A5035508447- Family Support in Illness
- Palliative Care and End-of-Life Issues
- Cancer survivorship and care
- Intergenerational Family Dynamics and Caregiving
- Family and Disability Support Research
- Childhood Cancer Survivors' Quality of Life
- Interprofessional Education and Collaboration
- Brain Metastases and Treatment
- Evaluation of Teaching Practices
- Social and Demographic Issues in Germany
- Innovations in Medical Education
- Cancer-related cognitive impairment studies
- Glioma Diagnosis and Treatment
- Radiology practices and education
- Child Welfare and Adoption
- Health Systems, Economic Evaluations, Quality of Life
- Resilience and Mental Health
University of Nebraska Medical Center
2022-2025
Nebraska Medical Center
2022-2024
University of Alabama at Birmingham
2019-2021
Family caregivers provide the majority of health care to 18 million patients with cancer in US. Yet despite providing complex medical and nursing care, a large proportion report no formal support or training. In recognition this gap, many interventions have been developed tested over past 2 decades. However, there are few system-level data on whether US centers adopted implemented these interventions.To describe characterize availability family caregiver programs centers.This cross-sectional...
Patients newly-diagnosed with advanced cancer often rely on family caregivers to provide daily support manage healthcare needs and maintain quality of life. Early telehealth palliative care has been shown effectively an extra layer caregivers, however there little work underserved populations, especially African-Americans rural-dwellers. This is concerning given the lack access for these groups.
Utilizing the KIDSCREEN-27 measure, this study provides data on health-related quality of life (HRQOL) in children and youth ('young carers') who provide care to persons living with amyotrophic lateral sclerosis/motor neuron disease (ALS/MND), both South Africa United States (U.S.). Recruitment included online methods (U.S.) clinic recruitment (South Africa). Interviews focused caregiving experiences wellbeing using KIDSCREEN-27. Analysis frequency descriptive statistics Mann-Whitney U...
Physician faculty learn teaching skills informally while fighting competing professional obligations. One underutilized proven technique to improve is peer observation with feedback. We aimed understand benefits and challenges of a physician development program based on develop best practice recommendations for future development. The authors developed observation-based from 2015 2017. Two interviewers conducted analyzed qualitative interviews 13 participants four non-participants using...
Background Cancer affects the whole family system causing reorganization of functioning and responsibilities where children may take on a caregiving role. In United States, an estimated 204 000 to 475 youth provide multifaceted, extended care in oncology. This results both positive negative outcomes for youth—spanning multiple domains health. Objective The aim this study was explore experiences, outcomes, unmet needs (aged 12-24 years) Methods An explanatory sequential mixed-methods design...
Purpose: Cognitive changes affect up to 75% of breast cancer survivors during treatment and 35% after treatment. There remains a paucity cognitive change-focused education programs for survivors. The Think Well: Healthy Living Improve Function program was developed address in Alabama purpose this article is report development expansion over four years attendees’ satisfaction. Methods: A seven-step framework (identify, connect, assess, tailor, plan, deliver, evaluate) used develop implement...
218 Background: Family caregivers provide the majority of health care to 18 million persons with cancer in U.S. Yet despite providing complex medical and nursing care, a large proportion report no formal support or training. Recognizing this gap, many interventions have been developed tested over past two decades demonstrated effectiveness. However, there is little system-level data on whether centers adopted implemented these interventions. We conducted first national survey Commission...