling, informational prior session,...