A5101379688- Inflammatory Bowel Disease
- Microscopic Colitis
- Adolescent and Pediatric Healthcare
- Systemic Sclerosis and Related Diseases
- Cardiac Health and Mental Health
- Atherosclerosis and Cardiovascular Diseases
- Appendicitis Diagnosis and Management
- Diverticular Disease and Complications
University of Lisbon
2024-2025
Inflammatory bowel disease (IBD) may adversely affect physical, psychological, and social well-being. Integrating patient-reported outcomes (PROs) into clinical practice is crucial for comprehensive management. To evaluate the responsiveness utility of Patient-Reported Outcomes Measurement Information System (PROMIS) instruments, compared with standard assessment tools in pediatric CD patients. A longitudinal, prospective study 31 Crohn's (CD) patients aged 8-17 years recruited from a...
This study aims to evaluate and compare the perspectives of pediatric Crohn's disease (CD) patients their parents/caregivers concerning global physical, emotional, social health as well health-related quality life (HRQQL), using both Patient-Reported Outcomes Measurement Information System (PROMIS) IMPACT III questionnaire. In a cross-sectional study, 31 dyads CD (aged 8-17 years) were recruited from an outpatient Pediatric Gastroenterology Center. Participants completed PROMIS (Global...
The Health Economics of Allergic Diseases (HEAD) registry is a European-based developed by the European Academy Allergy and Clinical Immunology in collaboration with national allergy societies to facilitate standardised allergic disease management. Using an observational design, this first registry-based study describes care patterns for diseases their impact on healthcare system (diagnostic management costs), society (missed work/school days disability pension/support) patients...
This study evaluated the clinical utility of Patient-Reported Outcomes Measurement Information System (PROMIS
<title>Abstract</title> <bold>Objectives: </bold>This study evaluates the clinical utility of Patient-Reported Outcomes Measurement Information System (PROMIS®) by comparing it with objective data and validated health-related quality life (HRQOL) measures in pediatric Crohn’s disease (CD) patients. <bold>Study Design: </bold>Cross-sectional study. Pediatric CD patients (aged 8-17 years) were enrolled prospectively over eight months from an outpatient gastroenterology center. We assessed...