A5036575517- Cystic Fibrosis Research Advances
- Adolescent and Pediatric Healthcare
- Mobile Health and mHealth Applications
- Global Maternal and Child Health
- Family and Disability Support Research
- ICT in Developing Communities
- Healthcare Systems and Reforms
- Head and Neck Cancer Studies
- Family and Patient Care in Intensive Care Units
- Pediatric health and respiratory diseases
- Neonatal Respiratory Health Research
- Oral health in cancer treatment
- Childhood Cancer Survivors' Quality of Life
- Aging, Health, and Disability
- Chronic Disease Management Strategies
- Neutropenia and Cancer Infections
Children's of Alabama
2020-2023
Children's Hospital of Orange County
2023
University of Alabama at Birmingham
2023
Wishaw General Hospital
2018
University of Alabama at Birmingham Hospital
2006
BackgroundPreviously, we adapted a mobile health platform (Genia) to the needs of patients and families in pediatric CF center United States. In this feasibility study, tested impact Genia on measures patient-centered care.MethodsIn one-group pre-post study with adolescents caregivers children CF, Genia's effect over 6 months patient satisfaction chronic illness care (PACIC) shared decision-making (CollaboRate). Feasibility acceptability were assessed exit interviews app analytics.ResultsThe...
Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary team. The limited exchange of information outside the impedes optimal disease self-management, patient engagement, shared decision making.The aim this study to adapt mobile health (mHealth) app originally developed in Sweden needs patients, families, providers CF center United States test it as platform for sharing patient-generated data team.Focus...
Tobacco smoke exposure has negative impacts on the lung health of children with cystic fibrosis (CF), yet evidence-based strategies for smoking cessation have not been tested or tailored to CF caregivers. This qualitative study identified barriers and facilitators in this population outlined potential interventional approaches.We conducted semi-structured interviews familial caregivers who were current former smokers, members care team. We asked about experiences, practices, prerequisites a...
Oral mucositis is a condition that ranges in severity from redness to severe ulceration. It and painful complication occurs patients receiving high dose chemotherapy prior bone marrow or stem cell transplantation. Mucositis remains one of the most under treated problems with cancer. has been rated as debilitating side effect by cancer undergoing care necessary well throughout course therapy for any patient at risk developing mucositis. Although there are many pharmacologic interventions...
<sec> <title>BACKGROUND</title> Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary team. The limited exchange of information outside the impedes optimal disease self-management, patient engagement, shared decision making. </sec> <title>OBJECTIVE</title> aim this study to adapt mobile health (mHealth) app originally developed in Sweden needs patients, families, providers CF center United States test it...